November 2019 Newsletter

The switch from daylight to standard time always throws my internal clock off. It takes a week or two for me to adjust. Losing the daylight an hour earlier in the evening makes it difficult to accomplish those pressing outside jobs after work. It’s a fact, I get more of my stuff done in the evening than in the morning. At daybreak, I’m devoted to getting Mark up and ready for whatever experience life has planned for him. Since I enjoy working without interruptions, I stay up until I can’t keep my eyes open any longer. I used to fall asleep seconds after my head hits the pillow and stayed that way until the morning alarm goes off.  Consequently, I never considered staying up late as a sleeping problem but rather a necessity to get things done. However, the past couple of months have been different. I either struggle to fall asleep because my mind keeps going over unfinished tasks, or on those fortunate nights when I fall asleep quickly, I wake up after a short time. I can’t get back to dreamland because I’m worrying about silly stuff. Believe me, at 2 or 3 a.m. it’s all silly stuff and worry is such a waste of time. The sleepless nights increase my daytime stress level. I miss regular exercise, writing, and eating well planned and prepared meals. It doesn’t take long for a regrettable cycle to form. Insomnia interferes with normal physical, mental and emotional well-being, so I’m trying to improve my sleep disorder one habit at a time.

A few weeks ago, I spent 2 nights in the hospital with Mark which gave me a new appreciation for my own bedroom. It’s a hundred percent more comfortable and peaceful without the beeping sounds of monitoring equipment and hourly nurse interruptions found in a hospital room. The first night home I decided to write a few things about what I appreciated in that day. Thankfully, I slept soundly, so I set a goal to continue the routine.  It appears that feeling and expressing gratitude is an antidote for insomnia. It puts my mind in a better place. Setting a bedtime routine and alarm which allows enough time to unwind in a quiet room also helps. Having it get dark an hour earlier can be a bonus too. It’s the perfect month to work on a gratitude attitude and it improves my sleep too.

This month I’m determined to turn over a new leaf by forming at least one good habit. I’m a list maker and it’s usually full of things that need to be completed. This month I’ll continue to list things I’m grateful for like support groups in our area. I appreciate the opportunity to meet with others in like situations. Increasing friendships is well worth the time. Their encouragement helps me meet challenges. The experience and knowledge shared is beneficial.Simply put, it’s uplifting!

The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.

Join me in celebrating November by living in thanksgiving daily and see how it benefits your sleep!


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

November 7, 2019Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

November 7, 2019Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​Dr. Devin Duval, an optometrist at the Child and Family Eye Care Center and a member of The Utah Valley Stroke Association Board will speak about vision rehabilitation. For questions call Lori Johnson at (801)422-9132.

November 12, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

November 21, 2019IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. Jennifer Roney topic is yoga and meditation.

Survivors meet on the 9th floor gym. Stephanie Obradovich, PT topic is Staying Active Through the Winter. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

November 24, 2019University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106.  For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.

For more information contact Margo at (801)455-6089 or Utah@efa

This Saturday, November 9, 2019 Utah’s Seizure Strategies Seminar at the U of U Clinical Neurosciences Center, 1st floor auditorium. 175 N. Medical Dr., SLC, UT from 9a.m. to 1:30p.m.

November 13, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

November 14, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

November 20, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

November 28, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

The Logan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

September 2019 Newsletter

Welcome September. I appreciate the changes a season brings and the opportunity it gives me to realign my focus on the next phase. Instead of planting and growing a garden, my focus turns to preserving the fruits and vegetables thereof. The loaded fruit trees look like they needed some thinning out in the previous months. Had I done this the fruit would have been bigger and more desirable. This was a hard summer for me with the death of my father. My attention has been all over the place, or not at all. The encumbered branches remind me I need to thin out the less important in order to concentrate my energy on fewer things to achieve bigger and more fulfilling results. Some weighed down limbs appear to be at their breaking point. I can relieve the heavy burden by taking some of the load. Choosing where to start, or what to focus on first is the real challenge.

Do you ever feel like you’re at a breaking point? Do you feel alone, overwhelmed with responsibilities, or mourning? Do you wish you could unload some of your worries? If so, please take advantage of a support group before you break. Meeting with others in like situations is sweet, planting friendships, which can grow and may be preserved for a lifetime. Branching out strengthens us to better meet our challenges. The experience and knowledge shared in a group will produce good results.

The purpose of this newsletter is to share information about organizations which I know about in hopes to help you. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.

I love autumn and I’m ready for a change! I hope you are too.


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

September 5, 2019Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

September 5, 2019Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

September 10, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a birthday celebration with dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

September 19, 2019IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers and Survivors meet this month together on the 9th floor, in the Neuroscience Conference Room. An entertaining special guest speaker, Dr. Matt Townsend will be speaking to us on relationships. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

September 24, 2019University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month I will be leading the discussion on AligningYour Focus.For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa

September 11, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

September 12, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

September 18, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

September 26, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

The Logan Epilepsy Support Group for All is the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

August 2019 Newsletter

Normally I post Uniting Caregivers Newsletter by the first of every month, however life is not normal. I lost my dad unexpectedly last month. If you follow my blog, you know how involved he’s been in my life, especially in helping me meet the challenges of caregiving. He’s been my rock, or the wind in my sail, whichever was needed. We built a home together after our car accident and we’ve lived with my folks for the past twenty-three years. Dad made sure that it was wheelchair accessible to make our life easier. He’s been able to repair whatever needed fixing. Learning to live without him feels overwhelming and some days impossible.

Dad fought heart disease since 1985 with first a triple bi-pass, then 10 years later stents. Two years ago, he had a heart valve replaced, and then needed a pacemaker. He was determined to live life to its fullest and was disappointed when the doctors told him there wasn’t anything more they could do to improve his heart function. Unwavering, he set out to make the best of it, just as he always did.

When Dad had an illness he often said, “I just need to work it off.”  He grew up on a farm and made his living working construction. He was a talented heavy equipment operator but never shirked from digging with a hand shovel if needed. He played as hard as he worked. If he wasn’t physically active, he was sleeping. He believed activity would cure whatever ails you and he worked up to his last day.

Sometimes his philosophy caused contention between us as I tried to get him to slow down. My attempts irritated him, and his continued busyness frustrated me. I just wanted to preserve him. He didn’t feel he needed preservation. My worry became reality when a massive heart attack took him instantly. I had no warning that day would be his last. I’d almost become accustomed to the fear I’d felt for the past two years that it would end just as it did. The day it happened, I realized it probably was the only way for him. No long suffering. Not even a day lying in bed. He left this world in the mountain he helped develop with roads, waterlines and cabins over the past 68 years. He referred to this high land as paradise and while driving from one job to another job, he departed from his earthly hill haven to a heavenly one. Fortunately, he was on a private road and no one else was injured. We’re grateful for his 91 years, but we’re left mourning and wondering what he’s working on now. I’m sure his spirit is still busy. 

Work didn’t cure Dad’s ailments, but it sure made him feel better. He lived happy with his trials and health limitations. I’m inspired by people who push through hardships. Energetically working towards a goal regardless of pain or discomfort. Pressing forward despite discouragement. Making a concentrated effort to pull upward and out of whatever obstacle is keeping you down. Day-by-day I practice in hope of making improvements. I don’t know how to live without Dad because I’ve never had to until now. Adapting to a lifestyle change takes time. I’m trying to be patient with myself as I learn and adjust.

Family and friends who share our love for my dad lighten the darkness. Appreciation has grown for friendships we’ve made through support groups who may not know my dad but still share in our sorrow. Friends who understand another aspect of our complicated life such as living with the effects of a severe traumatic brain injury and epilepsy. I’m so grateful for people who surround us and strengthen our abilities to meet our challenges. Especially in difficult circumstances we can’t have too many friends!

If you’re feeling alone, overwhelmed with responsibilities, or mourning, take advantage of a support group. Meeting with others in like situations is uplifting and makes us stronger to meet challenges. The experience and knowledge shared is beneficial. Expanding your network of friends is priceless, especially during hard times.

The purpose of this newsletter is to share information about organizations which I know about in hopes to help you. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

August 1, 2019Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

August 1, 2019Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

August 13, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a birthday celebration with dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

August 15, 2019 IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This month Katherin Kitchen Andren, PhD will be discussing Advocacy and Resources for Caregivers.

Survivors meet on the 9th floor Gym. This month Dr. Karen Blackwood will be speaking on Emergency Preparedness for Individuals with Disabilities. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

August 27, 2019University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly usually at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month we’ll meet at Sugar House Park, the Fabian Lakeside Pavilion for a summer picnic. Sandwiches provided. Please bring a side dish to share. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

August 1, 2019Logan Epilepsy Support Group for All meets at 7 – 8 pm on the 1st Thursday at the Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341.

August 8, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

August 14, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

August 21, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

August 22, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

Posted in Newsletter | Tagged Annie Wallace, Beth Cardell, Brain Injury Alliance of Utah, Brain Line, Caregivers, Caregivers and Survivors Education and Support, Emily Redd, epilepsy, Epilepsy Foundation of Utah, Intermountain Health Care Neuro, Intermountain Medical Center, Jennifer Gee, National Ability Center, Rocky Mountain University, Support Groups, Survivors, Tanja Kari, Therapy, Trails Adaptive Sports, Traumatic Brain Injury (TBI), University of Utah Brain Injury, Utah Valley Brain Injury Support Group | 2 Replies

July 2019 Newsletter

The summer weather brings lots of great outdoor activities. Warm evenings are a perfect match for enjoying outdoor concerts, a picnic and this month the dark sky often lights up with colorful fireworks. Morning bike rides are an excellent way to start the day. Thanks to the University of Utah and their TRAILS cycling program, Mark had his first bike ride in over twenty-eight year.

We appreciate the opportunities in our state that assist us in kayaking, sailing, and biking. Tanja Kari, Program Administrator of the TRAILS Paralympic Sports Club is eager to make it all possible. She is enthusiastic and seemed to enjoy the challenge of getting pedals and straps that fit Mark’s abilities to make his ride enjoyable and successful. Working with her and the TRAILS team is a pleasure.

We are looking forward to their overnight camp at East Canyon State Park this month. They are a caring and fun group of people to be with. If you are interested in joining us or want more information concerning their programs, contact Tanja Kari at tanja.kari@hsc.utah.edu or call 801-428-9815. They also have scheduled weekday kayaking and sailing opportunities this month along with a cycling program which includes road and mountain biking. Indoor spinning happens in November through February. Cross country and downhill skiing start as soon as we have enough white on the ground. These programs feature the latest equipment and are staffed by specialized professionals and volunteers.

How do I find out about programs like this? I go to as many of the support groups as my time will allow. Friends and facilitators found in these groups are a wealth of knowledge. We gain valuable information through collaborating and associating with others in like situations. We’re grateful for people who understand and desire to strengthen our abilities to meet our challenges.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. It seems like summer creates never ending yardwork on top of all other duties. Making time to enjoy outdoor activities with others is refreshing. I hope you’ll join us for a bike ride, kayaking or sailing excursion. It feels great to have a break from the daily grind and the exercise is a bonus to the fun. We’re excited for the overnight camp this month. Living with the effects of a severe traumatic brain injury and epilepsy helps me understand that every day is a bonus day and we need to take advantage of pleasurable opportunities to make the most out of life.

The purpose of this newsletter is to share information about organizations which I know about in hopes to help you. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

Utah Valley Aphasia Choir is cancelled this month. Usually we meet at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. August 1st will be our next meeting for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

Utah Valley Brain Injury Support Group is also cancelled this month. Usually we meet at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​This month both the Aphasia Choir and Support Group is cancelled due to the July 4th holiday. For questions call Lori Johnson at (801)422-9132.

July 9, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a summer salad bar for dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

July 11, 2019 – IMC Caregivers and Survivors Education and Support Groups, normally meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1. However, this month the caregivers and survivors combine for a summer picnic at Snowbird with Wasatch Adaptive Sports at 5:30pm on the 2nd Thursday. Sandwiches and paper goods provided. Bring a side dish or dessert to share. Free tram rides & trail hiking to the observation deck. PLEASE remember the change in location and time this month only: 9385 S. Snowbird Center Drive, Snowbird, UT 84092.

University of Utah Brain Injury Support Group is cancelled this month. Usually we meet at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. See you in August. For more information please call Annie Wallace at (801)581-2221 Due to the Utah State Pioneer Holiday.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Logan Epilepsy Support Group for All has been canceled due to Independence Day. Usually they meet from 7 – 8 pm on the 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341.

July 10, 2019 – Provo Epilepsy Group for All, meetsat7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

July 11, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

July 17, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

July 25, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

June 2019 Newsletter

Welcome Summer! It’s been an extra wet Spring and I’ve been grateful I haven’t needed to do any watering yet this year. Everything is green and lush all by mother nature’s doing. The plants look happy and beautiful. When the sun comes out from behind the clouds, I appreciate the warmth and brightness of sunshine even more than I do in the heat of the summer. I must admit, I’m a little sad to see Spring end. I’ll have to work harder to keep the yard looking good and I’ll probably take the sunshine for granted.

Yardwork is a good outlet for me. I enjoy being outside, hearing the birds sing, and creating a garden. When I plant from seeds, it’s exciting and rewarding when they start to sprout. Those delicate new plants take extra care and thinning out is sometimes necessary. Even when I put in the ground a plant that has been nurtured in a commercial greenhouse, I need to continue with care so it can adjust and thrive in my garden.

Caregiving is similar. Doctors, nurses and therapists give our loved ones the necessary care to survive or sprout in a new situation. Once a survivor is home, it’s up to family and friends to nurture and help them adjust in unfamiliar ground or circumstances. Often the success of growth comes from the encouragement and support of others.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. Caregivers need encouragement and help from others too. I’m grateful for many support groups in our valley, and we benefit from our association with them. We gained valuable information through collaborating with others in like situations.

Living with the effects of a traumatic brain injury and epilepsy is hard. The purpose of this newsletter is to share information about organizations which I’ve found helpful. If you are a caregiver for a survivor of another physical or mental illness, I encourage you to find assistance through organizations that catered to your circumstances.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

June 6, 2019 – Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

June 6, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic after the Aphasia Choir. ​ Address: 1190 North 900 East, Provo, UT 84060. For questions call Lori Johnson at (801)422-9132.

June 11, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and crafts this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

June 20, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month Jon Pertab, PhD specializing in Neuropsychology will be speaking. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

June 25, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, usually at Sugarhouse Health Center. However, this month, we’ll meet at the TRAILS House to explore and try out different adaptive equipment and enjoy a BBQ. Please RSVP with Annie Wallace so she can get an accurate head count for food.

PLEASE remember the change in location for this month only. Trails Adaptive Sports, Imaging and Neurosciences Center in Research Park. Address: 729 Arapeen Drive, SLC, UT 84108. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

June 6, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341

June 12, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT. A NeuroPace representative will speak on the new RNS system and answer questions.

June 13, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center. Dan Brown, NeuroPace representative will speak on the new RNS system and answer questions.

June 19, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

June 27, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:


ACTIVITIES TO DO WEBSITES:


SHARING WEBSITES:


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

May 2019 Newsletter

I’m a wife and caregiver to a brain injury survivor who also has epilepsy. We benefit and enjoy meeting with others in similar circumstances. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

New: Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic. Come and enjoy the power of music and friendship together. They have some performance opportunities, such as singing a patriotic song to kick off the Strides for Strokes race to support the Utah Valley Stroke Association on May 18, 2019. Everyone interested is welcome to join.

May 2, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

May 14, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and craft this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

May 16, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. This month’s topic, Being a Resilient Caregiver. Part 5 of this years Caregivers Seminar.

Survivors meet on the 9th floor Gym. Carly Hoffman, Music Therapist will be speaking on Music Therapy for Brain Injury Rehabilitation. Carly Hoffman, Music Therapist.
For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

May 28, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. For more information please call Annie Wallace at (801)581-2221.


2019 Brain Injury Alliance of Utah
Saturday, May 18, 2019





Run, Walk & Roll 5K
Liberty Park, 648 E. 1300 S., SLC


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

May 2, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341

May 8, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

May 9, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

May 15, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

May 23, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at June 6, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

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https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


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SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

April 2019 Newsletter

It’s a beautiful season as we transition from winter into summer. It’s a time of growth and renewal of life, when plants and trees which have been dormant for a season regain life and begin to bud into lush, green, delightful plants. For this reason, I enjoy Springtime.

However, in 1991 Spring was a lost season to me because Mark literally slept through it in a coma after our catastrophic car accident. The pain of that experience has faded some, but it still stings, making April a hard month of the year for me.

Like birthdays, anniversaries cause me to reflect. So, April brings with it some “What if” demons as we approach another anniversary of our car accident.

What if Mark hadn’t gotten the job in Ogden? What if we had postponed our home search for a day with better weather? What if we’d stayed with the realtor or skipped lunch? What if Mark was driving instead of me? I can think of many “what ifs”, but that doesn’t change the reality of what happened.

I suppose its human nature to wonder if I’d done things differently—would life be better? Wallowing in regret only leads to discouragement and depression. My grandma used to call it “a pity party.” When I recognize my brain is taking me there, I refuse to go. If it creeps up on me before I realized it, I leave the pity party by concentrating on the positives.

I’m blessed Mark survived our near-fatal car accident 28 years ago and blessed again because he too is happy he’s alive. He appreciates the help and assistance he gets instead of resenting it. I know not all caregivers receive such gratitude from their love one which would make the situation more difficult.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. Living with the effects of a severe traumatic brain injury and epilepsy helps me understand that every day is a bonus day even with the challenges.

I’m grateful for many support groups in our valley, and we benefit greatly from our association with them. We gained valuable information through collaborating with others in like situations.

If you struggle with the “what if’s” or find your mind leading you to a “pity party”, try finding friendships and assistance through organizations catered to your circumstances. The purpose of this newsletter is to share information about organizations which I know about in hopes to help you.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

New: Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic. Come and enjoy the power of music and friendship together. They have some performance opportunities, such as singing a patriotic song to kick off the Strides for Strokes race to support the Utah Valley Stroke Association on May 18, 2019. Everyone interested is welcome to join.

April 4, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

April 9, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

April 18, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers and Survivors will meet together this month on the 9th floor, in the Neuroscience Conference Room. Chad Hymas, a nationally-acclaimed motivational speaker will talk on Leaving A Legacy. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

April 23, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Dr. Stephen Trapp, Physical Medicine and Rehabilitation will be presenting this month. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


2019 Brain Injury Alliance of Utah

Run, Walk & Roll 5K

Saturday, May 18, 2019

Liberty Park, 648 E 1300 S, Salt Lake City


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

April 4, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341

April 10, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

April 11, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

April 17, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

April 18, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at April 4, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

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https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


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SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


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