The Benefits of Support Groups and Conferences

Photo from Brian Injury Alliance of Utah Newsletter BIAU 2013 Conference

I haven’t forgotten the first time I was encouraged to attend a class on understanding brain injury at the hospital. I thought, no way. I’m overwhelmed as it is and I don’t need one more thing to do. Besides I’m dealing with the effects of brain injury on a daily basis and this is not a class I want to sign up for.

I went to my first class kicking and screaming inside, I don’t want to be here! I don’t want to deal with this injury nor do I want my husband to have it. All the wishing it wasn’t so and disliking the situation didn’t change the fact that Mark had a traumatic brain injury and I had to learn to deal with it. I came to the conclusion I’d better learn all I could to help prepare me for the time he woke up from his coma. I wish I could say the things I learned in those classes made it less frightening, but I don’t think it did. However, I did find comfort in being in a room with others who were dealing with the same devastation I was and the information was helpful.

Over the past twenty-three years Mark and I have continued to go to support groups and the annual conferences. We haven’t gone every year, but when we do go we benefit from other peoples’ experiences and knowledge, as well as the resources that are shared. Now days it’s easy to look up information on the internet, but then you’re missing out on connecting with real people. Whatever health issue you or your loved one is dealing with, I hope there is a support group, classes and conferences that relate to the problem. The human experience plus the information and resources I’ve gained through these avenues has made the time invested worthwhile.

As an example, the Brain Injury Alliance of Utah had their annual family and professional conference on October 24, 2014. This year it was held at the Ogden Eccles Conference Center. The conference was full of information, with two sessions offering four classes to choose from. It began at 8 am with registration and a light breakfast. There was an hour to eat, look at exhibits from the sponsors and pick up information from the resource tables. Always a favorite is the silent auction. There were tables full of homemade items, books signed by the author and even airline tickets to bid on. The silent auction and resource tables last throughout the day and can be viewed and bid on between the sessions, with the final bidding after the second session.

This year’s conference theme was Life Will Go On. Every year the theme is different and after breakfast a keynote speaker bases their talk on the theme before breaking up into the first session of classes. After the first session there was a delicious lunch and recognition awards given to five individuals for their contribution to the brain injury community. The categories were: Survivor of Brain Injury, Family Member, Educator, Professional and Lifetime contribution.

After lunch and the awards, the second session begins. Afterwards, the final bids are collected for the silent auction. This is a favorite at the conference and all of the raised funds from the auction go to serving the Utah brain injured community.

Last, but not least, there is a panel discussion. Many people do not stay for this last hour, however, I have always found it to be very informative and I enjoy the interaction of the discussion. The panel usually consists of four to six people who sometimes are all professionals or family members to discuss the conference theme. I’m grateful for the knowledge shared by their experience and take away so much good information. I leave with renewed hope and support from the conference. On a daily basis I can be consumed with worry and overwhelmed with responsibility and my world can become inward and small. It’s helpful to get out and see others in a related situation and it always builds a desire within to reach out and help another. There is strength in numbers and encouragement that comes from being with others who are dealing with the same chronic illness or injury.

Writing is Therapeutic

It’s good to look to the past and gain appreciation for what we have in the present. This also gives perspective for the future. If the pioneers or forefathers didn’t write about their experiences, we wouldn’t have records of it. How could we have learned from them if they didn’t share their thoughts and events through their writing?

As a teenager I faithfully kept a journal and found it helped me understand my roller-coaster feelings of the love/hate relationships between young boys and girls. A few years ago I read it and didn’t want anyone else to know those inner feelings, so I decided to destroy it. Even though that journal no longer exists, I believe it helped me navigate through some rough teenage years.

After the car accident I felt the need to write again. My head was spinning with all kinds of worries about Mark, our children and how I would juggle all the responsibilities. My attention span was very short. I couldn’t watch T.V. or concentrate on a book—so I wrote. I would maybe write a few sentences about my worries, but mostly I recorded Mark’s progress such as how many breaths he took on his own that day and what his temperature was. I wrote about things most people don’t think about let alone write or read about, but it helped me focus on the positive. I still have that notebook and like to look back on it to remind myself how far Mark has come.

The past nine months I’ve benefited from writing about “Our Story”. Putting words to our experience brings meaning to it and helps me understand the purpose in the events. It’s amazing the clarity that comes from writing. Through writing I am able to sort out and work through the emotions by searching for the right words to describe it. The act of writing has provided me with a greater depth of self-knowledge and has helped me become a resilient person. Some seek the comfort of a therapist’s office, I find it in writing.

Writing is so much more than a method of communication. I’ve listed six benefits of writing:

1. Writing is a powerful teacher that can guide us toward a happier, more contented and positive purpose-driven life.
2. Writing promotes self-awareness and personal growth.
3. Writing enhances knowledge, which guides us towards realizing our truth and values.
4. Writing is a support system which creates confidence in our own unique style. With thought and purpose to what we’re writing, it can be done without apology.
5. Writing can educate, inspire, influence and help others.
6. Writing is like a sieve, separating worries and insecurities. It compels us to do the daunting task of confronting them, which facilitates in understanding them. Ultimately the words help us leave our fears behind.

You don’t need to be a professional writer to achieve the benefits. Writing is an exceptional tool for self-exploration and inner growth which is available to everyone. It can facilitate understanding and change in our lives. From the art of writing, we learn and grow and it is a powerful method to share our love, happiness, gratitude and fulfillment.

Do you write? How has it helped you? If you don’t, you really ought to try it. Whether you write it for yourself or want to share it with others, it will be therapeutic. I dare you to try it.

Live and Learn

Several years ago my sister Rosanne said, “I often hear the phrase ‘you live and learn’, well I’m tired of learning, I want to start living!”

We laughed and the memory of the conversation still makes me smile. We were both raising children at the time, and learning all sorts of things we didn’t ever expect to learn. It’s one of those conversations etched in my memory that brings sisters or friends close as they share experiences.

It’s true sometimes we don’t get to choose what we learn. As a caregiver, often I have thought I didn’t sign up for this course, or I don’t want to know about this. There’s a certain amount of responsibility that comes from knowledge, so sometimes I think, ignorance is bliss!

In reality, it’s the unknown which causes fear. Whether it’s about a disease, injury, grief, or even raising children, the more we learn about it, the better we can handle it and usually it then becomes less dreadful. Knowledge gives us opportunity to improve and cope better. Knowledge makes us useful and compassionate. It’s the key to understanding others as well as ourselves. Knowledge makes a difference in how we live.

Because we’re always learning, we change through our experience and knowledge, therefore our relationships change. Some get better, some seem to stagnate and some come to an end. My experience is that every relationship, no matter how long it lasts, serves a purpose. Some teach us to be better than we are. Some show us what we don’t want to be, while others remind us just how blessed we truly are. Some keep pushing us forward helping us become what we are meant to be. Every relationship teaches us something. Don’t regret those that end for they were worth the effort if you grew from the relationship.

So when you get a course you didn’t sign up for or have a relationship that changed or ended, look at it as an opportunity to learn and grow.