October 2017 Newsletter

Welcome.NovBecause our family is effected by brain injury and epilepsy, we understand the complications and feelings of isolation. Associating with others in similar circumstances inspires and encourages us in our journey. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last month’s meetings in case you missed it. Please check out the upcoming events and mark your calendar for the BIAU Annual Conference. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


Dates to RememberFREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

October 10, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m., meet the 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. Join us for a chili dinner. Bring your favorite chili toppings, a side dish, or dessert to share with the group if you would like. A spooky craft will follow dinner. For more information contact Jennifer (801) 386-2195 or Beth (801) 585-5511.

October 19, 2017 – IMC Caregivers and Survivors Education Group, 7pm., meet the 3rd Thursday monthly at Intermountain Medical Center (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107.

Caregivers meet in the conference room on the 7th Floor. This month’s topic: Tricks to Getting Things Done and the Treat of Accomplishment presented by Mark Fox, Director of Neuro Rehab. Timely information to get us through the holiday season.

Survivors meet in the conference room on the 9thFloor. This month’s topic: Exercise, Vitality and Well-being presented by Stephanie Obradovich, Physical Therapist. Please wear comfortable clothing. We will be participating in yoga, Tai Chi and simple exercises.

October 24, 2017 – University of Utah Brain Injury Support Group, 7 p.m., meet the 4th Tuesday monthly at U of U Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Chris Benda, whose son is a TBI survivor, will be presenting Access to Community Resources. For more information contact, Ryan Pello at (801) 581-2221.


October

 

FREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


EpilepsyEpilepsy Groups for those affected by seizures.

Together they share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

October 5, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m., meets the 1st Thursday monthly at Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

October 12, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m., meets the 2nd Thursday monthly at Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

October 18, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m., meets the 3rd Wednesday monthly at SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

October 25, 2017 – Epilepsy Group for Teens, 7 p.m., meets the 4th Wednesday monthly at West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

October 26, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m., meets the 4th Thursday monthly at SLC Main Library 200 E. 400 S. (3rd floor conference room)


Missed It HeaderTHE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Sanderson Community Deaf Center, 5709 South 1500 West, Murray, UT 84107

On Tuesday, September 12, 2017, a meal was enjoyed and a fun, friendly game of Family Feud. Thank you, Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.

Intermountain Medical Center, 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

On September 21, 2017, the Caregivers met in the conference room on the 7th Floor for a great presentation on Strategies for Facilitating a Good Night’s Sleep. Presented by Neuropsychologist, Jon L. Pertab, PhD who gave pertinent information on the importance of sleep and tips on how to improve our rest. The Survivors met in the conference room on the 9th Floor. Trisha Beck shared her own story of Brian Injury and relatable Journey to Live.

University of Utah, Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106. On Tuesday, September 26, 2017,  Kellie Linarez with the State of Utah Department of Workforce Services shared information on the Vocational Rehab process and where to go for help. She also gave a workshop schedule for the Work Ability Job Fair on October 3, 2017. Another one will be held in the Spring on April 10, 2018.


dont-forget-smiley

BIAU FAMILY & PROFESSIONALS ANNUAL CONFERENCE

Building Connections for a Brighter Tomorrow

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041

Registration: $40 for members/ $50 for nonmembers and includes lunch. Scholarships available. 

See https://biau.org/events/ for conference details and registration information.  “Attendees will learn how individuals with brain injury build connections. Topics will include: Social Skills, Rehabilitation Process, Cognitive Strategies, Technology/App use, Caregiver/Survivor Lessons, ADA, Social Security & Patient Rights, Classroom Executive Functioning, Concussion and Return to Activity/School”

Upcoming EventsUTAH GRIZZLIES EPILEPSY AWARENESS HOCKEY GAME

Date: October 21, 2017

Time: 7 pm

Place: Maverik Center – West Valley City 

Tickets: $10 – $20

You can get your tickets at www.epilepsy.com/utah . “The attendees will be receiving epilepsy information throughout the evening, and the team will be wearing and auctioning the jerseys specially made for this game. Mark your calendar and bring your friends.”


                             Bright Ideas HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

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September 2017 Newsletter

Welcome.OctThe effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be refreshing. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last months meeting’s in case you missed it. Please check out the upcoming events and mark your calendar for the BIAU Annual Conference. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


Mark your Calendar

Leaves1

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

September 5, 2017 – Aphasia Support Group at 7:00 p.m. Meets the 1st Tuesday monthly at Brookdale, 76 South 500 East, SLC, UT. (Parking in the rear of the building.  Enter from 100 South.) For more information, please contact Christina Nessler (801) 582-1565, Extension 5379 or Kiera Berggren (801) 585-9717.

September 12, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This is a social group where dinner is enjoyed together and then games played or crafts made. All caregivers and survivors are welcome this month for rotisserie chicken and potatoes. Bring a side dish or dessert to share if you’d like. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

September 21, 2017 –  Caregivers and Survivors Education Group Meets every 3rd Thursday monthly at Intermountain Medical Center (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107.

Good Nights SleepCaregivers meet in the conference room on the 7th Floor.  This month’s topic: Strategies for Facilitating a Good Night’s Sleep. Presented by Neuropsychologist, Jon L. Pertab, PhD.

Journey to LiveSurvivors Meet in the conference room on the 9thFloor.  This month’s topic: Journey to Live. Presented by Trisha Beck

September 26, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


LeavesFREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


september-month-autumn

Epilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

September 7, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

September 14, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

EpilepsySeptember 20, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

September 27, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Wednesday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

September 28, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)


Missed It Header
THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Deaf CenterSanderson Community Deaf Center located 5709 South 1500 West, Murray, UT 84107

Tuesday, August 8, 2017, we had a great time    playing cards and eat     Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.


InCaseYouMissedItIntermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

SURVIVORS AND CAREGIVERS EDUCATION MEETINGS were held on August 17, 2017.

Caregivers met in the conference room on the 7th Floor for a great presentation on Mind, Body and Spirit. Dr. Kimberly O. Sieber, Psychologist phD gave us five simple ways to increase physical and emotional well-being. She gave us strategies known for their medical and psychological health benefits that can easily be incorporated into the busy life of a caregiver. For details see Five Ways to Increase Your Well-being.

 

Survivors met in the conference room on the 9th Floor for an informative presentation on Vision After Brain Injury or Stroke.

 

missed it_9University of Utah Brain Injury Support Group located at Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106. Last month they had a summer picnic at Sugar House Park on Tuesday, August 22, 2017. Sandwiches were provided while those in attendance brought food items to share.

 


Coming Soon

 

SEIZE THE NIGHT – UTAH 5K  RUN/WALK

“Come lace up your shoes, crack open your glow sticks and get ready for an electrifying 5K Run/Walk! It will be a unique and enlightening night time event, aimed at raising epilepsy awareness in Utah. Be ready to light up the dance floor as you cross the finish line.”

Date: September 16, 2017

Time: 6pm

Place: Sugar House Park, Big Field Pavilion

Registration: $25.00

Register yourself or your team today! Raise money and awareness to help people in Utah living with epilespy. Register at www.epilepsy.com/utah


Upcoming EventsBIAU FAMILY & PROFESSIONALS ANNUAL CONFERENCE

Building Connections for a Brighter Tomorrow.

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041

Registration: $40 for members/ $50 for non members and includes lunch. Scholarships available. 

See https://biau.org/events/ for conference details and registration information.  “Attendees will learn how individuals with brain injury build connections. Topics will include: Social Skills, Rehabilitation Process, Cognitive Strategies, Technology/App use, Caregiver/Survivor Lessons, ADA, Social Security & Patient Rights, Classroom Executive Functioning, Concussion and Return to Activity/School”


dont-forget-smileyUTAH GRIZZLIES EPILEPSY AWARENESS HOCKEY GAME

Date: October 21, 2017

Time: 7 pm

Place: Maverik Center – West Valley City 

Tickets: $10 – $20

You can get your tickets at www.epilepsy.com/utah . “The attendees will be receiving epilepsy information throughout the evening, and the team will be wearing and auctioning the jerseys specially made for this game. Mark your calendar and bring your friends.”


Bright Ideas

 

                              HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletter

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

If you wish to discontinue send a statement, “Unsubscribe to Newsletter” and I will remove your email address.

 

August 2017 Newsletter

August1

The effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be refreshing. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last month’s meetings in case you missed it. Please check out the upcoming events and mark your calendar for the BIAU Annual Conference. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


reminder

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

August 8, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group will enjoy pizza and root beer floats followed by card games this month. All caregivers and survivors are welcome. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

August 17, 2017 – Intermountain Healthcare Brain Injury and Stroke Education Group, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107.

Caregivers meet in the conference room on the 7thFloor.  August Caregiver Support

This months topic: Mind, Body and Spirit. Five Simple ways to increase physical and emotional well-being by Dr. Kimberly O. Sieber, Psychologist phD. We’ll be discussing a variety of strategies known for their medical and psychological health benefits and can easily be incorporated into the busy life of a caregiver.

August Survivor SG

 

Survivors meet in the conference room on the 9thFloor.

Topic: Vision After Brain Injury or Stroke.

 

fun in sun

 

August 22, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


Please Note
FREE WEEKLY GROUPS

offered through INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES:

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

Epilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

August 3, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

August 10, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

August 16, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

August 24, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Thursday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

August 24, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)


Missed8

THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Deaf CenterSanderson Community Deaf Center located 5709 South 1500 West, Murray, UT 84107

Tuesday, July 11, 2017, a good time was had by those in attendance. Dinner was provided while others brought treats and drinks to share. Summer olympic games followed dinner. Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.


 

WAS_40yrs_websiteSURVIVORS AND CAREGIVERS EDUCATION MEETING NOTES

Intermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

Jake at Wasatch Adaptive Sports hosted our annual survivor’s and caregiver’s summer picnic, so this month we met at Snowbird Ski and Summer Resort. We enjoyed a wonderful evening in the cooler temperatures of the beautiful mountains of Little Cottonwood Canyon on Thursday, July 20, 2017. All in attendance were refreshed by the smell of pine trees and clean mountain air. We ate sandwiches and a variety of side dishes, which were brought by those in attendance. A wheelchair accessible walk and/or ride in a tram up to the top of the mountain was available for those interested. Some chose to stay and visit in the picnic area. Thanks Wasatch Adaptive Sports for a wonderful evening!

Check out their website for programs, http://wasatchadaptivesports.org

“Why Adaptive Recreation? Regular physical activity is essential for the maintenance of normal muscle strength, flexibility, and joint structure and function and may slow the functional decline often associated with disabling conditions. Adequate levels of muscular strength and endurance are associated with increased bone mass, reduction in injury from falls, and an increased ability to complete daily activities. The primary goals for increasing physical activity in individuals with disabilities are to reverse secondary effects of impaired mobility, optimize physical functioning, and enhance overall well-being.”


coming-soonUTAH PURPLE TALENT SHOW

Date: August 12, 2017

Time: Noon – 2pm

Place: Salt Lake Acting Company

Tickets: $3.00

Proceeds benefit the Epilepsy Foundation of Utah.

 

SEIZE THE NIGHT – UTAH 5K  RUN/WALK

“Come lace up your shoes, crack open your glow sticks and get ready for an electrifying 5K Run/Walk! It will be a unique and enlightening night time event, aimed at raising epilepsy awareness in Utah. Be ready to light up the dance floor as you cross the finish line.”

Date: September 16, 2017

Time: 6pm

Place: Sugar House Park, Big Field Pavilion

Registration: $25.00

Register yourself or your team today! Raise money and awareness to help people in Utah living with epilespy. Register at www.epilepsy.com/utah

 

dont-forget-smileyBIAU

 FAMILY & PROFESSIONALS ANNUAL CONFERENCE

Building Connections for a Brighter Tomorrow.

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041

Registration: $40 for members/ $50 for non members and includes lunch. Scholarships available. 

See https://biau.org/events/ for conference details and registration information.  “Attendees will learn how individuals with brain injury build connections. Topics will include: Social Skills, Rehabilitation Process, Cognitive Strategies, Technology/App use, Caregiver/Survivor Lessons, ADA, Social Security & Patient Rights, Classroom Executive Functioning, Concussion and Return to Activity/School”

 

UTAH GRIZZLIES EPILEPSY AWARENESS HOCKEY GAME

 

Date: October 21, 2017

Time: 7 pm

Place: Maverik Center – West Valley City 

Tickets: $10 – $20

You can get your tickets at www.epilepsy.com/utah . “The attendees will be receiving epilepsy information throughout the evening, and the team will be wearing and auctioning the jerseys specially made for this game. Mark your calendar and bring your friends.”

 


Bright Ideas

                              HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


 

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

If you wish to discontinue send a statement, “Unsubscribe to Newsletter” and I will remove your email address.

July 2017 Newsletter

July fireworksThe effects of brain injury vary and can be complex. Putting the puzzle together is easier with the help of others. For this reason I’ve gathered pieces of information on this month’s support groups and therapy services offered in the Salt Lake Valley. July starAlso included are notes from last months meeting’s in case you missed it and upcoming events to mark on your calendar. I have listed links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


reminder

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

July 11, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This is a social group where dinner is enjoyed together and then games played or crafts made. All caregivers and survivors are welcome. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

July 20, 2017 – Intermountain Healthcare Support Group meets every 3rd Thursday monthly usually at (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the Caregivers and Survivors will combine for the annual summer picnic at 5:30-8 p.m. This year Wasatch Adaptive Sports is hosting at 9385 S. Snowbird Center Drive, Snowbird, UT 84092. There will be free tram rides and fishing! Intermountain will provide sandwiches, water, and paper goods. Please bring a side dish to share.

July ClipArt

July 27, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


Please Note
FREE WEEKLY GROUPS

offered through

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

July heartEpilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

July 6, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

July 13, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

July 19, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

July balloons

July 26, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Wednesday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

July 27, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)


Missed6

JUNE’S MEETING NOTES FOR:

THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS, located at the Sanderson Community Deaf Center, 5709 South 1500 West, Murray, UT 84107. Met Tuesday, June 13, 2017, we had a luau. The Hawaiian feast was delicious as we enjoyed visiting about our individual summer plans. After dinner there were some activities available, while others choose to visit. Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.



SURVIVORS AND CAREGIVERS EDUCATION, located at Intermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107.

Caregivers met in the conference room on the 7th Floor and received tips from Kerrie Neu on how to replenish, recharge and renew. She shared with us what has worked for her and other caregivers she interviewed. The presentation was helpful in igniting ideas to meet our personal needs. For more details, click on the green links.

fun in sun

Survivors met in the conference room on the 9th Floor. Thanks Greg Nordfelt for sharing your notes.

The topic was Fun in the Sun, presented by Wasatch Adaptive Sports. Jake Thelen, Program Specialist, introduced their programs and said they focus on increasing independence and mobility in a social environment. They believe in the development of ability and active living through recreation for individuals with adaptive needs and their families. Through personalized assessments and instruction, along with adaptive equipment, they work together to achieve your goals and experience the outdoors without limitations.

Wasatch has three rehab physicians, three physical therapists and up to 30 event employees and therapists to assist in events as needed.  Jake said they keep participant to therapist levels as close to one to one as possible so that survivors are protected and have an absolutely wonderful experience with their activities.

Jake said they have never had a participant not be able to perform the activity they’ve been approved to participate in! Wasatch Adaptive Sports serves approximately 800 to 1,000 survivors per year.

Wasatch have a special relationship with Snowbird and their headquarters is located at 9385 S Snowbird Center Dr, Snowbird, Utah 84092. They have access to a fishing pond at Snowbird that is one of their most popular sites. They also provide activities during each week at Jordan River Parkway, Provo, Liberty Park and Sugarhouse Park.

Jake agreed to host our combined TBI Survivor & Caregiver Support Group annual summer picnic in July and have an activity at the headquarters at Snowbird Utah (instead of a local park in Salt Lake where or annual summer picnics are usually held). This was a very gracious offer and we were all very excited to change venues this year!

For more information see Wasatch website: wasatchadaptivesports.org


University of Utah Brain Injury Support Group, located at Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106. They met Wednesday, June 27, 2017 at 7pm. Christina Derbidge, Ph.D gave the presentation on the grieving process. Unfortunately, I missed this group and hearing the advice, tips and support on this important subject. I wish I could have been there and able to share some notes.


Upcoming Events

BIAU Family & Professionals Annual Conference

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041


Bright Ideas

                              HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


Thank you for reading

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

If you wish to discontinue send a statement, “Unsubscribe to Newsletter” and I will remove your email address.

June 2017 Newsletter

The effects of brain injury vary and can be complex. Putting the puzzle together is easier with the help of others. For this reason I’ve gathered pieces of information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last months meeting’s in case you missed it. Check out the upcoming events and mark your calendar for the BIAU Annual Conference. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


reminder

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

June 7, 2017 – Aphasia Support Group at 7:00 p.m. Meets the 1st Tuesday monthly at Brookdale, 76 South 500 East, SLC, UT. (Parking in the rear of the building.  Enter from 100 South.)

Topic: Vision Disorders and Treatment after a Stroke by Jennifer Thomas, OTR/L Occupational Therapist. For more information, please contact Christina Nessler (801) 582-1565, Extension 5379 or Kiera Berggren (801) 585-9717.

June 13, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This is a social group where dinner is enjoyed together and then games played or crafts made. All caregivers and survivors are welcome. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

June 15, 2017 – Caregivers and Survivors Education Group will meet separetly this month, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107.

noone@graniteschools.orgCaregivers Meet in the conference room on the 7th Floor. Topic: A Caregiver’s Button Box, Finding Ways to Recharge, Replenish and Refresh. Start thinking of the little things that bring you joy to be able to share with each other.

Our presenter, Kerrie Neu’s husband, Laurent, is a brain injury survivor from a motorcycle accident in 1998. Kerrie will share ideas on ways to recharge and nourish ourselves. Helpful insights come from nineteen years of experience as a caregiver and a mother of two children, who were small at the time of the accident. She works for Granite School District as the Dual Immersion Specialist, coordinating and coaching teachers in Spanish Immersion, and is working on her Master’s degree in Spanish Language Pedagogy (teaching methods).

fun in sun

Survivors Meet in the conference room on the 9th Floor.  Topic: Fun in the Sun, presented by National Ability Center. Come learn what adaptive sports are available.

June 27, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


Please Note
june-clipartFREE WEEKLY GROUPS

offered through

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

Epilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

June 1, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

June 8, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

June 21, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

June 22, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)

newJune 28, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Wednesday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


Missed6
THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Deaf CenterSanderson Community Deaf Center located 5709 South 1500 West, Murray, UT 84107

Tuesday, May 9, 2017, we had a great time at the horse races with paper money. Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.


Intermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

SURVIVORS AND CAREGIVERS EDUCATION MEETING NOTES

Matt-Head-Shot

Thursday, May 18, 2017, Matt Townsend gave an entertaining and poinent presentation on relationships.

We all want loyalty, happiness and honesty in a relationship. To feel joy and peace in a relationship we must feel:

  • Safe – including physical, financial, mental, emotional, social and spiritual safety
  • Trust – consisting of honesty and competence
  • Appreciation- hearing or seeing words of approval (remember it takes four positives to ease one negative comment)
  • Respect – showing through words and deeds
  • Validate – hearing what is said to understand without having to agree
  • Encourage – getting into the heart of your loved one and doing what you can to help them reach their goals
  • Dedication – committing to your relationship and making them feel more important than any place or thing.

Matt said trauma or health issues are the number one way to expand in these areas. We don’t grow unless we are pushed. We learn through our challenges.

For a full synopsis of what I learned from Matt and a YouTube video, see my article, The Starved Relationship, or https://unitingcaregivers.wordpress.com/2017/05/25/the-starved-relationship

Dr. Matt Townsend has many podcast, YouTube videos and sponsors The Matt Townsend show on BYUradio. Entertaining insights on improving relationships for free. He’s also founder the the Townsend Relationship Center. For more information see Matt’s Website: http://matttownsend.com/


MassageUniversity of Utah Brain Injury Support Group located at Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106.

Wednesday, May 23, 2017 topic was on the Benefits of Massage given by Molly Sullivan, LMT. Ryan Pello organizes this meeting. If you have questions by call (801) 581-2221.


Upcoming Events

BIAU Family & Professionals Annual Conference

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041


Bright Ideas

                              USEFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing Laptopsstories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


Thank you for reading

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

If you wish to discontinue send a statement, “Unsubscribe to Newsletter” and I will remove your email address.