November 2017 Newsletter

Welcome FallThe effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be uplifting. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last month’s meetings in case you missed it. Please check out the upcoming events and mark your calendar for the Epilepsy Foundation of Utah Symposium. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

reminder

November 3, 2017 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.

November 14, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share dinner and crafts together.  Bring a side dish or dessert to share if you’d like. This month, fun supplies for handmade thank you cards will be available to make a card for those you are grateful for. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

November 16, 2017 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the caregivers and survivors will meet together in the conference room on the 9th Floor for a special guest speaker, Chad Hymas. On April 3, 2001, Chad was involved in a serious accident, leaving him a quadriplegic. But Chad’s dreams were not paralyzed that day; as you will see, he keeps himself busy as a Life Coach, Trainer, and Keynote Speaker.

 

November 28, 2017 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Managing Holiday Stress presented by Michelle ThornellCall Ryan Pello at (801) 581-2221 for questions.


NovemberFREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

November 2, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

November 9, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month at the Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

November 15, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

November 22, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


UPCOMING EVENTS

importantdate-clipart

Epilepsy Foundation of Utah Symposium. This educational program provides an opportunity to learn more about epilepsy while connecting with others living with the challenges of seizures. This event is designed for people with epilepsy, their loved ones and those that work with and care for people with epilepsy.

Sessions include:

  • Epilepsy: Questions & Answers Presented by Colin VanOrman, MD – Primary Children’s Hospital
  • Epilepsy Surgery Presented by John Rolston, MD, PhD – University of Utah Neurosurgery
  • Seizures, School & Seizure Rescue Medication Presented by BettySue Hinkson MSN, RN, NCSN – Utah School Nurse Consultant, Utah Department of Health
  • Epilepsy & Social Security Disability Benefits Presented by Jake Lee, JD
  • Epilepsy Seizure Detection and Monitoring Devices Presented by Shari Combe, MPAS, PA-C
  • Panel Discussion with all speakers

While this is a free event, it’s recommend you register onlineRegister at epilepsy.com/Utah


Missed7

BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Sanderson Community Deaf Center located 5709 South 1500 West, Murray, UT

Tuesday, October 10, 2017, after a yummy chili dinner we had a great time making Halloween decorations and masks. Thank you, Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.

IMC SURVIVORS AND CAREGIVERS EDUCATION GROUP MEETING NOTES

Intermountain Medical Center, 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

Thursday, October 19, 2017the survivors met in the conference room on the9th Floor and Stephanie Obradovich, Physical Therapist, presented Exercise, Vitality and Well-being. She taught some simple exercises and we participated in yoga and Tai Chi. Thank you Stephanie for reminding us of the importance of exercises.

The caregivers met in the conference room on the 7th Floor and Mark Fox gave us insightful Tricks to Get Things Done. We discussed what makes it so difficult, defining priorities and why a planner is important. Thank you Mark for this timely presentation. 

 UNIVERSITY OF UTAH BRAIN INJURY SUPPORT GROUP

Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106

Tuesday, October 26, 2017, Chris Benda shared a little bit of her story. Nearly five years ago, her son at age fourteen was in a serious accident at school. He is a TBI survivor and she discussed how a community of people helped their family to survive and the resources they used. She gave us useful information on what’s available. Thank you, Chris Benda.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s