Three great examples from Deidre’s story, Cassidy’s Journey With Diabetes.
1) Know when to let go. As a parent it’s hard to know when to let go, especially when your child has an illness or disability. I loved Deidre’s example of letting her daughter, Cassidy take control of her diabetes at a young age. I asked Deidre if she encouraged Cassidy and this is what she said. “Cassidy, miss independent, wanted to learn how to change her pump. It was all her idea. I was very nervous at first and it took a few weeks for her to convince me to let her try. I find myself having a hard time not having complete control over her diabetes at all times. It is part of being a hover mom. All parents want their children to be safe but I am sure I take it too far with Cassidy. Well I guess not too far because I do let her out of my sight and let her live her life, so I could be a lot worse. It amazes me how responsible Cassidy is and how fast she learns things. She loves that she knows how to change her pump. It gives her some of the control back into her life, since she is living with diabetes she is going to make the best out of it. Learning how to take care of herself helps her deal with the everyday challenges.”
2) Find a support group. Deidre mention the LDS T1D parents group. I asked her about it and she said, “It’s a parents group I found on Facebook. It is a safe place to ask questions about type one diabetes and to share information you find to help others. It is also a good place to unwind because you know the parents there will understand what you are going through. It helps me remember that I am not the only parent who has a child living with diabetes. I would never have found out about the Genteel without this group.” We all need support and it is especially helpful when it comes from those who travel our same pathway.
3) Research ideas, tools and medication that can improve the quality of life. Another great example of this comes from Deidre, she said, “The Salter Scale has helped me out so much. I didn’t find out about it until a few months after Cassidy was diagnosed. I really wished someone had told me about it at the hospital. Learning how to carb count was very stressful. The scale I use is called the Salter Nutri-Weigh dietary computer scale 1450. It displays 11 nutritional values of your food. It took the guessing game away. If Cassidy wanted a banana I could throw it on the scale and it would let me know how many carbs were in that size banana. Even something as taking crust off of bread was stressful before the scale. I was worried how many carbs I was taking away from that slice of bread. With the scale I didn’t need to worry, if I took too much crust off, the scale would let me know how many carbs were in that slice. The scale was worth every penny and I took the scale with me everywhere I went till I got the hang of carb counting. I will take the scale out now to test myself. I want to make sure my portion sizes remain the same so it is good to test yourself every once in a while to make sure your one cup is still really one cup.”
I asked Deidre about the Genteel and Cassidy showed me how it remarkably works. This is what it says on the box. “Genteel’s exclusive customize contact tips reliably draw blood from a lance site so shallow it does not reach pain nerves. At the instant of activation, genteel vibrates the skin over the lance site, and uses a process so fast, nerves have no time to respond or process the sensation of pain. Blood is drawn in as little as 2-8 seconds without having to squeeze the lance site.” Sounds wonderful and Cassidy say’s it doesn’t hurt!
What helpful tips do you have which make your life better and easier?
Barbara, what a great website for bringing caregivers together and sharing experiences, ideas, etc. Love it!
Thanks for reading and your comment!