The effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be uplifting. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last month’s meetings in case you missed it. Please check out the upcoming events and mark your calendar for the Epilepsy Foundation of Utah Symposium. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.
FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY
November 3, 2017 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.
November 14, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share dinner and crafts together. Bring a side dish or dessert to share if you’d like. This month, fun supplies for handmade thank you cards will be available to make a card for those you are grateful for. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.
November 16, 2017 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the caregivers and survivors will meet together in the conference room on the 9th Floor for a special guest speaker, Chad Hymas. On April 3, 2001, Chad was involved in a serious accident, leaving him a quadriplegic. But Chad’s dreams were not paralyzed that day; as you will see, he keeps himself busy as a Life Coach, Trainer, and Keynote Speaker.
November 28, 2017 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Managing Holiday Stress presented by Michelle Thornell. Call Ryan Pello at (801) 581-2221 for questions.
FREE WEEKLY GROUPS
INTERMOUNTAIN HEALTH CARE NEURO THERAPY
Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50
Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room
Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50
Contact: Dr. Russo at firstname.lastname@example.org
FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES
Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org
November 2, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.
November 9, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month at the Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.
November 15, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).
November 22, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.
Epilepsy Foundation of Utah Symposium. This educational program provides an opportunity to learn more about epilepsy while connecting with others living with the challenges of seizures. This event is designed for people with epilepsy, their loved ones and those that work with and care for people with epilepsy.
- Epilepsy: Questions & Answers Presented by Colin VanOrman, MD – Primary Children’s Hospital
- Epilepsy Surgery Presented by John Rolston, MD, PhD – University of Utah Neurosurgery
- Seizures, School & Seizure Rescue Medication Presented by BettySue Hinkson MSN, RN, NCSN – Utah School Nurse Consultant, Utah Department of Health
- Epilepsy & Social Security Disability Benefits Presented by Jake Lee, JD
- Epilepsy Seizure Detection and Monitoring Devices Presented by Shari Combe, MPAS, PA-C
- Panel Discussion with all speakers
While this is a free event, it’s recommend you register online. Register at epilepsy.com/Utah
BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES
Sanderson Community Deaf Center located 5709 South 1500 West, Murray, UT
Tuesday, October 10, 2017, after a yummy chili dinner we had a great time making Halloween decorations and masks. Thank you, Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.
IMC SURVIVORS AND CAREGIVERS EDUCATION GROUP MEETING NOTES
Intermountain Medical Center, 5171 S, Cottonwood St., Bldg. 1, Murray, UT 84107
Thursday, October 19, 2017, the survivors met in the conference room on the9th Floor and Stephanie Obradovich, Physical Therapist, presented Exercise, Vitality and Well-being. She taught some simple exercises and we participated in yoga and Tai Chi. Thank you Stephanie for reminding us of the importance of exercises.
The caregivers met in the conference room on the 7th Floor and Mark Fox gave us insightful Tricks to Get Things Done. We discussed what makes it so difficult, defining priorities and why a planner is important. Thank you Mark for this timely presentation.
UNIVERSITY OF UTAH BRAIN INJURY SUPPORT GROUP
Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106
Tuesday, October 26, 2017, Chris Benda shared a little bit of her story. Nearly five years ago, her son at age fourteen was in a serious accident at school. He is a TBI survivor and she discussed how a community of people helped their family to survive and the resources they used. She gave us useful information on what’s available. Thank you, Chris Benda.
http://www.caregiver.org (online webinars for caregivers)
http://www.tbicommunity.org (online educational programs)
http://www.braininjury.com (medical, legal, information resource)
http://www.abta.org (brain tumor education and information)
http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)
http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)
http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.
http://www.nationalmssociety.org/Resources-Support (resource for those with MS)
https://biau.org (resource for those with brain injury)
http://www.brainline.org (preventing, treating and living with TBI)
ACTIVITIES TO DO WEBSITES:
https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)
https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)
http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)
https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)
http://www.discovernac.org (National Ability Center)
(wheelchair accessible trails in Utah)
https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)
wasatchadaptivesports.org (Wasatch Adaptive Sports)
http://www.discovernac.org (National Ability Center)
https://www.meetup.com (meet up groups)
Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)
http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)
http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)
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