July 2019 Newsletter

The summer weather brings lots of great outdoor activities. Warm evenings are a perfect match for enjoying outdoor concerts, a picnic and this month the dark sky often lights up with colorful fireworks. Morning bike rides are an excellent way to start the day. Thanks to the University of Utah and their TRAILS cycling program, Mark had his first bike ride in over twenty-eight year.

We appreciate the opportunities in our state that assist us in kayaking, sailing, and biking. Tanja Kari, Program Administrator of the TRAILS Paralympic Sports Club is eager to make it all possible. She is enthusiastic and seemed to enjoy the challenge of getting pedals and straps that fit Mark’s abilities to make his ride enjoyable and successful. Working with her and the TRAILS team is a pleasure.

We are looking forward to their overnight camp at East Canyon State Park this month. They are a caring and fun group of people to be with. If you are interested in joining us or want more information concerning their programs, contact Tanja Kari at tanja.kari@hsc.utah.edu or call 801-428-9815. They also have scheduled weekday kayaking and sailing opportunities this month along with a cycling program which includes road and mountain biking. Indoor spinning happens in November through February. Cross country and downhill skiing start as soon as we have enough white on the ground. These programs feature the latest equipment and are staffed by specialized professionals and volunteers.

How do I find out about programs like this? I go to as many of the support groups as my time will allow. Friends and facilitators found in these groups are a wealth of knowledge. We gain valuable information through collaborating and associating with others in like situations. We’re grateful for people who understand and desire to strengthen our abilities to meet our challenges.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. It seems like summer creates never ending yardwork on top of all other duties. Making time to enjoy outdoor activities with others is refreshing. I hope you’ll join us for a bike ride, kayaking or sailing excursion. It feels great to have a break from the daily grind and the exercise is a bonus to the fun. We’re excited for the overnight camp this month. Living with the effects of a severe traumatic brain injury and epilepsy helps me understand that every day is a bonus day and we need to take advantage of pleasurable opportunities to make the most out of life.

The purpose of this newsletter is to share information about organizations which I know about in hopes to help you. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

Utah Valley Aphasia Choir is cancelled this month. Usually we meet at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. August 1st will be our next meeting for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

Utah Valley Brain Injury Support Group is also cancelled this month. Usually we meet at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​This month both the Aphasia Choir and Support Group is cancelled due to the July 4th holiday. For questions call Lori Johnson at (801)422-9132.

July 9, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a summer salad bar for dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

July 11, 2019 – IMC Caregivers and Survivors Education and Support Groups, normally meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1. However, this month the caregivers and survivors combine for a summer picnic at Snowbird with Wasatch Adaptive Sports at 5:30pm on the 2nd Thursday. Sandwiches and paper goods provided. Bring a side dish or dessert to share. Free tram rides & trail hiking to the observation deck. PLEASE remember the change in location and time this month only: 9385 S. Snowbird Center Drive, Snowbird, UT 84092.

University of Utah Brain Injury Support Group is cancelled this month. Usually we meet at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. See you in August. For more information please call Annie Wallace at (801)581-2221 Due to the Utah State Pioneer Holiday.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Logan Epilepsy Support Group for All has been canceled due to Independence Day. Usually they meet from 7 – 8 pm on the 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341.

July 10, 2019 – Provo Epilepsy Group for All, meetsat7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

July 11, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

July 17, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

July 25, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

June 2019 Newsletter

Welcome Summer! It’s been an extra wet Spring and I’ve been grateful I haven’t needed to do any watering yet this year. Everything is green and lush all by mother nature’s doing. The plants look happy and beautiful. When the sun comes out from behind the clouds, I appreciate the warmth and brightness of sunshine even more than I do in the heat of the summer. I must admit, I’m a little sad to see Spring end. I’ll have to work harder to keep the yard looking good and I’ll probably take the sunshine for granted.

Yardwork is a good outlet for me. I enjoy being outside, hearing the birds sing, and creating a garden. When I plant from seeds, it’s exciting and rewarding when they start to sprout. Those delicate new plants take extra care and thinning out is sometimes necessary. Even when I put in the ground a plant that has been nurtured in a commercial greenhouse, I need to continue with care so it can adjust and thrive in my garden.

Caregiving is similar. Doctors, nurses and therapists give our loved ones the necessary care to survive or sprout in a new situation. Once a survivor is home, it’s up to family and friends to nurture and help them adjust in unfamiliar ground or circumstances. Often the success of growth comes from the encouragement and support of others.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. Caregivers need encouragement and help from others too. I’m grateful for many support groups in our valley, and we benefit from our association with them. We gained valuable information through collaborating with others in like situations.

Living with the effects of a traumatic brain injury and epilepsy is hard. The purpose of this newsletter is to share information about organizations which I’ve found helpful. If you are a caregiver for a survivor of another physical or mental illness, I encourage you to find assistance through organizations that catered to your circumstances.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

June 6, 2019 – Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

June 6, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic after the Aphasia Choir. ​ Address: 1190 North 900 East, Provo, UT 84060. For questions call Lori Johnson at (801)422-9132.

June 11, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and crafts this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

June 20, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month Jon Pertab, PhD specializing in Neuropsychology will be speaking. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

June 25, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, usually at Sugarhouse Health Center. However, this month, we’ll meet at the TRAILS House to explore and try out different adaptive equipment and enjoy a BBQ. Please RSVP with Annie Wallace so she can get an accurate head count for food.

PLEASE remember the change in location for this month only. Trails Adaptive Sports, Imaging and Neurosciences Center in Research Park. Address: 729 Arapeen Drive, SLC, UT 84108. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

June 6, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341

June 12, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT. A NeuroPace representative will speak on the new RNS system and answer questions.

June 13, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center. Dan Brown, NeuroPace representative will speak on the new RNS system and answer questions.

June 19, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

June 27, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:


ACTIVITIES TO DO WEBSITES:


SHARING WEBSITES:


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.