Celebrating an Annual Close

New YearI hear noisy fireworks outside, the sign of people celebrating the close of another year. I needed the reminder that there is always something to celebrate when we finish a year.

I always suffer with melancholy at the end of the year. As a child, it was because the Christmas season and break was coming to an end. As an adult it’s because I’m haunted by the goals and resolutions I didn’t achieve. My unfulfilled expectations discourage me. I’m plagued with wondering how I can better plan for the New Year and actually complete my goals. Instead of progressing each month, it feels like I’ve been regressing.

The antidote to my despair is hopefulness in the things I have accomplished, and gratitude for the people in my life who make it possible. A change of heart occurs when I reflect on the blessing of family, friends and experiences of the past year with a grateful heart. When I’m thankful I find peace with my life and my relationships.

When something good happens I like to write about it in detail. When I’m feeling down, I’m lifted when I read it. I’m finding it hard to write lately, partly because I’m out of practice so it takes more time, and secondly it’s difficult to make the time. Fortunately, I’ve taken time to at least capture some of the good times with pictures.

These pictures help me remember the joy I’ve experienced this year. Maybe I achieved more than I originally thought.

Forgive yourself

This month I didn’t accomplished near the things I traditionally do in December. It’s the first year I didn’t hang Christmas lights outside, or send out Christmas cards. I didn’t bake sweet bread like I wanted to for my neighbors and friends. Luckily the world didn’t come to an end and my neighbors and friends are still good to me. I hear them outside with joyous fireworks. They are finding reasons to celebrate tonight. I think I will close this article and go join them.

 

Give ThanksI thank you for being a part of my life’s journey.

 

What 2017 accomplishments are you celebrating tonight?

Nurturing Relationships

Humans are social beings and no one is totally self-sufficient. As much as we strive to be independent and admire those who appear to be, it’s sobering to realize in order to accomplish some things we need help. When I read, listen or ponder on my own or other’s life experiences, I realized how much we need one another to succeed. As humbling as the fact is, it also encourages me to reach out and give back to others.

Greg & Laura LakeGreg and Laura are wonderful examples of giving back to others. They shared their story with us this past week. Laura talked about some of the mistakes she’d made by saying, “I am fiercely independent and a stubborn woman. In the beginning I turned family and friends away. I said, ‘don’t fly up here, I’m fine’. Then, ‘we don’t need meals, I’ve got this covered.’”

“By turning help down, I alienated the very people Greg and I needed the most. I felt neglected, isolated, abandoned, ignored, lonely, unsupported, disrespected and misunderstood. When I needed family and friends the most, they were all gone.”

How often do we turn away our friends and family because we don’t know how to accept help or because we want to appear stronger than we really are? It’s much more enjoyable to give rather than receive help. When our lives are out of control, it’s scary and we hope we can make it better by managing things on our own. We may not understand ourselves what we need or how others can help so we push the people we want in our lives away.

The words of John Donne (1572-1631) a Jacobean poet and preacher came to mind, “No man is an island entire of itself; every man is a piece of the continent, a part of the main…”

When tragedy happens it’s hard to think about how it’s affecting our family and friends. We may be so wrapped up in our own worry and grief we are blind to the distress it has on others. They may feel left out or don’t know what to do or say.  They may not know how to help if we’re not open and honest with them.

I appreciated Laura’s advice to let people into our lives by letting them help and also by reaching out to others. She said, “It will reward you and them at a time when they are lost as well.  It will strengthen your relationships, not erode them.  You need help – take it!  They need to help!  Give them the opportunity! I challenge you to SAY YES! Learn from our mistakes and say YES!  YES I need help.  YES I could use that dinner.  YES I would love to join that group or club!  YES I could use a ride to my Dr.’s office or therapy appointment.  YES I would love to go on a walk, or to have you push me while you go on a walk.  Take a chance on making a new friend or rebuilding a relationship. As you do, opportunities, love and warmth will envelope you and your human relationships will grow!”

Get Well CardsI learn so much from others and appreciate my own life experiences. Today, in church, I witnessed many people nurturing their relationship with my mother, who has been too sick with back and hip pain to attend church for four months. Under better health circumstances, she has given so much love and service and is a great example to me of building friendships by reaching out to others. Our neighbors and friends ask me often how she is doing and I try to relay their concern to her. Since we live in the same home and attend the same church, I was given many cards to give to her expressing their love and concern. The children also made a big get well poster for her and wrote notes and signed it in their primary class. My mother’s spirit Get Well Primaryis raised up by the thoughtfulness of so many. Seeing the love that others have for my mother also lifted my spirit. I’m grateful for all the wonderful examples I see and have felt in my own life of nurturing relationships. Today, I realized it can be as simple as writing a note to someone.

 

In your life what personal acts illustrate nurturing a relationship? What effect did it have on you when you were receiving or giving the nurturing?

What Doesn’t Kill Us Makes Us Stronger, Part 2

I met Greg and Laura Nordfelt at the 2013 Brain Injury Conference, just two years after Greg’s motorcycle crash. I’ve enjoyed our friendship and watching this couple get stronger through their traumatic experience. They spoke last week at a combined Survivor and Caregivers Support Group sharing what they’ve learned.

Written by Laura Nordfelt

Greg & Laura-landing pad.pngThe medical helicopter which came to life-flight Greg was very old and small. In fact, half of his body was in the nose of the aircraft. The ventilator was broken and one of the paramedics was trying to bag Greg (it seemed sporadically) while trying to preform many other tasks. I mentioned to her I was an EMT and asked her if I could do the bagging for her. She agreed and I continued on every 4 seconds like I was trained to do in school. The flight seemed to take forever (I worried we were going to Canada!) and only looked out the window once or twice. When we started to land, all I saw was a “tough shed” structure on top of a roof.  Medical people ran out to get Greg and down an elevator we all went and into the Emergency Department. By the time I felt comfortable enough to leave his side, I asked, “Where are we?” When they told me Coeur d’Alene, ID, I told them I needed to take Greg to Salt Lake City, but the doctor told me he would not survive the flight. I slumped down against the wall and lost it.

I made mistakes. I am fiercely independent and a stubborn woman. In the beginning I turned family and friends away. I said “don’t fly up here, I’m fine”. Then, “we don’t need meals, I’ve got this covered.” Not only did I watch him crash, but I kept him alive for 45 minutes until the paramedics arrived. I was a mess! I had post-traumatic stress disorder (PTSD) and I was in a cocoon as much as Greg was in a coma.

An Executive Vice President from Greg’s work came to the hospital to visit and I cut her off down the hall and visited with her. There’s no way I was going to let her see the condition Greg was in. I was so worried that he was going to lose his job. I posted a sign “Family Only” on Greg’s door at the hospital. Visitors had to check with me or the nurse before entering his room. I took the phone off the wall and put it in a drawer and took his cell phone away from him. He wanted to call his office to “check on things” all the time. I was worried he’d say something inappropriate.

Greg & Laura-tableWhen Greg left the hospital, I sent out a message on Facebook telling our friends that Greg needed time to rehab and recover so if they could wait to visit, that would be much appreciated. I really only meant it for acquaintances, thinking our close friends wouldn’t take it to heart. A few months down the road some dear friends of ours called and asked if they could bring dinner and come for a visit. I was thrilled! Frankly I had wondered why they hadn’t called sooner.

While we were setting up dinner, she told me they would have come sooner, but wanted to respect my wishes of giving us our space. I said, “Oh, I didn’t mean you guys!” I realized then that I had alienated the very people Greg and I needed the most. Greg’s co-workers later expressed the same emotions. If only they’d known what to do. They wanted to help in any way, but we pushed them away.

I own a business and I needed someone to sit with Greg or run him to therapy appointments, but I said “NO, I’m fine”. I really wasn’t fine, but I wanted to be and I didn’t know how to let them help. Most of it was my fault, but some of it was not.  Caregivers leave the hospital with their tool bags pretty much empty. I had to earn my hammer, saw and screwdriver the hard way. I felt neglected, isolated, abandoned, ignored, lonely, unsupported, disrespected and misunderstood. When I needed family and friends the most, they were all gone.

Greg & Laura-walkIn order to heal, I had to get outside of myself. I started the first ever Caregiver Group in Utah as a survival mechanism. As much as I wanted to give back to the community, I needed other caregivers. As I spent time listening to their stories, I felt not so overcome by my own problems. I felt empathy and compassion. When “in the moment” of caring for caregivers and survivors, their hurdles felt more important than my own. When we get caught up in these “feel good” experiences, we don’t need anything in return. I also joined the Board of the Brain Injury Alliance of Utah. This is my passion now!

Another way I healed is a couple of years ago a friend asked me to join her book club. I love to read, but I was scared at first because I only knew her and no one else. I went one time and almost did not go back, but forced myself to hang in there. These women are now very near and dear to my heart. I’ve read many wonderful books which I never would have picked up on my own. The social setting has its benefits as well. We trade off hosting dinner so I’m learning new recipes. I work on my listening skills and forget my problems for a few hours. By the very nature of getting together with women, it forces me to get out of my pajamas. Therefore, I get semi-dressed up, put on my makeup and lipstick and wear my fun jewelry. All of this is very good for my soul!

Thank you, Laura, for sharing your experiences and what you’ve learned. Friedrich Nietzsche was right, “That which does not kill us makes us stronger.”  I see that in Greg and Laura’s life and hope you see that truth in your own life.

Carry On

July is full of outdoor activities and celebrations that last all month long in Utah. It’s my favorite time of year with family reunions, outdoor plays, concerts, parades and many festivities to look forward to. The sun rises early, which makes it easier for me to do also. The weather is usually sunny and the daylight lasts until 9 pm, making this month the one to accomplish the most outside. I always have great aspirations for this month.

This year we started the month out by driving to Vancouver, Washington with our daughter, Katie. We enjoyed visiting with Mom Wilson, Karen and Mark Ray. Lucky for us our son, Christopher, lives just across the Columbia River in Portland, Oregon making our visit quadrupled the fun. We enjoyed an Independence Day celebration at the park with energetic music, food trailers, beautiful fireworks and the great company of family. It’s always hard to say good-bye to loved ones especially without knowing when we’ll see them again. We made the long trek home in about fourteen hours, which includes our fuel and rest stops.

My asthma flared up during our trip and I struggled more than usual to get it under control. When we returned home I went to the doctor for what I thought would be just a medication change. I left Mark home alone, expecting it to be a short doctor’s visit since I was her second appointment of the day. My oxygen level was low so they gave me a breathing treatment and oxygen, which confined me to the room until my oxygen level reached normal.

Two hours later, I left the room anxious to get back to work and to Mark. Remodeling construction had started near the large entrance/exit sliding glass door of the building. With no cone or sign before it, I didn’t see the piece of metal track that had been attached to the tile floor during my doctor’s appointment. I tripped and fell on it, landing hard on the tile, dislocating my right shoulder.

Dislocated shoulder 1

Dislocated Shoulder 07/08/16

My body wrenched in pain like I’d never felt before. I tried to get up, but couldn’t. A man came to my aide and before I knew it, I was sitting in a wheelchair and whisked to the Urgent Care Clinic in the building.

I heard someone report I was in and out of consciousness and my vitals dropped. “Call an ambulance; she needs to go to the hospital.”

“Please put my shoulder back in place,” I pleaded. “I need to get back home to my husband.”

The look on the doctor’s face helped me realized how silly the statement sounded, so I explained. “My husband has a traumatic brain injury and is confined to a wheelchair. He depends on me to get him in and out of the chair.”

“I don’t believe you’re going to be able to lift him for six to eight weeks,” he said while placing an IV for fluids and another one for morphine.

The first stranger who rushed to my aide looked at me drenched in perspiration from the pain and in sympathy said, “I’m sorry. Don’t worry about the medical cost. We’ll take care of you.” I assume he was the job foreman.

Submissive to all the medical team requests, I moved every which way they asked as they transferred me to the stretcher and rushed me to the hospital. For the next three hours the only thing on my mind was getting my shoulder back in place. My right arm went from feeling like it weighed 100 pounds, to numbness, to sharp, shooting pains running down it. I was sure my arm was dying and at times I thought death would be my only relief. No matter how many times I begged them to fix my shoulder there were tests that needed to be done to make sure I didn’t need surgery or an x-ray that had to be taken to show the best way to maneuver it back in place. Finally I was given a conscious sedation and like Humpty Dumpty who fell off the wall, I was put back together again. Instant relief followed, but then came the body shakes, which I will take anytime over the pain of a totally dislocated joint.

Located Shoulder 2

Healing shoulder, 07/19/16. The bump on my clavicle is from the break 25 years ago. I’m glad it didn’t break again!

I’m an aging caregiver who is dedicated to the love of my life. My worst fear is not being physically capable of caring for him. I’ve always known it’s a possibility, but I don’t know how to prepare for it. I know the options and none of them feel right. Even the option of relying on family and friends for help ties my stomach up in knots.

This year the sunny month of July has been the darkest I have felt in a long time. Depressing thoughts linger because my body can’t do what it wants to do. With my arm splinted in a sling and strapped to my side to allow torn tendons and ligaments to heal, my mind keeps focusing on the negative aspects of my life. Having to depend on others to help with Mark’s care for several weeks makes it hard for my heart to find hope in a brighter future. How do I dig out of this gloomy place and feel the sunshine in my life again?

brigham-young-and-pioneers-entering-the-valleyAnnually on July 24th, our state honors the Mormon pioneers who arrived in the Salt Lake Valley in 1847. I imagine after pulling handcarts or driving wagons with oxen or horses across the plains more than a thousand miles, the pioneers were happy to settle the desert landscape now known as Utah. Last week our celebration reminded me their trek exemplifies courage and faith. Their stories inspire me. They endured harsh weather, death of loved ones and starvation as their food and water supplies diminished.  Nothing had prepared the majority of these travelers for the exhaustion, illnesses and injuries they would suffer. They were beginners in a new territory, learning a new way of life.

I see similarities between my caregiving trek and my pioneer ancestors who walked approximately 1,248 miles from Nauvoo, Illinois. Although we thankfully have the comfort of a home with plenty of food and water, nothing had prepared me for the anxiety and exhaustion of caring for another, or the illnesses and injuries which keep arising. As we make it through one challenge only to receive another, I continue to be a beginner in a new territory, learning a new way of life that most people can’t fully understand. I am a modern-day pioneer and so are you as we struggle through our own personal trek. This connection gives me courage and faith to carry on.

The pioneers didn’t know how or when their journey would end. Similarly, I don’t know how or when ours will end. Like my ancestors’ examples, I’m committing to carry on with faith in every footstep for a brighter future. Even if we don’t reach our desired destination in this life, I believe we’ll be blessed beyond the grave, free from the harsh physical ailments which we have endured. With confidence, I picture this celebration far grander than I’ve ever witnessed and possibly can even imagine.

Just as I started the month of July with great aspirations, I end it with the same for the future and will carry on as best I can.

 

Now and Forever

Convertible 2

June 2014, two men struggled to get Mark into our friends convertible, but it was a great ride and memory now. 

In just one moment, our life’s journey took a drastic change and now I can’t help but relate our life as before or after April 27, 1991. In my mind it’s like I have two filing cabinets, one holds memories of before and the other after the car accident. Much love is contained in each cabinet, however the two different lifestyles did changed our relationship. The one constant is as Carole King sings, “Now and forever, I will always think of you.”

I still miss the way things were in my before cabinet and enjoy reflecting on the files contained there. I have to smile at the possibility of my mind embellishing those twelve years of memories, because most of the files hold an easier and happier way of life.

Anniversaries have a way of making me reflect. Because it will be twenty-five years in just a few days, I realize my married life after the accident cabinet holds more than double the files of my before cabinet. To lift my spirit I’ve set my sights on writing about the positive aspects contained in my after cabinet, which I consider blessings.

I’m glad Mark and I survived the accident which could have taken both of our lives. I’m grateful our children weren’t with us when it happened. At the young ages of seven and eight, they appeared to be more resilient and accepting of our new lifestyle than they might have been if they were teenagers at the time. Their childlike belief that all would be well kept us working towards their expectations.

I’m thankful the accident happened before we moved instead of after. I’m grateful for the advice and insight of others to stop the sale of our home. This unfamiliar road would have been so much harder had we been attempting to get settled in a new house while seeking new friendships. I appreciate the love and support we felt from our Sandy neighborhood. The benefits of Mark returning home to a familiar place surrounded by familiar people proved to be immeasurable, especially with his short-term memory problem.

There are unexpected advantages to Mark’s memory issues, such as not recalling the pain and length of time in rehabilitation. I believe his poor short-term memory has saved him from depression. He is fun to be with and works hard to accomplish things which used to come easy. His example of patience, endurance and the constant expression of appreciation encourage me to do and be better.

We’re fortunate Mark regained consciousness after three months of being comatose and remembered the most valuable things in life—faith, family and friends. He retains his determination and quick-wit. He enjoys making people laugh and reminds me that bringing happiness to others brings joy to oneself. He teaches me what’s most important in life and encourages me not to worry about all the other stuff.

I appreciate of the wonderful people we’ve met since our accident and their positive examples. They are mentors who give me strength, courage and faith that I can succeed in my caregiving journey. I’m grateful for all those who have shared a part of their stories as guest authors on Uniting Caregivers.

We’re happy to live in a wheelchair accessible home which provides comfort and conveniences, making our life easier. We’re fortunate to share our home with my parents who are willing to help in every way they can.

We’re lucky to have friends who love and encourage us. Friends who made our move to Draper easier. They welcomed and helped us feel comfortable right from the start. We moved just five years after the accident and we were still adjusting to a new way of life. Their warm reception and support made our new pathway bright.

I’m privileged to have parents and siblings who are generous with love and service. We’re blessed they live close by and we can call on them at any time. If possible and needed, we know they’d come at a moment’s notice to assist in any way they could.

I’m fortunate to have the acceptance and love of Mark’s family and although they live in other states, we know of their concern and care for us. I’m thankful for cell phones, email and social media, which bridges the distance and keeps us connected.

I’m blessed to be a part of a large extended family where cousins, aunts, uncles, nieces and nephews are involved in our lives. We cherish our relationship with each one and I’m grateful for their love and loyalty to family.

Looking at all these files of blessings, I realize our life has turned out just as it should for our own personal growth. Our journey may have taken an unthinkable turn on April 27,1991—one I wouldn’t have chosen, nor expected or could have prepared for. However, joy is found in the after the accident cabinet. I believe happiness can be now and forever because Mark is a part of me and I will always be with him.

A Good Society

Once in a while our eyes are opened to what’s right in society. The news often reports criminal activity and the negative things which happen. Saturday night I witnessed a lot of goodness when a tragic accident happened in our neighborhood.

Accident
 Image Credit: KSL & Tyler Woolstenhulme

While making dinner, I heard sirens rush past our house and then a loud helicopter engine, which made me realize something was seriously wrong. Apprehensively, I walked outside to see a life-flight helicopter hovering low in the sky, appearing to look for the right place to land. I hurried to the top of the street and saw a lot of police cars blocking the road. I know and care about those people who live in the homes where the police cars were. A fearful chill ran down my spine as I worried about what was going on. I spotted a few other neighbors hurrying to the scene and decided to stay out of the way. I waited and watched at the top of the street.

The helicopter landed and after what seemed like forever, I saw one neighbor leaving the scene and walking back towards his home. I rushed in his direction to find out what was happening. Obviously shaken by the sight, he spoke quietly with a sad, regrettable tone in his voice and told me a young boy, who he didn’t recognize, had been hit.

“Why hasn’t the helicopter left yet?” I anxiously asked, fearing that the boy might not live.

“I don’t know, maybe he didn’t survive or maybe it’s not as bad as they thought,” he said with a trembling voice.

accident2
Image Credit: KSL & Tyler Woolstenhulme

It’s a heartbreak for sure when tragedy strikes, but when an innocent child is involved the pain is more intense. I didn’t know who had been hit, yet I felt sorrowful, not only for the boy, but the whole family affected and the driver of the vehicle. Upset by the news, I paced back and forth for a moment longer, wondering if I could be of help or if I’d just be in the way.

My feet turned and reluctantly carried me toward the accident. I recited in my mind what I would say and do to give support and care to my neighbors. I silently prayed for inspiration to do and say the right thing as I headed in their direction. I witnessed the helicopter lift in the air and speed toward the Wasatch Mountains where our renowned Primary Children’s Hospital is located. Relieved by the thought that the boy was now on his way to the best medical care in our state, I also realized how serious his condition must be.

When I reached the accident site, I observed a neighbor leading eight to ten children away from the commotion. These children were obviously in shock and a wise neighbor had the foresight to get them away from the scene and over to her house. I admired her clear mind and calming influence as she walked with them peacefully across the road, now closed to traffic, toward her house. I’ve respected this neighbor for many years, but my esteem for her grew by leaps and bounds as she seemed to know just what was needed and calmly did it.

Another neighbor filled me in on the details as he knew them. A young family was leaving a baptism celebration which was held at our neighbor’s home. While walking to their vehicle their three-year-old boy left his mother’s side and darted out into the road. In that split second lives were changed forever.

Another neighbor who happens to be a doctor gave the young boy CPR and medical attention until the paramedics arrived. Other neighbors gathered to give care and support to the families involved.

Later I learned there were no drugs, alcohol or speeding involved. The police reported it as an unfortunate freak accident. The driver was not at fault and had no time to stop when the boy darted out in the street.

Regrettably, the little boy died later that evening and the whole neighborhood is mourning the loss of a boy who most of us personally didn’t know.

Through the sadness, I’m amazed by the love and care of people. Too often our attention is drawn to what’s wrong in our world. Yet most people are genuinely good. Our beliefs may differ. We may not agree on how our city, state or country should be run. We may wish our neighbors would be more thoughtful at times and about certain situations. However, when it comes to a crisis, most people pull together and I witnessed that last night. Today, I’m grateful for the society we live in and the thoughtfulness of others. I’m thankful for police officers and investigators who are steady in horrific circumstances. I’m grateful for how quickly medical assistance can arrive in an emergency. I’m thankful for neighbors, friends and strangers whose best character traits can be realized and appreciated in a tragedy. I’m grateful to know even strangers mourn with those affected by heartbreak. I’m fortunate to live in a good society where most people do care about others.

Our Happy Place

Hip QuoteTwo months ago today Mark had his second total hip replacement surgery. Out of the three most common replacement surgeries, hip, knee and shoulder, we’ve been told the hip replacement is the easiest to recover from. We saw many people during his seven weeks of in-patient rehab days who healed a lot quicker than Mark, even with a knee or shoulder surgery. It’s hard not to get discouraged. This is when I realize having a short-term memory problem is a blessing that Mark inherited from his traumatic brain injury (TBI). He lives in the moment, which is what I’m trying to learn how to do.

DadsRightHipDadsLeftHipThe pain of moving joints, muscles and tendons which have been cut and were not in good condition beforehand seemed at times unbearable. Mark’s ability to make his body move is difficult with his TBI under normal conditions, but throw a surgery in the mix and it’s nearly impossible. However, he persistently works hard to please the therapists and me, doing all that is asked of him, even when he doesn’t feel like it. He has made remarkable progress for his circumstances. When I liken his abilities to before surgery and not another patient, I am thrilled with his progress.

Often right before or during a painful stretch, Mark’s therapist would say, “Go to your happy place.” To that Mark would reply, “My happy place is any place other than here.”

Wanting to be helpful, I started naming vacation spots which hold wonderful memories. “How about the beauty of Zions, Bryce and Grand Canyon; remember the thrill of seeing the parks for the first time on our honeymoon?”

“I just want to go home.” Mark replied.

My thoughts moved to the gorgeous State of Washington where Mark grew up. “I love Deception Pass and the San Juan Islands. I look forward to our next trip there, how about you?”

“Home is my happy place so take me home.” Mark pleaded as the painful stretch continued.

As a wife and caregiver, I want nothing more than for Mark to be better. My world has revolved in this endeavor for twenty-five years next month. In the first few years after his TBI, it was a race against time because it was believed that the greatest amount of progress would happen in the first year and then slow down and plateau within the following couple of years.

Subsequent years we continued seeking for improvement with foot surgeries on both feet to correct foot drop and toe tendons cut to release curl to make standing possible. Also he’s had previous hip surgeries to clean out the joints for improved movement and a Vagal Nerve Stimulator (VNS) implant to help control his seizures along with the various surgeries in the beginning which saved his life. All told, Mark has had fifteen surgeries since the car accident.

Mark turned sixty last November so the path of our journey seems shorter than it used to, which adds a new dimension for recovery importance. It’s evident to me that striving for improvement is a lifetime pursuit. But this is not the life we’d planned and there is a certain amount of grieving that happens over the loss of dreams and honestly some dreams are harder to bury than others.

I’m human and some days I run out of patience and energy. I want Mark to be better now, but recovery is still happening. We are no longer in an in-patient facility, but are now engaged in out-patient therapy. I’m finding it hard to get into a regular routine with the interruptions of driving to and from the needed therapy sessions daily, preparing meals, managing prescriptions and doing the regular household chores. These are the responsibilities I was relieved from while Mark was at the rehab center. Don’t get me wrong, I’m happy to be home, but I’m looking forward to these common tasks becoming second nature to me again. Feeling overwhelmed makes me wish for a far-away trip, a vacation from health concerns and worries. However, the TBI and physical limitations go with us no matter where we are—so there’s really no escape.

Backyard (2)

Backyard – My happy place.

At the same time, I’m grateful to be home where we have our privacy and some control over our own time. I appreciate the beautiful place where we live, which was custom built to meet Mark’s needs. For us it is the most comfortable and peaceful place on earth, designed to make our life easier. The openness and wide hallways make it possible for Mark to maneuver in a wheelchair. The large shower which Mark can roll right into and a bathroom sink he can roll under creates independence. Even outside we have cement sidewalks around the backyard so we can enjoy the outdoors together. We are fortunate to live in such a house and we have awesome neighbors too. Whenever I feel sad about the places we can’t go, I remember, there is truly “no place like home.” We are grateful after nearly eight weeks of being away to finally be back in our “happy place.” We couldn’t be more thrilled that the surgeries are finally behind us and given a year to heal, I’m certain Mark will be entirely pleased with his hip replacements.

Where is your happy place?

How to Recognize Angels

AngelsIn Laura’s Story, Part 5, by Christine Scott, she remembers the angels in their lives who came to their aid after the death of her father. We often think of angels as beautiful beings with wings, but Christine was referring to family, friends and even strangers who helped them through a difficult time. A friend of her father sold equipment and hang gliders and put collection jars around town to raise money for their family. An aunt single-handedly packed up their belongings to help with the move and grandparents who welcomed them to live in their home.

These were angels who walked among them on earth—real people with mortal bodies. These wonderful people seemed to be sent from above and knew just what was needed at the moment. How can we recognize the angels in our lives? The answer is simple: acknowledge the kindness and help given to you. Those people who have made a positive impact in your life. I’ve been thinking about it and have listed a few.

  • Our biggest angels are parents. They brought you into the world and most of them sacrificed time and money for your care and well-being. They spent sleepless nights when you were sick or out too late. They were your advocates in sports, music and/or drama. They were your cheerleaders in school and other activities.
  • Our littlest angels are children. They are pure and wise beyond their years. Their innocence and curiosity gives us a new and delightful outlook on things which are often taken for granted.
  • Friends who are honest and loyal and lift you up when you’re feeling down.
  • Teachers who taught you how to read, write and do arithmetic. Most have angelic patience and without their help, you wouldn’t be able to read this right now.
  • Doctors and nurses who attend to your medical needs and help you feel better.
  • Therapists who help you overcome hardships and improve your abilities with their knowledge and encouragement.

We can all be angels by lending a helping hand. As we appreciate and recognize the good in others, more angels become apparent.  When I think of the angels in my life, I realize they all have at least two things in common. First of all they are thoughtful and caring and second, they don’t always seem like angels. But how can they? They are people with mortal bodies and not perfected yet.

It reminds me of a “standing joke” Mark and I have. When I help him stand up I often say, “Look up at my halo,” to encourage him upward. To that he replies, “Oh there it is, resting on top of your horns.”

It’s true, sometimes I’m sweet and sometimes I’m not. However, by recognizing and appreciating the helpfulness in others, it usually triggers more kindness.

Who are the angels in your life and why?

Laura’s Story, Part 5

ChristineMy name is Christine Scott. I’m a forty-six-year-old mother of five children and I grew up with a mentally disabled sister. In my first segment of Laura’s Story, I recounted her birth and slow development. In Part 2, I told about the impact of her seizures and Part 3, her fight with cancer. Part 4 revealed how I learned about the accident which lead to my father’s death.

Life has a way of going on, even when tragedy strikes. You put one foot in front of the other and get through the hard times. I wish I could say my family survived the year my dad died by praying and relying on our faith, but I can’t. We weren’t the praying type. I believe it was the love and faith of others that carried us through those dark hours and days.

Laura & Chris1

Laura & I

Even though I wasn’t aware of it at the time, my dad’s death shook the small community of Morgan, Utah, and those good people surrounded us with their love and support. Our house was being sold out from under us so we had to move and with Dad gone, there was no longer a reason for us to stay in Morgan. We had planned to move to Ogden, but after his death it was decided we should move in with my grandparents in Kearns, Utah.

My dad passed away on a Wednesday and we had his funeral on Saturday. It was a closed casket viewing because his head was crushed during the accident, with only a graveside service.The service was simple, the way he would have wanted it. Since he was an army veteran, his plot was donated along with his headstone.

Roland Sinfield, an angel in our lives and a colleague of Dad’s, sold equipment and hang gliders out of my dad’s shop and put collection jars around Morgan to raise money for our family. After daddy’s funeral, he gave my mom $700 from those collection jars to help cover funeral and moving expenses.

We had many other angels in our lives and my aunt Jean was one of them. Single handedly she packed up our house—which she deserves a medal of honor for this amazing feat. I’d spent the previous summer in the field by our house, catching the biggest grasshoppers I could find. I put them in mason jars and stacked them in my closet. I don’t know how many jars I collected, but the bottom of the closet was pretty full. After all these years I think Aunt Jean is still traumatized from cleaning out that closet.

Laura 12

Laura, age 12

We moved in with my grandparents in Kearns, Utah. In less than two weeks after my dad’s death, my mom enrolled Laura and I in new schools.When I asked my mom about this time in Laura’s life, she doesn’t remember much about how the events affected Laura. She was struggling through her own pain. She does remember sitting with a counselor at Hartvigsen, the special education school in Granite School District. While getting Laura enrolled, Eric, who was only eight weeks old, began to cry. Laura told the counselor he was crying because we needed to teach him how to talk. My mom said it was so cute and one of her favorite memories of Laura. I’m happy she’s able to look back at this difficult time and find a small amount of joy.

In addition to the angels in our lives to help us through this time, we had our habits and routines. Doing activities which were important like going to school, washing dishes, caring for our newborn baby brother Eric. By getting back to our normal lives—we began to heal.

Laura's family

Family photo with the grandparents we lived with after daddy passed away.

Recalling my dad’s death, I take a great amount of comfort in how we survived this tragedy, in how our family and community pulled together for us. No one wants bad things to happen in their lives, myself included. But if tragedy strikes—I know my family and I will be all right because we’ve been through some pretty rough circumstances and came out stronger in the end.

Thank you, Christine, for sharing how your family coped with the loss of your father. I know from my own experience the value of the love and support from family and friends. The kindness of strangers in a community is heartwarming and uplifting . The total impact of many is huge in carrying us through difficult times. I like the saying, “if you care and you give, you are a caregiver.” This segment of your life truly demonstrates the variety of caregivers. While your mom was the major caregiver for you, your sister with special needs and an infant, thank heaven there were angels that carried her through those dark days. Generally speaking, we often don’t realize the difference we can make in another’s life.

I’m grateful for the angels in my life and in yours.

 

Everything Can Change

In a blink of an eyeI can relate to Christine Scott’s feelings and well written words in Laura’s Story, Part 4: “You should have some type of warning before your life unequivocally changes so you have the chance to do things differently—to take advantage of those last moments to say ‘I love you’ and ‘goodbye.’”

How easy it is to take for granted family, friends, life, health and abilities.

Today’s a great day to hug the ones we love and appreciate what we have. Remember, “in the blink of an eye everything can change.”

Part 5 of Laura’s Story will be published on Wednesday.