September 2018

Posted on August 31, 2018 by Barbara Wilson

Goodbye hot August nights, and hello to cooler days. We are facing another transition month as we move from summer to autumn. Each season brings a change to look forward to. Summer is loaded with fun in the sun activities, but as the temperature drops and the green foliage becomes a variety of beautiful reds, yellows, orange and purple colors, the outdoors become the perfect backdrop for a casual drive, bike ride or hike.

August is filled with good memories as we celebrated my dad’s 90^th birthday, my parent’s 68^th wedding anniversary and had a fun visit from Mark’s mom and sisters who all came from two different states. It was wonderful to be altogether, which can’t happen often enough with the Wilson family because we are so scattered.

The garden is plentiful now and we’re in the throngs of juicing and canning. It keeps us busy, but we like to take breaks and connect with others who also endure the effects of brain injury and epilepsy, which are two health issues we deal with on a daily bases. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from, and encouraging others in like situation makes the journey easier!

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

September 6, 2018 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

September 11, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

September 20, 2018 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107.

This month we’ll combine for a meeting with Dr. Matt Townsend. Through humor and entertainment he will teach us life-changing skills that will help improve our most important relationships. Meeting will be held in the TOSH auditorium.

September 25, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Tanja Kari, who runs the University of Utah TRAILS adaptive recreation program, will talk about the adaptive sports and activities offered. She might even bring some adaptive equipment! For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2^ndWednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

September 6, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

September 12, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2^nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

September 13, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2 in the Doty Education Center.

September 19, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

September 27, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

h ttp://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://w ww.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

July 2018 Newsletter

Posted on July 1, 2018 by Barbara Wilson

I really don’t like to see June end. The weather is great, the school year ends, it’s my birthday, wedding anniversary and the month we celebrate dads and the other significant men in our lives. A lot of fun outdoor gatherings and activities begin in June as we enter summer. Nonetheless, the heat is on and July starts out with a colorful bang! Another month of fun celebrations with America’s Independence Day and in Utah, Pioneer Day. It’s a popular month for trips, but unfortunately, the effects of brain injury and epilepsy, which are the two health issues we deal with on a daily bases, don’t take a vacation. Gratefully, most support groups continue through this festive month.

We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

July 5, 2018 – Rocky Mountain University Stroke & Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

July 10, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

July 19, 2018 – IMC Caregivers and Survivors Education Groups, 7 p.m. meets every 3rd Thursday monthly. Usually we meet at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107. However, this month we will be meeting at Snowbird Resort for dinner, a tram ride and other activities provided by Wasatch Adaptive Sports. Join us for a fun night.

July 24^th, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Due to the state’s holiday, this month has been cancelled. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2^ndWednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

July 5, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

July 11, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2^nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

July 12, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2 in the Doty Education Center.

July 18, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

July 26, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

June 2018 Newsletter

Posted on May 31, 2018 by Barbara Wilson

Welcome2 I’m a lucky wife and caregiver to a happy (most of the time) brain injury survivor who also has epilepsy. I’m lucky because despite his limitation he’s usually happy to be here. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

June 7, 2018 – Rocky Mountain University Stroke & Brain Injury Support Group 7-8 p.m. Meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori Johnson, (801) 422-9132

June 12, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with a craft afterwards. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

June 21, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107. Most months the Caregivers meet on the 1^st floor conference room and the Survivors meet on the 2^nd floor conference room. However, This month Caregivers & Survivors are meeting together for a special presentation by Craig and Lynn Zabriskie. Topic: How to Survive Brain Injury as a Couple. To accommodate both groups the location this month is moved to the TOSH Auditorium, 5848 S Fashion Blvd, Murray, Utah 84107.

June 26, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Topic: Resources available through the Utah Independent Living Center. For questions, please call Ryan Pello or Annie Wallace at (801) 581-2221.

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2^ndWednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

June 7, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

June 13, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2^nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

June 14, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2 in the Doty Education Center.

June 20, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

June 28, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

Children’s Art Summer Program

Date: June 25-28 & August 6-8, 2018

Time: 10 am to 12 pm

Place: Art Access @ 230 S 500 W #110, SLC, UT 84101

Epilepsy Foundation of Utah and Art Access are excited to bring you the opportunity for your child to express his or herself through art as part of an art therapy summer program. Your child will work with Jill Johnson(MAAT) and other children with epilepsy in a group setting to create art pieces using visual art mediums. Strengthen your child’s artistic voice through learning from others in an open, welcoming environment.

Admission: Free with advanced registration. Class size limited to 10 participants. Classes June 25-28 are for children ages11-17. August 6-8, children with cognitive age lower than chronological age. Please note that this program is exclusively designed for children living with epilepsy. If you have any questions or require more information, contact Margo at (801)-455-6089, or mthurman@efa.org.

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

May 2018 Newsletter

Posted on April 30, 2018 by Barbara Wilson

Welcome.Apr I’m a wife and caregiver to a brain injury survivor who also has epilepsy. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

FREE SUPPORT GROUPS FOR BRAIN INJURY SURVIVORS AND CAREGIVERS

May 8, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with a game afterwards. Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

May 17, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, UT 84107. Caregivers meet on the 1^st floor conference room and the Survivors meet on the 2^nd floor conference room.

Caregiver’s topic – Getting the Most From Your Medical Insurance by Rob Benda, caregiver and father of a TBI Survivor. Rob will share pointers on how to work with your insurance company.

Survivor’s topic – Resilience by Alexandra Terrill, Professor of Occupational Therapy.

May 22, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. May’s topic: Dr. John Speed, Physical Medicine & Rehabilitation, will host an “Open Mic” to answer all questions surrounding Brain Injury. Please call Ryan Pello or Annie Wallace at (801) 581-2221 for questions.

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FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2^ndWednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

May 3, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

May 9, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2^nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

May 10, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2 in the Doty Education Center.

May 16, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

May 24, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Thursday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

Upcoming Events

Children’s Art Summer Program

Date: June 25-28 & August 6-8, 2018

Time: 10 am to 12 pm

Place: Art Access @ 230 S 500 W #110, SLC, UT 84101

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

April 2018 Newsletter

Posted on April 1, 2018 by Barbara Wilson

Spring6 I’m a caregiver to a brain injury survivor who also has epilepsy. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. As you learn from, and encourage others in like situations, the weight of your worries will be lightened.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

April 10, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with crafts or a game afterwards. Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

April 19, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers meet on the 1^st floor conference room and the Survivors meet on the 2^nd floor conference room.

Caregiver’s topic: Managing Stress – by Michelle Thornell, stroke survivor, teaching meditation and relaxation techniques.

Survivor’s topic: Lessons From a Survivor – by Kris Sanford a spinal cord injury survivor.

April 24, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Social Communication and Relationships – by Summer Rolin, Psyd. She will give ways for helping others understand your injury. Please call Ryan Pello or Annie Wallace at (801) 581-2221 for questions.

ReadyToRoll (1)

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2^ndWednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

April 5, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

April 11, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2^nd Wednesday of the month at the Provo City Library – 555 N. University Ave. New EPILEPSY SUPPORT GROUP in Utah County!

April 12, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2 in the Doty Education Center.

April 18, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

April 25, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

Coming Soon Educational Seminar with Dr. Angela Peters, Dr. Blake Newman, & Dr. John Rolston. This free educational seminar will discuss new treatment options for drug-resistant epilepsy. Learn about new advances in neurostimultion and resective surgery. Come join other individuals living with epilepsy and caregivers.

Wednesday, April 4th, 2018
Davis County Library Auditorium
133 S. Main Street, Farmington, UT 84025
Registration begins at 6:30 p.m.
Program runs 7 – 8 p.m.

_____________________________________________________________________

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

March 2018 Newsletter

Posted on March 2, 2018 by Barbara Wilson

Marchluck The life of a survivor may not be considered lucky, but it’s made easier by knowing there are others who understand and share similar circumstances. I am a caregiver to a brain injury survivor who also has epilepsy. I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley for those involved with these health issues. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your concerns. Your luck can improve as you learn from and encourage others in like situations.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

March 13, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards. Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

March 15, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers meet on the 1^st floor conference room and the Survivors meet on the 2^nd floor conference room.

Caregiver’s topic: It Takes a Village: A Caregivers Perspective – by Chris Benda. She will share with us how she finds and uses resources available.

Survivor’s topic: Social Skills, Communication & Relationships – by Summer Rolin, Psyd. She will give ways for helping others understand your injury.

March 27, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Brain Injury Resources by Glen Lanham. Learn how the Brain Injury Alliance of Utah can help you. Please call Ryan Pello or Annie Wallace at (801) 581-2221 for questions.

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2^ndWednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

March 1, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

March 8, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. New 2018 Murray location is at the Doty Education Center – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2.

March 14, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2^nd Wednesday of the month at the Provo City Library – 555 N. University Ave. New EPILEPSY SUPPORT GROUP in Utah County!

March 21, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

March 28, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

ReadyToRoll

Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

newsletter

January 2018 Newsletter

Posted on January 3, 2018 by Barbara Wilson

Happy New Year! I hope this newsletter finds you well and satisfied with the closing of another year. A fresh start brings renewed hope for improvement. Associating with others in similar circumstances motivates progress as we learn from each other. For this reason I’ve gathered information on the upcoming month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, I encourage you to look for support groups near you. Also included are links to useful and inspiring websites. If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

January 5, 2018 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.

January 9, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share meatball subs and games together. Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

January 18, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at a new location starting this month:

IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers will meet on the 1^st floor conference room and the Survivors will meet on the 2^nd floor conference room.

Caregivers topic: Getting to Know You – A fun evening planned as we spotlight caregivers and give each one a Welcome Packet with helpful tips and inspirational thoughts plus this years meeting topic schedule.

Survivors topic: New Year’s Resolutions for a Healthy Lifestyle presented by Stephanie Obrabovich (PT)

January 23, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Trails Adaptive Sports & Recreation presented by Tanja Kari. Come learn what options are available. Please call Ryan Pello at (801) 581-2221 for questions.

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

January 4, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

January 11, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month.

New location starting this month at theDoty Education Center – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1^st floor – CR2 , Murray, UT.

January 17, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

January 24, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

NEW EPILEPSY SUPPORT GROUP in Utah County! It begins on February 15^th and will then meet on the 2^nd Wednesday of the month from 7:00 to 8:15 pm, at the Provo City Library – 555 N. University Ave.

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

Jon M. Huntsman’s Story

Posted on March 23, 2014 by Barbara Wilson

Information found on the Huntsman Cancer Institution Website:

The story is all too common: a man—a husband, brother, father, grandfather, and friend—is diagnosed with cancer. He seeks treatment, and doctors do what they can within their resources to save his life. He looks to his loved ones for support and encouragement. His cancer is treated successfully and he waits, hoping it will not recur.

While the narrative is common, it happened twice to an uncommon man: Jon M. Huntsman. Mr. Huntsman is chairman and founder of Huntsman Corporation, a multinational chemical manufacturing and marketing business with world headquarters in Salt Lake City, Utah. Through his cancer diagnosis, treatment, and recovery—which took place at top facilities across the United States—he felt a void in cancer care. “It felt impersonal, and for a disease in which treatment is often ongoing, it took place in environments that were cold and medical, places less conducive to healing.”

During his journey to recovery, Jon M. Huntsman and his wife, Karen, committed themselves to advancing cancer research and care for others, including the atmosphere in which that care takes place.

In 1995, the Huntsman family pledged $100 million to construct a state-of-the-art cancer center in Salt Lake City. Shortly thereafter, the Huntsman’s pledged another $125 million. Almost two decades later, Huntsman Cancer Institute and Hospital is world-renowned. The individualized care patients receive from multidisciplinary teams of doctors, nurses, radiation therapists, and pharmacist’s helps heal their bodies. Social workers and support groups help patients keep their spirits strong, and a wellness program helps them maintain fitness and good health with diet and exercise appropriate to their condition during treatment and beyond.

Huntsman Cancer Institute’s mission is to understand cancer from its beginnings, to use that knowledge in the creation and improvement of cancer treatments, to relieve the suffering of cancer patients, and to provide education about cancer risk, prevention, and care.

*****************

It seems as though cancer touches every life, if not personally, then through a family member or friend. Nobody wants to hear the “C-word” diagnosis, and when I first heard my daughter Katie had it, I was filled with fear. I realize thyroid cancer is less serious than many other kinds of cancer, but it’s still alarming especially when it’s spread to lymph nodes. It’s comforting to know Katie is getting treatment at one of the best facilities.

I’m so impressed with the doctors, nurses and the beauty of this facility. I’m grateful for Mr. Huntsman. His generosity and passion for finding a cure for cancer made me curious about what drives a billionaire to donate so much of his wealth to this cause. My research only made my admiration grow for this man. His donations of more than $1.2 billion made him dropped from the “Forbes 400” in 2010. The world has 1,200 billionaires and he is one of only 19 to have donated more than $1 billion. What a remarkable man!

While researching I came across this six minute interview, published on Nov 30, 2012. Jon Huntsman Sr. talks about his childhood growing up broke in Blackfoot, Idaho and how his goal now is to find a cure for cancer and die broke doing it.

Other cancer survivor stories can be found on the Huntsman Cancer Institute website, “Survivor Stories”, along with lots of other helpful information on cancer.

Related Articles:

Let Go of the Things You Can’t Control

Feeling Lucky

The Benefit of Learning Centers

Feeling Lucky

Posted on March 9, 2014 by Barbara Wilson

HCI

Nestled in the beautiful Wasatch Mountains just above the University of Utah Hospital is the Huntsman Cancer Institute (HCI). The front of the hospital is nearly all windows that overlook the Salt Lake Valley. Not only is this a beautiful hospital with breathtaking views, it has great reviews. I add mine to the thousands that are already out there.

I had never been to HCI until this week. Our daughter Katie was recently diagnosed with thyroid cancer and chose to have her surgery at HCI on March 5, 2014. As we drove up to the hospital into the circular valet parking area I was immediately impressed with the appearance of the facility. It was classy, warm and inviting. It did not resemble any hospital I’d ever seen and I believe I’ve seen every hospital in the Salt Lake County. As Mark and I entered into the main lobby area it felt spacious and opened. There was a gorgeous seating area, with nice comfortable furniture, an information desk on one side and a grand piano on the other. A beautiful staircase of cherry wood and steel took you up to the next floor or you could choose to take the elevators which framed with marble. I thought I had walked it to the finest hotel in Utah.

Katie’s surgery was on the third floor. The waiting room had a beautiful view of the valley as did all six floors. The waiting room was decorated with several shamrocks hanging from the ceiling and placed on the walls by the check-in area. The shamrocks added a lucky charm to the room and I said, Katie, don’t you feel lucky to be treated in this place?” She chuckled at my question.

As Katie was checking in, I noticed a plaque “Cancer Is So Limited—It cannot destroy love. It cannot shatter hope. It cannot corrode faith. It cannot destroy people. It cannot kill friendship. It cannot suppress memories. It cannot silence courage. It cannot invade the soul. It cannot steal eternal life. It cannot conquer the spirit.”

I showed it to Katie, inspired by the sentiment that cancer cannot take away what’s most important. As we sat for a few minutes waiting to be called into the surgical waiting room, I decided it was the perfect time to give her my gift. She laughed as she unwrapped the gift and stated it was the coolest T-shirt she’d ever seen. Back in the surgical waiting room I laid the T-shirt over her blankets so the good luck charm would influence her and the doctors. She was a good sport about it and it made a fun conversation piece for the long wait.

The surgery went well, however the cancer had spread to at least two lymph nodes, so those were removed with several others that surrounded the two infested lymph nodes. It was almost a three hour surgery with another hour in recovery before she was wheeled into her room.

What a welcome sight she was for Eldin, Mark and I. It seemed like we had waited forever. Her color was good along with her spirits. She was relieved as we all were that the surgery was behind her now. The nurses were as wonderful as the doctors. They welcomed her to Hotel Huntsman with narcotics and took very good care of her. The following day she was released to come home.

The rooms were spacious and comfortable. Check out the beautiful molding in the bathroom. There is also molding around the ceiling. What an amazing place to treat a dreadful disease. Thank you, thank you Jon Huntsman Sr. for a beautiful facility and a caring staff. You are one of my heroes for doing an awesome job. I’m feeling lucky for my daughters successful surgery!

Related Articles:

Let Go of the Things You Can’t Control

Jon M. Huntsman

The Benefit of Learning Centers

Cindy’s Story of Faith and Hope

Posted on March 2, 2014 by Barbara Wilson

Written by, Glenn Oliver

Cindy was diagnosed with lupus in 1983 at the age of sixteen. She had many flare-ups during her high school years, which meant she spent a lot of time in the hospital recovering. At age twenty she met me (Glenn) and eleven months later we were married. I knew of Cindy’s medical condition before we were married and knew I could handle it. My mother had severe MS (multiple sclerosis) while I was growing up. My siblings and I did most of the cooking and cleaning, so I grew up quickly and understood about health problems.

Six months after marriage Cindy had a grand mal seizure and the lupus had shut down her kidneys. She was on dialysis for eight months.The kidney doctors were very negative about the kidneys ever working again on their own. Our faith helped us feel positive and Cindy’s rheumatologist, Dr. Daniel Clegg, told us when the lupus shuts down the kidneys many times the kidneys will start functioning again. We felt strongly this would happen. After seven long months we saw signs through Cindy’s improved blood work that the kidneys were returning, but the kidney doctors told us this meant nothing. They told us to get used to dialysis because she was going to be on it for a long time. About a month later Cindy was off dialysis. Even then the doctors warned she’d be right back on it. We understood they didn’t see this happen too often so it was hard for them to realize Cindy was an exception to the rule. We knew she was coming off dialysis for good.

We also learned that when the lupus shuts down the kidneys the lupus goes dormant. During this time we talked about having children. Because pregnancy would be hard on Cindy’s kidneys and they would have a good chance of failing again, we decided to adopt. We have been blessed with three beautiful children. Zach is seventeen, Kade is fifteen and Olivia is nine years old now.

After sixteen years of the kidneys working at partial function, the doctors determined Cindy needed a kidney transplant.The blood work indicated the kidney function was deteriorating and the medicine to help the kidney function may hurt her health. Cindy’s brother Troy volunteered to donate his kidney and was a match. April 25, 2006, Cindy had the transplant and the operation was a success. Both Cindy’s and Troy’s kidneys are doing great after eight years. We are so grateful for Troy’s willingness to give his kidney to Cindy.

On September 3, 2006, about four months after the kidney transplant, Cindy became very ill. She was having headaches for a few days and started to be confused so we took her to Emergency. The doctors thought that Cindy had Meningitis, but the test came back negative. They tested for West Nile Virus and it came back negative. She couldn’t recognize certain things, so they admitted her into the hospital. She had a fever they couldn’t reduce. Cindy had another seizure and went into a coma. They began giving Cindy antibiotics first, but since she wasn’t improving they gave her high doses of steroids. The doctors weren’t sure she was going to make it. After a priesthood blessing by Cindy’s Bishop, she took a turn for the better.

Cindy woke up from her coma after a week of steroids. She communicated with her eyebrows. She could lift them when we asked her yes and no questions. A month later they tested her again for West Nile Virus, and this time it came back positive. The doctors realized the immune suppressant drugs prescribed for her kidney were masking the prior test result, a learning experience for the doctors.

During the time Cindy was in ICU, I was still trying to work. It became very difficult so I decided to take a leave of absence for a few months while we determined what was going to happen to Cindy. Her family and I were constantly with her at the hospital. We also had 3 children at home that needed care. Olivia was only 1 ½ years old. The family split up the time and made sure everything and everyone was taken care of. We made a schedule of who was at the hospital and who was taking care of the children. Cindy’s sister, Michelle, helped a lot, as well as my sister, Colleen, and several friends helped as well. We truly appreciated our family during this time of need.

We thought at the beginning Cindy would take only a few weeks to get better. But when she woke up from the coma and the tubes were finally taken out, we realized she couldn’t speak or walk. The West Nile Virus went to her brain and affected all of her motor skills. She had to relearn to speak, walk, write and eat. Cindy was in the University of Utah Hospital for two months and went to Physical Therapy Rehab there for another few weeks. She couldn’t do the rehab they wanted because she was too weak. She was then transferred to South Davis Community Hospital, where she got strong enough to begin her therapy. Cindy met Louise Jarvis, her PT (physical therapist), who was a life saver. She also had Jen Bangs for OT (occupational therapy) and they became good friends. Jen moved out of state, but they still stay in touch through Facebook.

Cindy was at South Davis Community Hospital for six weeks making her total hospital stay over four months. She continued her therapy as an outpatient until Louise retired, and now Louise comes to our home to help Cindy. We feel very blessed to have wonderful therapist who have helped Cindy progress.

When Cindy came home from the hospital she was in a wheelchair, couldn’t walk or talk well and we helped her with her meals. We noticed friends that were not used to medical problems stayed away. This was hard on Cindy because she lost a few of her good friends.

Louise is still working with Cindy to this day, after eight years of therapy. Cindy’s speech, writing, eating and all the things you do daily have slowly come back. She went from a wheelchair to a walker and then to a cane. Now she can walk without a cane around the house, but has a problem with her balance. She uses the walls and railing to steady herself. She does fall once in a while, but she gets up and brushes it off. When we go out she holds on to me. She is amazing. Even the doctors are impressed with her abilities. The kidney has been working great through all of this and we feel the transplant saved her life.

This has been a life changing experience for both of us. I quit my job and work at home so that I can be with Cindy and the children now. Cindy cannot drive and needs help with things that have to do with balance—like trying to carry things as she walks. She still has hope she will walk one day completely on her own. She can do most everything else.

I love Cindy so much. I would never leave her. My father stayed with my mother when she was ill. He was a great example of sticking through hard times. I have seen men leave their spouses because of their health problems. I know that some men could not handle everything we have gone through which is sad. Those men missed out on something that needs to be learned in life. It’s not all about yourself—it’s about serving others. Cindy has gone through a lot in her lifetime. She is strong even though sometimes she feels she is not. She is a fighter and that is why she has done so well with all that has happened to her. I feel blessed I am healthy enough to be a helpmate for Cindy in all we need to do as a family. Life is good now.

Thank you Glenn for sharing your story. What a great example you are to me! I appreciate how positive and strong you and Cindy are.

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Tag Archives: University of Utah Hospital

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