January 2019 Newsletter

January Bring OnA New Year feels like a fresh start and it’s energizing! I’m a visual person so I like to schedule my activities and plan steps for attaining goals. I’ve been marking up my 2019 calendar because without a plan I wander aimlessly. Written down on paper makes it look clear and obtainable. The unknown obstacles and interruptions that life inevitably bring aren’t there to mess up the blue print. Judging by experience, I won’t get it all accomplished, but my motto is to never give up. This year marks a big one for us. Forty years of marriage, and the sixth decade marker of my existence. I haven’t come close to accomplishing what I’ve wanted to thus far in life, nor in these many years of marriage. We’re not where we thought we’d be financially, or physically. My antidote for discouragement is to focus on my life’s mission: To care for and love my family and friends. To put their needs above my wants. This takes flexibility with my daily plans. It means not being so focused on the goals I want to accomplish that I can’t see the needs of others or take time to help them. In 2019, I want to make sure this is a true statement and not an excuse for defeat. It’s tricky and not always easy to identify or decipher between a “want” and “need”.

I gain strength and clarity from others who truly understand my journey. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others lightens the load.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

I’m excited to see how this year unfolds and what it will reveal. I wish you the best for the new year.


January1FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

January 3, 2019 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132.

January 8, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

New-Location1January 17, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This year we move to a new location at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program written by Beth Cardell, Phd, University of Utah will be taught by various members of the medical community and other experts in their field. This month Teresa L. Such-Neibar, DO Physical Medicine & Rehab will be teaching. Bring your family and friends that are part of your caregiver experience.

change

Survivors meet on the 9th floor Gym. This month Kim Sieber, neuropsychologist, will present. Her topic is Mindfulness Strategies for Survivors. Please call (801)314-2086 or email Emily Redd emily.redd@imail.org

January 22, 2019 – University of Utah Brain Injury Support Group 7-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Marc Macialek, TBI survivor and life coach will present. For more information please call Ryan Pello or Annie Wallace at (801) 581-2221.


January

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


january4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

January 9, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

January 10, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

January 16, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

January 24, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

Coming SoonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and

thoughts)


newsletter

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

December 2018 Newsletter

IMG_2976For the first time since last winter, our valley put on it’s gorgeous white coat. Although I don’t enjoy driving in, or shoveling snow, I do love the fresh fallen appearance of it. Each season brings its own kind of beauty and fun activities. We used to take great pleasure in playing in the cold, fluffy, white stuff with snowmobiles or sleds. Building forts and snowmen were challenging in an amusing and entertaining way. With physical limitations, we adore the snow from the warmth of indoors as we watch from our windows as it quietly, gracefully falls. Now, sitting by the fireplace, sipping hot cocoa, reading or watching a movie has become our favorite winter activity.  

As nice and cozy as it is inside, December is filled with social events as we celebrate Christmas and the end of the year. So, we will venture out in the cold to be warmed by our association with family and friends. We benefit and enjoy meeting with others in similar circumstances. We appreciate several organizations around the Salt Lake Valley which give us the opportunity to connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


Happy Holidays1

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

December 6, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. This month’s holiday celebration will include food and games. For questions, please call Tracy Liu, (801) 422-9132.

December 11, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a traditional holiday dinner. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

December 18, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Usually this group meets every 4th Tuesday monthly, but because that’s Christmas day, they are meeting this month only on the 3rd Tuesday, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month will be a Holiday Potluck. Soup will be provided. Bring a side dish to share. Please call Ryan Pello or Annie Wallace at (801) 581-2221.

December 20, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This month caregivers and survivors will meet together for a holiday dinner and entertainment at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building1, 9th floor, in the Neuroscience Conference Room. Please RSVP Emily Redd (emily.redd@imail.org) or Kim Kirkham (kim.kirkham@imail.org), or call (801)314-2086.


december-month-snowmen

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


December WreathFREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday, but now meet quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

 December 12, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

December 13, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

December 19, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

December 26, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

coming-soonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


Laptops

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

November 2018 Newsletter

Welcome.Oct

The vibrant colors of red, yellow and orange cover our yards and the streets of our valley right now. A gorgeous sight saved only for this time of year. The falling leaves indicate this beautiful season is coming to an end, which saddens me and keeps me busy sweeping or raking. Since I wish to hang onto those stunning leaves as-long-as possible, it makes disposing the multicolored foliage a challenging task. I love autumn and especially the month of November because it encourages gratitude and reminds me of all my many blessings. The days pass too fast. By the looks of the stores, Thanksgiving is skipped as they jump from Halloween right into Christmas. I’d like to slow down November and treasure this Thanksgiving season to the very end. I suppose I’ll be busy raking and clearing the yard of hoses, flowers, and other annual plants until the first snow flies, which brings a clean, fresh look to the outdoors. Another kind of beauty. Until the blanket of white reaches the valley, I’ll be getting ready for it, savoring the crunchy sound of dried leaves under my feet, reminding me it’s November and all the things I am thankful for.

We appreciate several organizations around the Salt Lake Valley which give us the opportunity to take a break from our busy lives to connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


What_are_you_thankful_forFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

 November 1, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132. This month’s topic is Stress Reduction.

 November 13, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games or crafts afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

 November 15, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

This month Caregivers topic is titled: I Choose… to be Grateful. Simple ways to find more joy, presented by Julie Brown, Life Coach.

This month Survivors topic is titled: Life lessons, Tips and Tricks presented by Dallas Davis, a multiple brain injury survivor.

November 27, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month will be a member spotlight, Gordan Remington. He will speak on the importance of support networks in recovery title: With a Little Help From My Friends. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


GIVING-THANKS3FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


November4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

change

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday, but now meet quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W.

 

November 8, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

November 14, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

November 21, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

Happy ThanksgivingNo meeting this month for the Epilepsy Group for Teens, because of Thanksgiving. Usually they meet from 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy in December. There are two teachers overseeing this group.


Epilepsy

Symposium info

Click here for free registration


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

Uniquely abled

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

August 2018 Newsletter

August1Another great summer month ends. July is full of fireworks, parades, outdoor concerts, picnics and barbeques, just to name a few of my favorite activities to celebrate Independence Day and Utah’s Pioneer Day. When the heat turned up in the valley, we headed for the mountains for an aerial tram ride at Snowbird, a canyon hike with friends, and a play at Sundance Resort. As much as I relished all the adventures, I look forward to a quieter month in August. However, the first week has already flown by as we prepared for, and enjoyed a big celebration for my dad’s 90th birthday. August is already off to a good start and Mark’s mom and sisters will be visiting from out-of-state in just a few days!

The garden is producing and there’s lots of yard work to be done here at home. We enjoy taking breaks with friends who also endure the effects of brain injury and epilepsy, which are two health issues we deal with on a daily basis. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier!

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


SunFREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

August 2, 2018 – Rocky Mountain University Stroke & Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

August 14, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards.  Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

August 16, 2018 – IMC Caregivers and Survivors Education Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

Caregivers meet on the 1st Floor Conference Room. Chris Benda will present, It Takes a Village. She is a caregiver who will share her experience on how to find, use and manages resources.

Survivor’s meet on the 2nd Floor Conference Room. Joanne Payne will present Relaxation Techniques and Strategies.

August 28, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. However, this month we’ll meet at Sugarhouse Park for our summer picnic. Sandwiches will be provided. Bring a salad or dessert to share and join us for a fun night. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.


august

 

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


summer-fun

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

August 2, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

August 8, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

August 9, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

August 15, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

August 23, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.Coming Soon


Seize the Night 2018 Flyer JPEG

 


Camp Discover 9.15.18 Flyer JPEG


 

Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you.

December 2017 Newsletter

December HelloSeason Greetings! I hope this newsletter finds you enjoying the holidays and not feeling overwhelmed or alone.  Associating with others in similar circumstances can brighten the celebration. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. Also included are links to useful websites. If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

Holiday dinnerDecember 12, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. A holiday dinner including turkey, ham, mashed potatoes, gravy, sweet potatoes, stuffing, green bean casserole, rolls and pie will be provided. Please bring your own drink. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

December

December 19, 2017 – University of Utah Brain Injury Support Group 6:30 – 7:30p.m. Normally meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s has been changed to the 3rd Tuesday for a holiday dinner. Soup will be provided. Please bring a side dish to share. Call Ryan Pello at (801) 581-2221 for questions.

December WreathDecember 21, 2017 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the caregivers and survivors will meet together in the conference room on the 9th Floor for a holiday party. Refreshments and entertainment from the Highland High School Choir will be provided.


Happy Holidays1FREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


December Tree

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

December 7, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

December 14, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month at the Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

December 20, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

December 27, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


InCaseYouMissedItLinks to November meeting notes in case you missed it.

November 16, 2017 – IMC Caregivers and Survivors Education Groupsguest speaker, Chad Hymas.

November 28, 2017 – University of Utah Brain Injury Support Group, Managing Holiday Stresspresented by Michelle Thornell.


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

November 2017 Newsletter

Welcome FallThe effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be uplifting. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last month’s meetings in case you missed it. Please check out the upcoming events and mark your calendar for the Epilepsy Foundation of Utah Symposium. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

reminder

November 3, 2017 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.

November 14, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share dinner and crafts together.  Bring a side dish or dessert to share if you’d like. This month, fun supplies for handmade thank you cards will be available to make a card for those you are grateful for. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

November 16, 2017 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the caregivers and survivors will meet together in the conference room on the 9th Floor for a special guest speaker, Chad Hymas. On April 3, 2001, Chad was involved in a serious accident, leaving him a quadriplegic. But Chad’s dreams were not paralyzed that day; as you will see, he keeps himself busy as a Life Coach, Trainer, and Keynote Speaker.

 

November 28, 2017 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Managing Holiday Stress presented by Michelle ThornellCall Ryan Pello at (801) 581-2221 for questions.


NovemberFREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

November 2, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

November 9, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month at the Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

November 15, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

November 22, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


UPCOMING EVENTS

importantdate-clipart

Epilepsy Foundation of Utah Symposium. This educational program provides an opportunity to learn more about epilepsy while connecting with others living with the challenges of seizures. This event is designed for people with epilepsy, their loved ones and those that work with and care for people with epilepsy.

Sessions include:

  • Epilepsy: Questions & Answers Presented by Colin VanOrman, MD – Primary Children’s Hospital
  • Epilepsy Surgery Presented by John Rolston, MD, PhD – University of Utah Neurosurgery
  • Seizures, School & Seizure Rescue Medication Presented by BettySue Hinkson MSN, RN, NCSN – Utah School Nurse Consultant, Utah Department of Health
  • Epilepsy & Social Security Disability Benefits Presented by Jake Lee, JD
  • Epilepsy Seizure Detection and Monitoring Devices Presented by Shari Combe, MPAS, PA-C
  • Panel Discussion with all speakers

While this is a free event, it’s recommend you register onlineRegister at epilepsy.com/Utah


Missed7

BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Sanderson Community Deaf Center located 5709 South 1500 West, Murray, UT

Tuesday, October 10, 2017, after a yummy chili dinner we had a great time making Halloween decorations and masks. Thank you, Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.

IMC SURVIVORS AND CAREGIVERS EDUCATION GROUP MEETING NOTES

Intermountain Medical Center, 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

Thursday, October 19, 2017the survivors met in the conference room on the9th Floor and Stephanie Obradovich, Physical Therapist, presented Exercise, Vitality and Well-being. She taught some simple exercises and we participated in yoga and Tai Chi. Thank you Stephanie for reminding us of the importance of exercises.

The caregivers met in the conference room on the 7th Floor and Mark Fox gave us insightful Tricks to Get Things Done. We discussed what makes it so difficult, defining priorities and why a planner is important. Thank you Mark for this timely presentation. 

 UNIVERSITY OF UTAH BRAIN INJURY SUPPORT GROUP

Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106

Tuesday, October 26, 2017, Chris Benda shared a little bit of her story. Nearly five years ago, her son at age fourteen was in a serious accident at school. He is a TBI survivor and she discussed how a community of people helped their family to survive and the resources they used. She gave us useful information on what’s available. Thank you, Chris Benda.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

September 2017 Newsletter

Welcome.OctThe effects of brain injury can be complicated and may cause feelings of isolation. Associating with others in similar circumstances can be refreshing. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last months meeting’s in case you missed it. Please check out the upcoming events and mark your calendar for the BIAU Annual Conference. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


Mark your Calendar

Leaves1

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

September 5, 2017 – Aphasia Support Group at 7:00 p.m. Meets the 1st Tuesday monthly at Brookdale, 76 South 500 East, SLC, UT. (Parking in the rear of the building.  Enter from 100 South.) For more information, please contact Christina Nessler (801) 582-1565, Extension 5379 or Kiera Berggren (801) 585-9717.

September 12, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This is a social group where dinner is enjoyed together and then games played or crafts made. All caregivers and survivors are welcome this month for rotisserie chicken and potatoes. Bring a side dish or dessert to share if you’d like. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

September 21, 2017 –  Caregivers and Survivors Education Group Meets every 3rd Thursday monthly at Intermountain Medical Center (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107.

Good Nights SleepCaregivers meet in the conference room on the 7th Floor.  This month’s topic: Strategies for Facilitating a Good Night’s Sleep. Presented by Neuropsychologist, Jon L. Pertab, PhD.

Journey to LiveSurvivors Meet in the conference room on the 9thFloor.  This month’s topic: Journey to Live. Presented by Trisha Beck

September 26, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


LeavesFREE WEEKLY GROUPS

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


september-month-autumn

Epilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

September 7, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

September 14, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

EpilepsySeptember 20, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

September 27, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Wednesday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

September 28, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)


Missed It Header
THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Deaf CenterSanderson Community Deaf Center located 5709 South 1500 West, Murray, UT 84107

Tuesday, August 8, 2017, we had a great time    playing cards and eat     Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.


InCaseYouMissedItIntermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

SURVIVORS AND CAREGIVERS EDUCATION MEETINGS were held on August 17, 2017.

Caregivers met in the conference room on the 7th Floor for a great presentation on Mind, Body and Spirit. Dr. Kimberly O. Sieber, Psychologist phD gave us five simple ways to increase physical and emotional well-being. She gave us strategies known for their medical and psychological health benefits that can easily be incorporated into the busy life of a caregiver. For details see Five Ways to Increase Your Well-being.

 

Survivors met in the conference room on the 9th Floor for an informative presentation on Vision After Brain Injury or Stroke.

 

missed it_9University of Utah Brain Injury Support Group located at Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106. Last month they had a summer picnic at Sugar House Park on Tuesday, August 22, 2017. Sandwiches were provided while those in attendance brought food items to share.

 


Coming Soon

 

SEIZE THE NIGHT – UTAH 5K  RUN/WALK

“Come lace up your shoes, crack open your glow sticks and get ready for an electrifying 5K Run/Walk! It will be a unique and enlightening night time event, aimed at raising epilepsy awareness in Utah. Be ready to light up the dance floor as you cross the finish line.”

Date: September 16, 2017

Time: 6pm

Place: Sugar House Park, Big Field Pavilion

Registration: $25.00

Register yourself or your team today! Raise money and awareness to help people in Utah living with epilespy. Register at www.epilepsy.com/utah


Upcoming EventsBIAU FAMILY & PROFESSIONALS ANNUAL CONFERENCE

Building Connections for a Brighter Tomorrow.

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041

Registration: $40 for members/ $50 for non members and includes lunch. Scholarships available. 

See https://biau.org/events/ for conference details and registration information.  “Attendees will learn how individuals with brain injury build connections. Topics will include: Social Skills, Rehabilitation Process, Cognitive Strategies, Technology/App use, Caregiver/Survivor Lessons, ADA, Social Security & Patient Rights, Classroom Executive Functioning, Concussion and Return to Activity/School”


dont-forget-smileyUTAH GRIZZLIES EPILEPSY AWARENESS HOCKEY GAME

Date: October 21, 2017

Time: 7 pm

Place: Maverik Center – West Valley City 

Tickets: $10 – $20

You can get your tickets at www.epilepsy.com/utah . “The attendees will be receiving epilepsy information throughout the evening, and the team will be wearing and auctioning the jerseys specially made for this game. Mark your calendar and bring your friends.”


Bright Ideas

 

                              HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


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