March 2019 Newsletter

This image has an empty alt attribute; its file name is march3.jpg
Welcome Magical
March

As we acclaim St. Patrick’s Day and the Irish culture this month, I think of three leafed clovers, leprechauns, rainbows, a pot of gold, dancing, and lots of green. March feels like a fairy-tale month and it brings pleasure as I reflect on how lucky I am. I have a great family, wonderful neighbors, friends and awesome support groups we enjoy attending.

However, life isn’t always a joyful party. Hard situations and health issues can bring resentful and bitter feelings. We may wonder why life didn’t turn out the way we thought it should. It seems there are many good reasons to be unhappy and it’s easy to blame sadness on the things we lack in life.

For me the best antidote for unhappiness is gratitude. Have you noticed people who have an appreciative attitude are the happiest? It’s a quality which makes them more likable and at peace with themselves and circumstances. They tend to make others feel better about themselves too as they share their optimistic outlook.

Focusing on the positive and the good things that happen each day helps me realize how lucky I truly am. When I’m thankful, I hear harmony and feel pleasure in life.

I’m fortunate to be a caregiver and realize how blessed I am Mark survived our near-fatal car accident 28 years ago. Living with the effects of a severe traumatic brain injury and epilepsy helps me understand that every day is a bonus day even with the challenges. Being responsible for the care and well-being of another is a highly committed role, but it’s rewarding, mostly because Mark appreciates what he has too.

I’m privileged to be associated with so many other caregivers and survivors. I’m grateful for many support groups in our valley, and we benefit greatly from our association with them. The network of help looks like a rainbow after a storm of trials. There is a pot of valuable information which can be gained through collaborating with others in like situations.

If you feel unlucky in life, try seeking the Irish magic of this month by finding friendships and assistance through organizations catered to your circumstances. The purpose of this newsletter is to share the treasures I know about in hopes you too can feel lucky.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

New: Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic. Come and enjoy the power of music and friendship together. They have some performance opportunities, such as singing a patriotic song to kick off the Strides for Strokes race to support the Utah Valley Stroke Association on May 18, 2019. Everyone interested is welcome to join.

March 7, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. This month Susan Reynolds is speaking about depression management. ​For questions, email tracy_liu@byu.edu or call Tracy Liu at (801)422-9132

March 12, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

March 21, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month, Marc Macialek, will present, The Success of Failure: Progress After TBI. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

March 26, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Carly Hoffman, SCMT, MT-BC, NMT (Neurologic Music Therapist) is demonstrating and speaking about how music can help heal the brain. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

March 7, 2019 – Epilepsy Support Group in Logan, UT.- 7 to 8 pm Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341

March 13, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

March 14, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

March 20, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

March 28, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at April 4, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


HELPFUL WEBSITES:

http://www.tbicommunity.org (online educational programs)

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

This image has an empty alt attribute; its file name is uniquely-abled-e1514866704474.jpg

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


This image has an empty alt attribute; its file name is laptops.png

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

February 2019 Newsletter

img_1049

Happy Valentine’s Day!

Being a caregiver is not for everyone. The responsibilities of bathing, dressing, feeding and overseeing the safety, physical and emotional needs of another person can be strenuous. There are a variety of levels of caregiving such as a professional who makes a living at it, or a family member, or a friend who is dedicated to help another. If you care and you give to another’s well-being, you are a caregiver.

No matter what type of caregiver you are, there are common and important traits needed to perform caregiving duties successfully:

    1. Empathy. The ability to understand and share feelings is central to giving care.
    2. Compassion. Provides the energy and drive needed to sustain you through difficult tasks or while working with an individual.
    3. Patience. People being cared for take longer than usual to complete simple tasks or routines. Understanding the limitations of those you care for can help reduce tension in the environment.
    4. Attentiveness. Means being a good listener and noticing when there are emotional or physical changes in the personIt is important to be aware of the needs and the changes that are taking place. It’s a bonus to have a creative mind that can come up with inventive ways to deal with problem situations or overcome resistance.
    5. ComposureHandling stressful or uncomfortable situations with confidence and grace is an important skill for caregivers. A good caregiver doesn’t chide or shame regardless of age or circumstance.
    6. Compromise. Conflicts are inevitable. Sometimes you must compromise to diffuse tense situations. It’s important to thoughtfully focus on what’s needed most to manage disagreements in an effective and positive way.

To read more about a caregivers traits see Six Traits of a Caregiver.

Unfortunately, I do not have all these traits every day, but I strive to. I gain strength and clarity from others who truly understand my journey. For this reason, I’ve gathered information on this month’s support groups and therapy services in our surrounding area offered for those affected by brain injury and epilepsy, which are two health issues we deal with daily. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others lightens the load.

Being responsible for the care and well-being of another is a highly committed role, but it’s also rewarding

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


February1

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

February 7, 2019 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori, (801)422-9132.

February 12, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

February 21, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This year we move to a new location at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program written by Beth Cardell, Phd, University of Utah will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month, Mark Fox, MS, CCC-SL, will present. Why Me? Hard Learned Lessons from Brain Injury. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

February 26, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month they will play the movie My Beautiful Broken Brain. Click on the title to see the trailer. For more information please call Ryan Pello or Annie Wallace at (801)581-2221.


February-clip-art-2

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY

in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


February2

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

February 7, 2019 – Epilepsy Support Group in Logan, UT.- 7 to 8 pm Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341

February 13, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

February 14, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

February 20, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

February 28, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at April 4, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

 

January 2019 Newsletter

January Bring OnA New Year feels like a fresh start and it’s energizing! I’m a visual person so I like to schedule my activities and plan steps for attaining goals. I’ve been marking up my 2019 calendar because without a plan I wander aimlessly. Written down on paper makes it look clear and obtainable. The unknown obstacles and interruptions that life inevitably bring aren’t there to mess up the blue print. Judging by experience, I won’t get it all accomplished, but my motto is to never give up. This year marks a big one for us. Forty years of marriage, and the sixth decade marker of my existence. I haven’t come close to accomplishing what I’ve wanted to thus far in life, nor in these many years of marriage. We’re not where we thought we’d be financially, or physically. My antidote for discouragement is to focus on my life’s mission: To care for and love my family and friends. To put their needs above my wants. This takes flexibility with my daily plans. It means not being so focused on the goals I want to accomplish that I can’t see the needs of others or take time to help them. In 2019, I want to make sure this is a true statement and not an excuse for defeat. It’s tricky and not always easy to identify or decipher between a “want” and “need”.

I gain strength and clarity from others who truly understand my journey. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others lightens the load.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

I’m excited to see how this year unfolds and what it will reveal. I wish you the best for the new year.


January1FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

January 3, 2019 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132.

January 8, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

New-Location1January 17, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This year we move to a new location at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program written by Beth Cardell, Phd, University of Utah will be taught by various members of the medical community and other experts in their field. This month Teresa L. Such-Neibar, DO Physical Medicine & Rehab will be teaching. Bring your family and friends that are part of your caregiver experience.

change

Survivors meet on the 9th floor Gym. This month Kim Sieber, neuropsychologist, will present. Her topic is Mindfulness Strategies for Survivors. Please call (801)314-2086 or email Emily Redd emily.redd@imail.org

January 22, 2019 – University of Utah Brain Injury Support Group 7-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Marc Macialek, TBI survivor and life coach will present. For more information please call Ryan Pello or Annie Wallace at (801) 581-2221.


January

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


january4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

January 9, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

January 10, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

January 16, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

January 24, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

Coming SoonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and

thoughts)


newsletter

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

December 2018 Newsletter

IMG_2976For the first time since last winter, our valley put on it’s gorgeous white coat. Although I don’t enjoy driving in, or shoveling snow, I do love the fresh fallen appearance of it. Each season brings its own kind of beauty and fun activities. We used to take great pleasure in playing in the cold, fluffy, white stuff with snowmobiles or sleds. Building forts and snowmen were challenging in an amusing and entertaining way. With physical limitations, we adore the snow from the warmth of indoors as we watch from our windows as it quietly, gracefully falls. Now, sitting by the fireplace, sipping hot cocoa, reading or watching a movie has become our favorite winter activity.  

As nice and cozy as it is inside, December is filled with social events as we celebrate Christmas and the end of the year. So, we will venture out in the cold to be warmed by our association with family and friends. We benefit and enjoy meeting with others in similar circumstances. We appreciate several organizations around the Salt Lake Valley which give us the opportunity to connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


Happy Holidays1

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

December 6, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. This month’s holiday celebration will include food and games. For questions, please call Tracy Liu, (801) 422-9132.

December 11, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a traditional holiday dinner. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

December 18, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Usually this group meets every 4th Tuesday monthly, but because that’s Christmas day, they are meeting this month only on the 3rd Tuesday, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month will be a Holiday Potluck. Soup will be provided. Bring a side dish to share. Please call Ryan Pello or Annie Wallace at (801) 581-2221.

December 20, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This month caregivers and survivors will meet together for a holiday dinner and entertainment at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building1, 9th floor, in the Neuroscience Conference Room. Please RSVP Emily Redd (emily.redd@imail.org) or Kim Kirkham (kim.kirkham@imail.org), or call (801)314-2086.


december-month-snowmen

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


December WreathFREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday, but now meet quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

 December 12, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

December 13, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

December 19, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

December 26, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

coming-soonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


Laptops

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

November 2018 Newsletter

Welcome.Oct

The vibrant colors of red, yellow and orange cover our yards and the streets of our valley right now. A gorgeous sight saved only for this time of year. The falling leaves indicate this beautiful season is coming to an end, which saddens me and keeps me busy sweeping or raking. Since I wish to hang onto those stunning leaves as-long-as possible, it makes disposing the multicolored foliage a challenging task. I love autumn and especially the month of November because it encourages gratitude and reminds me of all my many blessings. The days pass too fast. By the looks of the stores, Thanksgiving is skipped as they jump from Halloween right into Christmas. I’d like to slow down November and treasure this Thanksgiving season to the very end. I suppose I’ll be busy raking and clearing the yard of hoses, flowers, and other annual plants until the first snow flies, which brings a clean, fresh look to the outdoors. Another kind of beauty. Until the blanket of white reaches the valley, I’ll be getting ready for it, savoring the crunchy sound of dried leaves under my feet, reminding me it’s November and all the things I am thankful for.

We appreciate several organizations around the Salt Lake Valley which give us the opportunity to take a break from our busy lives to connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


What_are_you_thankful_forFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

 November 1, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132. This month’s topic is Stress Reduction.

 November 13, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games or crafts afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

 November 15, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

This month Caregivers topic is titled: I Choose… to be Grateful. Simple ways to find more joy, presented by Julie Brown, Life Coach.

This month Survivors topic is titled: Life lessons, Tips and Tricks presented by Dallas Davis, a multiple brain injury survivor.

November 27, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month will be a member spotlight, Gordan Remington. He will speak on the importance of support networks in recovery title: With a Little Help From My Friends. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


GIVING-THANKS3FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


November4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

change

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday, but now meet quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W.

 

November 8, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

November 14, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

November 21, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

Happy ThanksgivingNo meeting this month for the Epilepsy Group for Teens, because of Thanksgiving. Usually they meet from 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy in December. There are two teachers overseeing this group.


Epilepsy

Symposium info

Click here for free registration


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

Uniquely abled

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.