October 2018 Newsletter

Welcome.NovThe mountains are bursting with color, announcing that autumn is here. I regret we haven’t taken time for a ride to enjoy the variety of stunning colors. Time is running out, but hopefully this weekend we can get out and experience the delightful Fall colors. It really is the perfect season for a casual drive, bike ride or hike. Soon the colors will move down into the valley and then we’ll be busy raking leaves. It’s finally starting to cool off and today we’re getting our first feel of moisture in a long time. Last month goes down as one of the driest Septembers on record.

IMG_1971All spare evenings and weekends in September were filled with making grape and V-8 juice from our garden. The past two years I’ve made as much juice as my garden will provide because it’s the best way to get Mark hydrated. With his delayed swallow he often chokes, especially on liquids. He does better with juices because they have a taste. Water has no taste and no consistency unless you add Thick It, which he doesn’t like in water. He says it just doesn’t seem right to drink a cold glass of thick water, so the swallowing and hydration problem continues. This year I had plenty of produce to bottle all the juice we should need for the coming year, plus enough to make some grape jam too. Now, I have pears waiting in my fridge to be bottled. It’s rewarding to see shelves full by the advantage of our garden, but it’s a time-consuming job and a lot of work too! I try to focus on the reward, but I’m glad it’s coming to an end. This year, my friend Beckie helped plant, weed, grow and shared in the benefits of the garden. Having a working partner sure makes it easier and a lot more enjoyable too!

IMG_2204 (2)Making time to connect with other’s who also endure the effects of brain injury and epilepsy, the two major health issues we deal with, gets me through the everyday grind. We benefit and enjoy meeting with others in similar circumstances. For this reason, I’ve gathered information on this month’s support groups, conferences and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from, and encouraging others in like situation makes the journey easier!

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites. You are not alone in your challenges, and I hope you make time to connect with others who truly understand.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


October2FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

October 4, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

 October 9, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. This month dinner will be provided and some spooky activities afterwards.  Bring treats to share with the group if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

 October 18, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

Caregivers meet on the 1st Floor Conference Room. Lauri Schoenfeld will present, Embracing Your Fears to Succeed. She’s an author and motivational speaker, sharing her truths about being a child abuse and scoliosis survivor.

Survivor’s meet on the 2nd Floor Conference Room. Kasey Mitchell, MOT, CLVT, OTR/L will speak on Vision and Brain Injury.

October 23, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Christine Mullen, a Neuropsychology Post-Doc will present on Family Life and Increasing Acceptance After Brain Injury. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


FamilyProfessionalsConference_Page_1-1

REGISTER TODAY AT:  www.biau.org/events


LeavesFREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


OctoberFREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

October 4, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

 October 10, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

 October 11, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

 October 17, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

 October 25, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.Flyer Grizzlies_Game_2018-2 JPG (002)

Tickets available at: epilepsy.com/Utah


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

 

September 2018

September9Goodbye hot August nights, and hello to cooler days. We are facing another transition month as we move from summer to autumn. Each season brings a change to look forward to. Summer is loaded with fun in the sun activities, but as the temperature drops and the green foliage becomes a variety of beautiful reds, yellows, orange and purple colors, the outdoors become the perfect backdrop for a casual drive, bike ride or hike.

August is filled with good memories as we celebrated my dad’s 90th birthday, my parent’s 68th wedding anniversary and had a fun visit from Mark’s mom and sisters who all came from two different states. It was wonderful to be altogether, which can’t happen often enough with the Wilson family because we are so scattered.

The garden is plentiful now and we’re in the throngs of juicing and canning. It keeps us busy, but we like to take breaks and connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with on a daily bases. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from, and encouraging others in like situation makes the journey easier!

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

September1


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

 September 6, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

 September 11, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

 September 20, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

This month we’ll combine for a meeting with Dr. Matt Townsend. Through humor and entertainment he will teach us life-changing skills that will help improve our most important relationships. Meeting will be held in the TOSH auditorium.

September 25, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Tanja Kari, who runs the University of Utah TRAILS adaptive recreation program, will talk about the adaptive sports and activities offered. She might even bring some adaptive equipment! For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


FamilyProfessionalsConference_Page_1-1

 


Fall

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


September8FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

September 6, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

September 12, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

September 13, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

September 19, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

September 27, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


Camp Discover 9.15.18 Flyer JPEG

 

Bright Ideas


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.


 

July 2018 Newsletter

July fireworksI really don’t like to see June end. The weather is great, the school year ends, it’s my birthday, wedding anniversary and the month we celebrate dads and the other significant men in our lives. A lot of fun outdoor gatherings and activities begin in June as we enter summer. Nonetheless, the heat is on and July starts out with a colorful bang! Another month of fun celebrations with America’s Independence Day and in Utah, Pioneer Day. It’s a popular month for trips, but unfortunately, the effects of brain injury and epilepsy, which are the two health issues we deal with on a daily bases, don’t take a vacation. Gratefully, most support groups continue through this festive month.

We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


July heartFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

July 5, 2018 – Rocky Mountain University Stroke & Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

July 10, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

July 19, 2018 – IMC Caregivers and Survivors Education Groups, 7 p.m. meets every 3rd Thursday monthly. Usually we meet at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107. However, this month we will be meeting at Snowbird Resort for dinner, a tram ride and other activities provided by Wasatch Adaptive Sports. Join us for a fun night.

July 24th, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Due to the state’s holiday, this month has been cancelled. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


July ClipArt

 

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


July starFREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

July 5, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

July 11, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

July 12, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

July 18, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

July 26, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


Laptops

 

 

 

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

June 2018 Newsletter

Welcome2I’m a lucky wife and caregiver to a happy (most of the time) brain injury survivor who also has epilepsy. I’m lucky because despite his limitation he’s usually happy to be here. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


summer-funFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

June 7, 2018 – Rocky Mountain University Stroke & Brain Injury Support Group 7-8 p.m. Meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

 June 12, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with a craft afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

 June 21, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107. Most months the Caregivers meet on the 1st floor conference room and the Survivors meet on the 2nd floor conference room. However, This month Caregivers & Survivors are meeting together for a special presentation by Craig and Lynn Zabriskie. Topic: How to Survive Brain Injury as a Couple. To accommodate both groups the location this month is moved to the TOSH Auditorium, 5848 S Fashion Blvd, Murray, Utah 84107. 

 June 26, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Topic: Resources available through the Utah Independent Living Center. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


june-clipartFREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


springflowersFREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

June 7, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

June 13, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

June 14, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

June 20, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

June 28, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


June

Children’s Art Summer Program

Date:  June 25-28 & August 6-8, 2018

Time: 10 am to 12 pm

Place: Art Access @ 230 S 500 W #110, SLC, UT 84101

Epilepsy Foundation of Utah and Art Access are excited to bring you the opportunity for your child to express his or herself through art as part of an art therapy summer program. Your child will work with Jill Johnson(MAAT) and other children with epilepsy in a group setting to create art pieces using visual art mediums. Strengthen your child’s artistic voice through learning from others in an open, welcoming environment.

Admission: Free with advanced registration. Class size limited to 10 participants. Classes June 25-28 are for children ages11-17. August 6-8, children with cognitive age lower than chronological age. Please note that this program is exclusively designed for children living with epilepsy. If you have any questions or require more information, contact Margo at (801)-455-6089, or mthurman@efa.org.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

December 2017 Newsletter

December HelloSeason Greetings! I hope this newsletter finds you enjoying the holidays and not feeling overwhelmed or alone.  Associating with others in similar circumstances can brighten the celebration. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. Also included are links to useful websites. If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

Holiday dinnerDecember 12, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. A holiday dinner including turkey, ham, mashed potatoes, gravy, sweet potatoes, stuffing, green bean casserole, rolls and pie will be provided. Please bring your own drink. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

December

December 19, 2017 – University of Utah Brain Injury Support Group 6:30 – 7:30p.m. Normally meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s has been changed to the 3rd Tuesday for a holiday dinner. Soup will be provided. Please bring a side dish to share. Call Ryan Pello at (801) 581-2221 for questions.

December WreathDecember 21, 2017 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the caregivers and survivors will meet together in the conference room on the 9th Floor for a holiday party. Refreshments and entertainment from the Highland High School Choir will be provided.


Happy Holidays1FREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


December Tree

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

December 7, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

December 14, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month at the Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

December 20, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

December 27, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


InCaseYouMissedItLinks to November meeting notes in case you missed it.

November 16, 2017 – IMC Caregivers and Survivors Education Groupsguest speaker, Chad Hymas.

November 28, 2017 – University of Utah Brain Injury Support Group, Managing Holiday Stresspresented by Michelle Thornell.


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

Ending a Thanksgiving Month

This month has been hard, harder than usual. So another fitting title came to mind, Grateful This Month is Over. However, the word thanksgiving makes me smile, so it quickly became my preference.

Sammy

Sammy at 22 years old.

The first two days in November were uneventful, like the calm before the storm.  The cliché is most fitting due to the unseasonably nice and warm weather we were enjoying. On the third day, my month fell apart when our twenty-two-year-old cat, Sammy, disappeared. He seemed anxious that day, meowing and pacing the house. The weatherman predicted a storm coming and I assumed Sammy sensed it too and wanted to go outside to enjoy the nice weather while he could. I let him outside and took advantage of the empty house by vacuuming. When I finished, I opened the back door, but he wasn’t there. At this point I wasn’t too worried and thought he just ventured farther than usual. I went back inside to complete a few more chores. The wind started to howl and it was dark. He wasn’t there on my second check. I earnestly searched all his favorite outdoor spots to curl up, exploring every possible place in our yard and garage. When he wasn’t there I got in our van and searched the streets. No Sammy. Did he run away to die? For the past year I’ve joked he was in hospice care because last November I brought our outdoor cat inside, due to wounds he received in a cat fight.  I really didn’t expect he’d survive then, but wanted to make his last days comfortable and happy even though he often triggered my asthma. He was my irrigation buddy and kept me company every time I worked out in the yard. He was there for us when our children grew up and moved away. A portion of our garage became his apartment, which he could freely go in and out of during the day, but closed in at night. He was there for me every time I came home, which I appreciated, especially during the times Mark was hospitalized. We’ve put a cat down before and I wasn’t ready to do it again despite his old age. I hoped Sammy could pass naturally in our home with us by his side.

It’s hard not knowing what happened to Sammy. I feel cheated I didn’t get to give him a proper goodbye for all those years we’ve enjoyed his companionship. But I’m grateful for the memories made and I especially appreciate this past bonus year we’ve had with him.

Dad & Sammy

Dad with Sammy, Dec. 2016

Six days later, after I’d raked most of the leaves in our yard and moved every storage box in the garage looking for Sammy with no closure made, my dad had a heart attack. Heart disease is unfortunately prevalent in my family. Dad’s first heart procedure was in 1985 – a triple bypass surgery. Then he was only 57 years old. In 1995 he had an heart attack and they put a stent in to correct the blokage. For the past year I’ve been going with Dad to his cardiologist appointments treating his heart murmur, a-fib and congested heart failure. I worried his heart was a ticking time bomb and I fretted about the when and how it would go off. Luckily it was a mild heart attack and not the massive one I feared. Over the next 6 days he had many tests and two procedures to create the best treatment plan for his heart problems. A heart valve replacement and a pacemaker were the remedies given and he made it through the surgeries with only one complication. His heart rhythm was off, so they had to give him a shock treatment which corrected that problem. We were relieved and expected to bring him home in a few days. On discharge day his heart went out of rhythm again and despite medication, they couldn’t get his heart to slow down.

IMG_2385

Taking time to celebrate with my mom and my super siblings. I sure love this crazy bunch! We were missing Dad, so we took the cake and ice-cream to the hospital conference room to have with him. Nov. 2017

After two days another shock procedure became necessary. It did the trick and now we pray he can stay in rhythm. He is a miracle and we’re grateful for so many prayers which aided his recovery. Close calls like this make me realize how fortunate I am to have my parents. It renews my appreciation for their influence in my life and the foundation they set in building a strong family. I have wonderful siblings and collectively we support and unite, especially when one of us is in need. I’m blessed to go through life with them.

As if the above wasn’t enough stress, Mark’s severe bladder infection and elevated PSA level led to more tests, which found a lesion in his bladder and an enlarge prostate.  Surgery to fix both problems is scheduled the first week in December.

An unfortunate side effect of Mark’s traumatic brain injury is seizures and they are more numerous when he has any other health issue. This month the seizures have come abundantly.

IMG_2389 (2)

Nov. 2017 Mark and I

Mark is blessed with a great sense of humor and he uses it constantly to cope and to put others at ease with laughter. The other night after a seizure, I asked him how his head felt. He said, “Full of wisdom.”

“I’m not sure how that feels, but I assume it would feel pretty good,” I replied as my worries were lifted.

In the urologist’s office, after the doctor explained the upcoming procedure, he looked at Mark and asked him if he had any questions. Mark rubbed the top of his bald head and said, “How do you keep your hair?”

The doctor laughed and replied, “I have a hair Goddess. She blesses me with hair so I can cut it and donate it for wigs. Then she blesses me again.”

I‘m fortunate to have a man that works through hardships with comedy. He’s a joy to be with and knows just how to lessen my concerns.

I can’t blame Sammy for taking off. There have been days this month I wish I could crawl under a bush somewhere and not be found. I wonder if he sensed a different kind of turmoil than the weather storm that was brewing the night he left. I speculate he thought he’d do me a favor by leaving and give me one less thing to tend to.  If this was he thought, he didn’t realize the hole in my heart he’d leave.

The month of November encourages me to have a gratitude attitude. This month I’m thankful that despite the hardships and worries experienced, I still have a lot to appreciate!

November 2017 Newsletter

Welcome FallThe effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be uplifting. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last month’s meetings in case you missed it. Please check out the upcoming events and mark your calendar for the Epilepsy Foundation of Utah Symposium. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

reminder

November 3, 2017 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.

November 14, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share dinner and crafts together.  Bring a side dish or dessert to share if you’d like. This month, fun supplies for handmade thank you cards will be available to make a card for those you are grateful for. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

November 16, 2017 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the caregivers and survivors will meet together in the conference room on the 9th Floor for a special guest speaker, Chad Hymas. On April 3, 2001, Chad was involved in a serious accident, leaving him a quadriplegic. But Chad’s dreams were not paralyzed that day; as you will see, he keeps himself busy as a Life Coach, Trainer, and Keynote Speaker.

 

November 28, 2017 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Managing Holiday Stress presented by Michelle ThornellCall Ryan Pello at (801) 581-2221 for questions.


NovemberFREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

November 2, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

November 9, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month at the Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

November 15, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

November 22, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


UPCOMING EVENTS

importantdate-clipart

Epilepsy Foundation of Utah Symposium. This educational program provides an opportunity to learn more about epilepsy while connecting with others living with the challenges of seizures. This event is designed for people with epilepsy, their loved ones and those that work with and care for people with epilepsy.

Sessions include:

  • Epilepsy: Questions & Answers Presented by Colin VanOrman, MD – Primary Children’s Hospital
  • Epilepsy Surgery Presented by John Rolston, MD, PhD – University of Utah Neurosurgery
  • Seizures, School & Seizure Rescue Medication Presented by BettySue Hinkson MSN, RN, NCSN – Utah School Nurse Consultant, Utah Department of Health
  • Epilepsy & Social Security Disability Benefits Presented by Jake Lee, JD
  • Epilepsy Seizure Detection and Monitoring Devices Presented by Shari Combe, MPAS, PA-C
  • Panel Discussion with all speakers

While this is a free event, it’s recommend you register onlineRegister at epilepsy.com/Utah


Missed7

BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Sanderson Community Deaf Center located 5709 South 1500 West, Murray, UT

Tuesday, October 10, 2017, after a yummy chili dinner we had a great time making Halloween decorations and masks. Thank you, Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.

IMC SURVIVORS AND CAREGIVERS EDUCATION GROUP MEETING NOTES

Intermountain Medical Center, 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

Thursday, October 19, 2017the survivors met in the conference room on the9th Floor and Stephanie Obradovich, Physical Therapist, presented Exercise, Vitality and Well-being. She taught some simple exercises and we participated in yoga and Tai Chi. Thank you Stephanie for reminding us of the importance of exercises.

The caregivers met in the conference room on the 7th Floor and Mark Fox gave us insightful Tricks to Get Things Done. We discussed what makes it so difficult, defining priorities and why a planner is important. Thank you Mark for this timely presentation. 

 UNIVERSITY OF UTAH BRAIN INJURY SUPPORT GROUP

Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106

Tuesday, October 26, 2017, Chris Benda shared a little bit of her story. Nearly five years ago, her son at age fourteen was in a serious accident at school. He is a TBI survivor and she discussed how a community of people helped their family to survive and the resources they used. She gave us useful information on what’s available. Thank you, Chris Benda.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.