February 2020 Newsletter

Happy Valentine’s Day! At the start of this month I had a nasty cold which zapped my energy. While sick I took the opportunity to watch the new Aladdin movie. My favorite scene was when Aladdin surprised the princess by appearing at her balcony on a magic carpet. He persuaded her to take an enchanting ride. I related to their mutual attraction and it took back to the happy time when I first met Mark.

We were on a double date. I had been on a few previous dates with Mark’s co-worker, but when Earl invited me on this date with his friends from work I had no idea how my world would change. Of course on this night Mark was with another gal. I couldn’t stop looking at him and I caught him looking at me too. The attraction was real, and alarming since I kept wishing I was with my dates friend.

The songwriters, Alan Menken and Tim Rice brilliantly reminded me of how refreshing and magical new love feels through A Whole New World:

I can show you the world
Shining, shimmering, splendid
Tell me, princess, now when did
You last let your heart decide?

I can open your eyes
Take you wonder by wonder
Over, sideways and under
On a magic carpet ride

A whole new world
A new fantastic point of view
No one to tell us no
Or where to go

Or say we’re only dreaming
A whole new world
A dazzling place I never knew
But when I’m way up here
It’s crystal clear
That now I’m in a whole new world with you

For me, that new world started Forty-three years ago. My mind raced through the highlights of marriage and adding two incredible children to our union, and how they increased depth and value to our world. 

Now I’m in a whole new world with you
Unbelievable sights
Indescribable feeling

Soaring, tumbling, freewheeling
Through an endless diamond sky
A whole new world
Don’t you dare close your eyes

A hundred thousand things to see
Hold your breath – it gets better
I’m like a shooting star
I’ve come so far

I can’t go back to where I used to be

The phrase, “I can’t go back to where I used to be,” hit me hard and in that sentence the joyful feeling I’d experience turned to sadness. Numerous times I’ve wished I could go back, before our life changing car accident. To feel unstoppable. To feel like I had some control of the ride.

Just as I had the thought, I notice Jasmine and Aladdin were no longer steering the carpet. The songs tempo and ride slowed down and the two of them were coasting, enjoying wherever the magic carpet was taking them.

A whole new world

Every turn a surprise
With new horizons to pursue
Every moment red-letter
I’ll chase them anywhere
There’s time to spare
Let me share this whole new world with you

A whole new world
That’s where we’ll be
A thrilling chase
A wondrous place
For you and me

Mark and I never dreamed of the realm we ended up in. Most turns are a surprise, and there continues to be new horizons to pursue. It’s a chase alright and most days I wouldn’t call it thrilling. At our age, it no longer feels like there’s time to spare, but I’m still grateful we’re sharing this world together. Although it’s not the creation we anticipated, it is a wondrous place!

I gain much support and help through meeting with others in like situations. They help make sense of this new world. I’m grateful for friendships made in these groups and their encouragement helps me meet challenges. The experience and knowledge shared is beneficial and uplifting.

The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

February 11, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner, crafts or games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

February 20, 2020IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. Brainstorming, will be led by Candace Floyd, University of Utah.

Survivors meet on the 9th floor gym. Mark Fox, MS, CCC-SLP, will be present Tools for Success. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.

February 25, 2020University of Utah Brain Injury Support Group meets at 6 – 7 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. Sarah Gallant and Ally Cayas are over this Support Group. For more information please call (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.

For more information contact Margo at (801)455-6089 or Utah@efa

February 12, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

February 13, 2020 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

February 19, 2020 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

The Logan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)

 Two of my favorite websites. What are yours?


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.

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