January 2019 Newsletter

January Bring OnA New Year feels like a fresh start and it’s energizing! I’m a visual person so I like to schedule my activities and plan steps for attaining goals. I’ve been marking up my 2019 calendar because without a plan I wander aimlessly. Written down on paper makes it look clear and obtainable. The unknown obstacles and interruptions that life inevitably bring aren’t there to mess up the blue print. Judging by experience, I won’t get it all accomplished, but my motto is to never give up. This year marks a big one for us. Forty years of marriage, and the sixth decade marker of my existence. I haven’t come close to accomplishing what I’ve wanted to thus far in life, nor in these many years of marriage. We’re not where we thought we’d be financially, or physically. My antidote for discouragement is to focus on my life’s mission: To care for and love my family and friends. To put their needs above my wants. This takes flexibility with my daily plans. It means not being so focused on the goals I want to accomplish that I can’t see the needs of others or take time to help them. In 2019, I want to make sure this is a true statement and not an excuse for defeat. It’s tricky and not always easy to identify or decipher between a “want” and “need”.

I gain strength and clarity from others who truly understand my journey. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others lightens the load.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

I’m excited to see how this year unfolds and what it will reveal. I wish you the best for the new year.


January1FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

January 3, 2019 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132.

January 8, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

New-Location1January 17, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This year we move to a new location at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program written by Beth Cardell, Phd, University of Utah will be taught by various members of the medical community and other experts in their field. This month Teresa L. Such-Neibar, DO Physical Medicine & Rehab will be teaching. Bring your family and friends that are part of your caregiver experience.

change

Survivors meet on the 9th floor Gym. This month Kim Sieber, neuropsychologist, will present. Her topic is Mindfulness Strategies for Survivors. Please call (801)314-2086 or email Emily Redd emily.redd@imail.org

January 22, 2019 – University of Utah Brain Injury Support Group 7-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Marc Macialek, TBI survivor and life coach will present. For more information please call Ryan Pello or Annie Wallace at (801) 581-2221.


January

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


january4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

January 9, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

January 10, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

January 16, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

January 24, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

Coming SoonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and

thoughts)


newsletter

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

January 2018 Newsletter

January Bring OnHappy New Year! I hope this newsletter finds you well and satisfied with the closing of another year. A fresh start brings renewed hope for improvement. Associating with others in similar circumstances motivates progress as we learn from each other. For this reason I’ve gathered information on the upcoming month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, I encourage you to look for support groups near you. Also included are links to useful and inspiring websites. If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


January4

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

January 5, 2018 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.

January 9, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share meatball subs and games together.  Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

January 18, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at a new location starting this month:

New-Location1

IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers will meet on the 1st floor conference room and the Survivors will meet on the 2nd floor conference room.

Caregivers topic: Getting to Know You – A fun evening planned as we spotlight caregivers and give each one a Welcome Packet with helpful tips and inspirational thoughts plus this years meeting topic schedule.

Survivors topic: New Year’s Resolutions for a Healthy Lifestyle presented by Stephanie Obrabovich (PT)

January 23, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Trails Adaptive Sports & Recreation presented by Tanja Kari. Come learn what options are available. Please call Ryan Pello at (801) 581-2221 for questions.


January

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


January1

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

January 4, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

New-Location

January 11, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month.

New location starting this month at theDoty Education Center – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 , Murray, UT.

January 17, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

January 24, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

Coming Soon

 

NEW EPILEPSY SUPPORT GROUP in Utah County! It begins on February 15th and will then meet on the 2nd Wednesday of the month from 7:00 to 8:15 pm, at the Provo City Library – 555 N. University Ave.

 


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

 

Celebrating an Annual Close

New YearI hear noisy fireworks outside, the sign of people celebrating the close of another year. I needed the reminder that there is always something to celebrate when we finish a year.

I always suffer with melancholy at the end of the year. As a child, it was because the Christmas season and break was coming to an end. As an adult it’s because I’m haunted by the goals and resolutions I didn’t achieve. My unfulfilled expectations discourage me. I’m plagued with wondering how I can better plan for the New Year and actually complete my goals. Instead of progressing each month, it feels like I’ve been regressing.

The antidote to my despair is hopefulness in the things I have accomplished, and gratitude for the people in my life who make it possible. A change of heart occurs when I reflect on the blessing of family, friends and experiences of the past year with a grateful heart. When I’m thankful I find peace with my life and my relationships.

When something good happens I like to write about it in detail. When I’m feeling down, I’m lifted when I read it. I’m finding it hard to write lately, partly because I’m out of practice so it takes more time, and secondly it’s difficult to make the time. Fortunately, I’ve taken time to at least capture some of the good times with pictures.

These pictures help me remember the joy I’ve experienced this year. Maybe I achieved more than I originally thought.

Forgive yourself

This month I didn’t accomplished near the things I traditionally do in December. It’s the first year I didn’t hang Christmas lights outside, or send out Christmas cards. I didn’t bake sweet bread like I wanted to for my neighbors and friends. Luckily the world didn’t come to an end and my neighbors and friends are still good to me. I hear them outside with joyous fireworks. They are finding reasons to celebrate tonight. I think I will close this article and go join them.

 

Give ThanksI thank you for being a part of my life’s journey.

 

What 2017 accomplishments are you celebrating tonight?

Anticipating the New Year

As a child, December was a long month of anticipation and wonder. The excitement in the air nearly took my breath away. I felt gloomy when the Christmas season and school break came to an end. The thought of having to wait another twelve long months or 365 days to feel that kind of joy and excitement was dreadful. Many Christmas’s have come and gone and the month no longer brings a school break, in fact it’s just the opposite.

As an adult, December can feel like a month of endurance. At work it’s a month of year-end bookkeeping and preparations for the new year. It would be a busy month all on its own, but throw in Christmas and all the beautiful decorations, sounds of terrific music, pleasure of parties, delicious baking and delightful shopping because everything is on sale. It’s no wonder we feel exhausted, overwhelmed and often get sick.

Forgive yourself

At the end of the year I always suffer with melancholy. As a child, it was because the Christmas season and break was coming to an end, as an adult it’s because I remember the year’s resolutions I didn’t achieve and other unfulfilled expectations. I’m plagued with wondering how I can better plan for the new year and actually complete my goals.

Don't Compare

 

I commit the sin to often  of comparing myself to others and what they have accomplished. I question why I can’t do better. The antidote to melancholy is optimism and I’m giving myself a healthy dose of it over the next week as I prepare for a new year, new beginnings and a better me.

Give ThanksA change of heart occurs when I reflect on the blessing of family, friends and experiences of the past year with grateful heart. When I’m thankful I find peace with my life and my relationships. This is what December and every other month should feel like—joy, peace, gratitude and goodwill to all mankind. If you are reading this, I thank you for being a part of my life’s journey.

I’d like to share with you my plans for the new year. In the past, Uniting Caregivers has had three categories: Sunday Stories, Tuesday Tips and Thursday Thoughts. I’ve decided to drop the day and have  categories of Stories, Tips and Thoughts. I still plan on posting three times a week, but without the days listed two stories may be posted in a week or two tips, or two thoughts depending on the inspiration that week. If a guest author has written two parts to their story it could be posted simultaneously on a Sunday and then on Tuesday. At least one inspirational story will be posted every week and the follow up tip may be shorter than in the past.

 

 

Time for Reflections

IMG_2032_Cropped

Christopher, Jen, Katie, Eldin
Mark and Barbara – 2013

The hustle and bustle of Christmas is over. Now my thoughts turn to the New Year. Eager for new beginning, I’m filled with hope for a successful year. My goals are similar to last year’s with renewed faith that I can do better.

As I reflect on this past year, I did not reach my goals—I’m still not punctual; I’m still over weight, and I did not write the book I’d planned. It’s remarkable I don’t give up on these goals. I must truly believe that I have not failed until I quit trying. Life is interesting and rarely goes the way I planned. However, I do believe setting goals, is the strongest force for self-motivation.

Although I did not reach my goals, there were small victories, pointing me in the right direction. I did take a writing class to improve my writing skills, January through May and I did get two chapters written and edited. I also joined the American Night Writers Association, and I’m a part of the Salt Lake Storytellers Chapter. I have learned a lot about writing and publishing, and I realize I have a lot more to learn. I have put my book goal aside for now to concentrate on my blog and writing technique. Some time in the future, I plan to use my blog articles to help me complete my book.

Another victory, not on my goal list, was keeping up with my job as an account manager for Earthwork Property Management. I have deadlines for specific tasks for my job, and do not think of them as goals, but I’m relieved every time I meet the deadline—especially this past summer, while Mark was hospitalized twice for blood clots. He also became very weak and was released from the hospital only to be admitted to a rehab center for three weeks in August. This consumed much time and energy. Most of the hours in a day were spent by Mark’s side, but I was still able to achieve the important tasks of work. As I look back on those months, I should have felt more pleased at the accomplishment of meeting each deadline instead of just relieved.

The only known cause for these blood clots is Mark’s inability to be active. He did receive eight weeks of home health therapy after returning from the rehab center but now, it’s all up to me to make sure he gets the exercise he needs. To prevent more blood clots, he takes an anticoagulant. This affects his diet which requires better meal planning on my part. More exercise and planned meals is an important goal for 2014 improved health.

Goals take work and constant planning. When life keeps messing up plans, it’s discouraging and easy to think, why make plans? I don’t plan for seizures, illness, accidents or hardships, but they still happen.

I agree with Harvey Mackay, who said, “If you fail to plan, then you plan to fail.” I don’t want to waste time on regret, or become discouraged over the major goal not accomplished. Instead I should recognize the minor victories. This new year, I plan to break down my goals into obtainable pieces and allow myself to feel joy for every small success.

While striving to reach goals I want to remember—faith, family and friends come first. It may take longer to accomplish the goal when putting them first, but they are most important and make all goals worthwhile.

I’m so grateful for new beginnings which encourage me to recommit to another year of self-improvement. 

A Joyful Season

Christmas @ 19 yrs old

1978 -Barbara and Santa Claus

It seems I can’t get through the month of December without getting sick.  I blame it on weather changing, lack of sleep, and the added stress. In past years I usually catch some sickly bug at the end of the month. Not this year, bronchitis hit me on the first day of December.

In my business life, I am an account manager for Earthwork Property Management, and I manage 560 property accounts. December is the busiest month of the year—wrapping up those loose ends while planning and preparing and for a new year.

In my personal life, I wear many more hats. I won’t bore you with the long list, but I’m sure it’s similar to yours. This December, we have the added blessing of health insurance issues to deal with. In our house that means two health insurance plans to research and decide on. Because of Mark’s disability he has Medicare and I have an individual plan, so double the work.

Add Christmas to this mix, with all the decorating in and outside, extra baking and cooking, cards to write and send, extra shopping for food and gifts and then wrapping them all up to look nice for someone special.

There are all sorts of ideas on how to survive the holidays. I don’t want to survive them, I want to enjoy them! There is so much to do and see. I don’t want to miss out on any of it. Christmas is the holiday most of us look forward to all year. As a child on Christmas night, I remember thinking how hard it was going to be to wait— a whole 365 days— until the next Christmas. I also recall on June 25th thinking, yeah, we’re half way there! Time moved much slower then.

First Christmas together-before marriage

First Christmas together-before marriage

Now time passes much too quickly, and every year it seems to fly by even faster. There just aren’t enough hours in a day to get everything done. December often feels like a society race to get everything done before the 25th. I love Christmas, for the reason that it is the day set to celebrate Christ’s birth. It brings a magical feeling to my soul. I enjoy all the activities that are associated with it, so much that I try to do them all. That’s when it gets overwhelming and becomes difficult to focus on the reason for this most celebrated day.

My wish for this Christmas was for life to slow down. I wanted to relish Christmas like I did when I was younger. Enjoy every minute of the season with all the celebration and no stress.  I know, a far-fetched wish.

So I’ve got bronchitis and I’ve slowed down.  I’ve already missed a couple of scheduled Christmas activities, which lessened stress but added disappointment. Yes, I’ve slowed down, but the rest of the world around me hasn’t, and I’m not looking forward to the catch up.