December 2018 Newsletter

IMG_2976For the first time since last winter, our valley put on it’s gorgeous white coat. Although I don’t enjoy driving in, or shoveling snow, I do love the fresh fallen appearance of it. Each season brings its own kind of beauty and fun activities. We used to take great pleasure in playing in the cold, fluffy, white stuff with snowmobiles or sleds. Building forts and snowmen were challenging in an amusing and entertaining way. With physical limitations, we adore the snow from the warmth of indoors as we watch from our windows as it quietly, gracefully falls. Now, sitting by the fireplace, sipping hot cocoa, reading or watching a movie has become our favorite winter activity.  

As nice and cozy as it is inside, December is filled with social events as we celebrate Christmas and the end of the year. So, we will venture out in the cold to be warmed by our association with family and friends. We benefit and enjoy meeting with others in similar circumstances. We appreciate several organizations around the Salt Lake Valley which give us the opportunity to connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


Happy Holidays1

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

December 6, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. This month’s holiday celebration will include food and games. For questions, please call Tracy Liu, (801) 422-9132.

December 11, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a traditional holiday dinner. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

December 18, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Usually this group meets every 4th Tuesday monthly, but because that’s Christmas day, they are meeting this month only on the 3rd Tuesday, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month will be a Holiday Potluck. Soup will be provided. Bring a side dish to share. Please call Ryan Pello or Annie Wallace at (801) 581-2221.

December 20, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This month caregivers and survivors will meet together for a holiday dinner and entertainment at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building1, 9th floor, in the Neuroscience Conference Room. Please RSVP Emily Redd (emily.redd@imail.org) or Kim Kirkham (kim.kirkham@imail.org), or call (801)314-2086.


december-month-snowmen

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


December WreathFREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday, but now meet quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

 December 12, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

December 13, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

December 19, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

December 26, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

coming-soonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


Laptops

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

November 2018 Newsletter

Welcome.Oct

The vibrant colors of red, yellow and orange cover our yards and the streets of our valley right now. A gorgeous sight saved only for this time of year. The falling leaves indicate this beautiful season is coming to an end, which saddens me and keeps me busy sweeping or raking. Since I wish to hang onto those stunning leaves as-long-as possible, it makes disposing the multicolored foliage a challenging task. I love autumn and especially the month of November because it encourages gratitude and reminds me of all my many blessings. The days pass too fast. By the looks of the stores, Thanksgiving is skipped as they jump from Halloween right into Christmas. I’d like to slow down November and treasure this Thanksgiving season to the very end. I suppose I’ll be busy raking and clearing the yard of hoses, flowers, and other annual plants until the first snow flies, which brings a clean, fresh look to the outdoors. Another kind of beauty. Until the blanket of white reaches the valley, I’ll be getting ready for it, savoring the crunchy sound of dried leaves under my feet, reminding me it’s November and all the things I am thankful for.

We appreciate several organizations around the Salt Lake Valley which give us the opportunity to take a break from our busy lives to connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


What_are_you_thankful_forFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

 November 1, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132. This month’s topic is Stress Reduction.

 November 13, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games or crafts afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

 November 15, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

This month Caregivers topic is titled: I Choose… to be Grateful. Simple ways to find more joy, presented by Julie Brown, Life Coach.

This month Survivors topic is titled: Life lessons, Tips and Tricks presented by Dallas Davis, a multiple brain injury survivor.

November 27, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month will be a member spotlight, Gordan Remington. He will speak on the importance of support networks in recovery title: With a Little Help From My Friends. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


GIVING-THANKS3FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


November4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

change

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday, but now meet quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W.

 

November 8, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

November 14, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

November 21, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

Happy ThanksgivingNo meeting this month for the Epilepsy Group for Teens, because of Thanksgiving. Usually they meet from 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy in December. There are two teachers overseeing this group.


Epilepsy

Symposium info

Click here for free registration


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

Uniquely abled

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

August 2018 Newsletter

August1Another great summer month ends. July is full of fireworks, parades, outdoor concerts, picnics and barbeques, just to name a few of my favorite activities to celebrate Independence Day and Utah’s Pioneer Day. When the heat turned up in the valley, we headed for the mountains for an aerial tram ride at Snowbird, a canyon hike with friends, and a play at Sundance Resort. As much as I relished all the adventures, I look forward to a quieter month in August. However, the first week has already flown by as we prepared for, and enjoyed a big celebration for my dad’s 90th birthday. August is already off to a good start and Mark’s mom and sisters will be visiting from out-of-state in just a few days!

The garden is producing and there’s lots of yard work to be done here at home. We enjoy taking breaks with friends who also endure the effects of brain injury and epilepsy, which are two health issues we deal with on a daily basis. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier!

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


SunFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

August 2, 2018 – Rocky Mountain University Stroke & Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

August 14, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

August 16, 2018 – IMC Caregivers and Survivors Education Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

Caregivers meet on the 1st Floor Conference Room. Chris Benda will present, It Takes a Village. She is a caregiver who will share her experience on how to find, use and manages resources.

Survivor’s meet on the 2nd Floor Conference Room. Joanne Payne will present Relaxation Techniques and Strategies.

August 28, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. However, this month we’ll meet at Sugarhouse Park for our summer picnic. Sandwiches will be provided. Bring a salad or dessert to share and join us for a fun night. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


august

 

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


summer-fun

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

August 2, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

August 8, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

August 9, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

August 15, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

August 23, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.Coming Soon


Seize the Night 2018 Flyer JPEG

 


Camp Discover 9.15.18 Flyer JPEG


 

Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you.