July 2017 Newsletter

July fireworksThe effects of brain injury vary and can be complex. Putting the puzzle together is easier with the help of others. For this reason I’ve gathered pieces of information on this month’s support groups and therapy services offered in the Salt Lake Valley. July starAlso included are notes from last months meeting’s in case you missed it and upcoming events to mark on your calendar. I have listed links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


reminder

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

July 11, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This is a social group where dinner is enjoyed together and then games played or crafts made. All caregivers and survivors are welcome. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

July 20, 2017 – Intermountain Healthcare Support Group meets every 3rd Thursday monthly usually at (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107. This month the Caregivers and Survivors will combine for the annual summer picnic at 5:30-8 p.m. This year Wasatch Adaptive Sports is hosting at 9385 S. Snowbird Center Drive, Snowbird, UT 84092. There will be free tram rides and fishing! Intermountain will provide sandwiches, water, and paper goods. Please bring a side dish to share.

July ClipArt

July 27, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


Please Note
FREE WEEKLY GROUPS

offered through

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

July heartEpilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

July 6, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

July 13, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

July 19, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

July balloons

July 26, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Wednesday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

July 27, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)


Missed6

JUNE’S MEETING NOTES FOR:

THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS, located at the Sanderson Community Deaf Center, 5709 South 1500 West, Murray, UT 84107. Met Tuesday, June 13, 2017, we had a luau. The Hawaiian feast was delicious as we enjoyed visiting about our individual summer plans. After dinner there were some activities available, while others choose to visit. Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.



SURVIVORS AND CAREGIVERS EDUCATION, located at Intermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107.

Caregivers met in the conference room on the 7th Floor and received tips from Kerrie Neu on how to replenish, recharge and renew. She shared with us what has worked for her and other caregivers she interviewed. The presentation was helpful in igniting ideas to meet our personal needs. For more details, click on the green links.

fun in sun

Survivors met in the conference room on the 9th Floor. Thanks Greg Nordfelt for sharing your notes.

The topic was Fun in the Sun, presented by Wasatch Adaptive Sports. Jake Thelen, Program Specialist, introduced their programs and said they focus on increasing independence and mobility in a social environment. They believe in the development of ability and active living through recreation for individuals with adaptive needs and their families. Through personalized assessments and instruction, along with adaptive equipment, they work together to achieve your goals and experience the outdoors without limitations.

Wasatch has three rehab physicians, three physical therapists and up to 30 event employees and therapists to assist in events as needed.  Jake said they keep participant to therapist levels as close to one to one as possible so that survivors are protected and have an absolutely wonderful experience with their activities.

Jake said they have never had a participant not be able to perform the activity they’ve been approved to participate in! Wasatch Adaptive Sports serves approximately 800 to 1,000 survivors per year.

Wasatch have a special relationship with Snowbird and their headquarters is located at 9385 S Snowbird Center Dr, Snowbird, Utah 84092. They have access to a fishing pond at Snowbird that is one of their most popular sites. They also provide activities during each week at Jordan River Parkway, Provo, Liberty Park and Sugarhouse Park.

Jake agreed to host our combined TBI Survivor & Caregiver Support Group annual summer picnic in July and have an activity at the headquarters at Snowbird Utah (instead of a local park in Salt Lake where or annual summer picnics are usually held). This was a very gracious offer and we were all very excited to change venues this year!

For more information see Wasatch website: wasatchadaptivesports.org


University of Utah Brain Injury Support Group, located at Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106. They met Wednesday, June 27, 2017 at 7pm. Christina Derbidge, Ph.D gave the presentation on the grieving process. Unfortunately, I missed this group and hearing the advice, tips and support on this important subject. I wish I could have been there and able to share some notes.


Upcoming Events

BIAU Family & Professionals Annual Conference

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041


Bright Ideas

                              HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops

SHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


Thank you for reading

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

If you wish to discontinue send a statement, “Unsubscribe to Newsletter” and I will remove your email address.

The Recharge Button

Overwhelmed1On Tuesday, I shared part of Kerrie Neu’s address on A Caregiver’s Button Box. Taking time for ourselves to recharge helps us cope with stress and increases our ability to handle the challenges. The recharge button is whatever brings you joy, helps you feel nourished and engaged.

My favorite tips from the presentation were:

1. Exercise increases endorphins to help you stay positive and happy. It may be as simple as a walk around the block, or may need to be a workout at the gym. Going on a bicycle ride with a friend is a mini vacation for me.

2. Doing something creative brings growth and change. The enjoyment can cause us to get lost in the experience. For Father’s Day, I wrote an article Daddy’s Girl.  I started it after I got Mark into bed. I admit it was later than it should’ve been. I was so engrossed in the memories, words and looking for the right pictures that before I realized how much time had passed, I heard birds chirping and noticed the sun chasing the darkness away. It took me by surprise. I had worked on the article through the night and didn’t once notice the time. I’m not recommending, or plan on repeating such an event, but I recognized how much I relish in writing. I may need to set a timer to keep me from repeating the incident.

3. Each of our needs are different. What brings joy to one, may bring stress to another.

Shoe fit

4. When life circumstances change, we may need to modify our recharge buttons.

Change

5. For more ideas that may refresh and replenish us, Kerrie shared information she found on Twilight InsightThis is an enlightening website for anyone dealing  with traumatic brain injury. Click for instant ideas on selecting a hobby, where to go for hobbies or, a list of hobbies, and more.

6. More great websites to checkout:

Websites

Websites2

JoyThanks, Kerrie Neu, for the great pointers.

I’d like to know, what brings you joy and recharges you?

 

 

A Caregiver’s Button Box

Do you need ideas on how to replenish, recharge and renew as a caregiver? This month at our caregiver’s support group, Kerrie Neu  gave us lots of ideas. She agreed to let me share them here. With her 19 years of caregiving experience she discussed how to find joy among the challenges. Recognizing that every situation is different, these are some of the points she talked about.

noone@graniteschools.orgWritten by Kerrie Neu

“Just like my grandmother’s button box, we have to find the right button that fits the situation.  What may fit with one person may not fit another. Don’t feel guilty if you try something that other people like to do, but it just doesn’t bring you joy.  It’s okay.  I once attended a quilting class that many of my friends love.  I see their excitement and love their quilts.  However, the first month I went I stressed so much about trying to get my block ready for the next month, that I finally realized this was causing me more stress than joy.  For me, it was not the right button. Instead of acting like Cinderella’s wicked stepsisters who tried to make the glass slipper fit, we can simply find another shoe. We don’t have to fit the shoe in order to find joy and a happy ending, we can find the shoe that fits us and our situations.

escape​Let’s talk about some buttons then. First of all, Brenet Brown talks about buttons we have to be careful of. These are the easy buttons or escape buttons that we use to numb and not think about stress. Often they are self-destructive and don’t replenish us. We may think they momentarily help us forget or be happy, but in the end they usually don’t. For me, one of those escape buttons is TV binge watching. I find when I binge watch I ended up becoming cranky with my family. The TV shows themselves aren’t bad, but what I do with them does not nourish me. So I have to be careful of how often I use those easy buttons.

Neu CarsOn the flip side, Brenet Brown talks about reset buttons, or what I called recharge buttons. These are things that we can do to recharge and replenish ourselves. As caregivers these are critical in order to help us be able to continue to give to our loved ones. We talked about the lesson learned from Lightning McQueen in the movie Cars. When he chose to skip his pit stop in the race at the beginning of the movie, he suffered the consequence in the last lap when he blew two tires and ended up at the finish line with his tongue hanging out and his car in sad shape. He had to learn the lesson of working with others and taking time for maintenance. As caregivers, we must regularly take time to find joy and renew ourselves.

There are many ways to recharge. Sometimes we can do little things that only take moments like drinking a glass of water, breathing, watching wildlife, enjoying nature, watching a child, or reading a poem or inspiring quote. Other times we carve out a little more time to connect with a friend, take a walk, play a game, read a book, or create something. Periodically, it’s also good to plan for some extended time to get away and visit with family, attend a conference, or take a vacation. It’s important to find a balance in our life because we cannot give from an empty cup.  ​

Nue Bike TourOver the last 19 years, we have explored many things to see what brings us joy.  Some of our explorations were quite successful, like our bike trip to the Hiawatha Trail in Montana. Others were not so successful, like our bike tour of London.

Nue Bike Tour 1In each case, though, we learned something important and kept exploring. Never give up. Just this year we discovered that Laurent loves to listen to audio books and to do puzzles. Sometimes it takes a little thought, creativity, and extra planning to be able to do something with the one you’re giving care to, but in the end it is so worth it.

Neu Joy​Wes Stafford, former president and CEO of Compassion International said, ‘Joy is a decision, a really brave one, about how you are going to respond to life.’ Life’s hard. Choose joy anyway.”

My take away from this presentation is to be mindful of the escape, easy or numbing buttons which take me nowhere. Instead, look for the creative buttons that replenish, recharge and renew me as a caregiver. The buttons which work for me may be different from the buttons that work for you. What activities bring you joy? Writing is one of mine.

On Thursday, I will post more ideas Kerrie shared with us. You are bound to find some new buttons to try. 

To see the full presentation slides, click here.

To read more from Kerrie Neu see neusounds.com

 

 

June 2017 Newsletter

The effects of brain injury vary and can be complex. Putting the puzzle together is easier with the help of others. For this reason I’ve gathered pieces of information on this month’s support groups and therapy services offered in the Salt Lake Valley. I also included notes from last months meeting’s in case you missed it. Check out the upcoming events and mark your calendar for the BIAU Annual Conference. Also included are links to useful websites. If you have an activity, announcements or other information you’d like to share in this newsletter, please email Barbara@UnitingCaregivers.com.


reminder

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

June 7, 2017 – Aphasia Support Group at 7:00 p.m. Meets the 1st Tuesday monthly at Brookdale, 76 South 500 East, SLC, UT. (Parking in the rear of the building.  Enter from 100 South.)

Topic: Vision Disorders and Treatment after a Stroke by Jennifer Thomas, OTR/L Occupational Therapist. For more information, please contact Christina Nessler (801) 582-1565, Extension 5379 or Kiera Berggren (801) 585-9717.

June 13, 2017– Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This is a social group where dinner is enjoyed together and then games played or crafts made. All caregivers and survivors are welcome. For more information call: Jennifer (801) 386-2195 or Beth (801) 585-5511.

June 15, 2017 – Caregivers and Survivors Education Group will meet separetly this month, 7-8 p.m. Meets every 3rd Thursday monthly at Intermountain Medical Center (IMC) 5171 S., Cottonwood St., Bldg. 1 Murray, UT 84107.

noone@graniteschools.orgCaregivers Meet in the conference room on the 7th Floor. Topic: A Caregiver’s Button Box, Finding Ways to Recharge, Replenish and Refresh. Start thinking of the little things that bring you joy to be able to share with each other.

Our presenter, Kerrie Neu’s husband, Laurent, is a brain injury survivor from a motorcycle accident in 1998. Kerrie will share ideas on ways to recharge and nourish ourselves. Helpful insights come from nineteen years of experience as a caregiver and a mother of two children, who were small at the time of the accident. She works for Granite School District as the Dual Immersion Specialist, coordinating and coaching teachers in Spanish Immersion, and is working on her Master’s degree in Spanish Language Pedagogy (teaching methods).

fun in sun

Survivors Meet in the conference room on the 9th Floor.  Topic: Fun in the Sun, presented by National Ability Center. Come learn what adaptive sports are available.

June 27, 2017 – University of Utah Brain Injury Support Group 7 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Call Ryan Pello for questions at (801) 581-2221


Please Note
june-clipartFREE WEEKLY GROUPS

offered through

INTERMOUNTAIN HEALTH CARE NEURO THERAPY SERVICES

Aphasia Talking Practice Group – Meets every Tuesday Noon-1 p.m. 5770 South 250 East #G50

­­­­­­­­­­­­­­­Meditation Group – Meets every Wednesday 3 p.m. 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Epilepsy

Epilepsy Groups for those affected by seizures.

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

June 1, 2017 – Epilepsy Group for Parents 7:00 p.m.-8:15 p.m. Meets every 1st Thursday of the month Riverton Library Auditorium 12877 S. 1830 W., Riverton, UT.

June 8, 2017 – Epilepsy Group for All Effected by Seizures 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month Intermountain Medical Center (IMC) 5171 S. Cottonwood St., Bldg. 1, Ninth Floor, Murray, UT.

June 21, 2017 – Epilepsy Group for All Effected by Seizures 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

June 22, 2017 – Epilepsy Group for Women Only 7:00 – 8:15 p.m. Meets every 4th Thursday of the month SLC Main Library 200 E. 400 S. (3rd floor conference room)

newJune 28, 2017 – Epilepsy Group for Teens 7 p.m. Will meet the 4th Wednesday monthly at the West Jordan Library, 8030 So. 1825 W., West Jordan, UT. There will be two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


Missed6
THE BRAIN INJURY ALLIANCE SUPPORT GROUP for ADULTS MEETING NOTES

Deaf CenterSanderson Community Deaf Center located 5709 South 1500 West, Murray, UT 84107

Tuesday, May 9, 2017, we had a great time at the horse races with paper money. Thank you Jennifer Gee and Beth Cardell for doing a great job directing this group. For more information call Jennifer (801) 468-0027 or Beth (801) 585-5511.


Intermountain Medical Center 5171 S, Cottonwood St., Bldg. 1, Murray, UT  84107

SURVIVORS AND CAREGIVERS EDUCATION MEETING NOTES

Matt-Head-Shot

Thursday, May 18, 2017, Matt Townsend gave an entertaining and poinent presentation on relationships.

We all want loyalty, happiness and honesty in a relationship. To feel joy and peace in a relationship we must feel:

  • Safe – including physical, financial, mental, emotional, social and spiritual safety
  • Trust – consisting of honesty and competence
  • Appreciation- hearing or seeing words of approval (remember it takes four positives to ease one negative comment)
  • Respect – showing through words and deeds
  • Validate – hearing what is said to understand without having to agree
  • Encourage – getting into the heart of your loved one and doing what you can to help them reach their goals
  • Dedication – committing to your relationship and making them feel more important than any place or thing.

Matt said trauma or health issues are the number one way to expand in these areas. We don’t grow unless we are pushed. We learn through our challenges.

For a full synopsis of what I learned from Matt and a YouTube video, see my article, The Starved Relationship, or https://unitingcaregivers.wordpress.com/2017/05/25/the-starved-relationship

Dr. Matt Townsend has many podcast, YouTube videos and sponsors The Matt Townsend show on BYUradio. Entertaining insights on improving relationships for free. He’s also founder the the Townsend Relationship Center. For more information see Matt’s Website: http://matttownsend.com/


MassageUniversity of Utah Brain Injury Support Group located at Sugarhouse Health Center 1138 E. Wilmington Avenue, SLC, UT 84106.

Wednesday, May 23, 2017 topic was on the Benefits of Massage given by Molly Sullivan, LMT. Ryan Pello organizes this meeting. If you have questions by call (801) 581-2221.


Upcoming Events

BIAU Family & Professionals Annual Conference

Date: Friday, October 13, 2017

Time: 8am – 5pm

Place: Davis Conference Center, 1651 No. 700 W. Layton, UT 84041


Bright Ideas

                              USEFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing Laptopsstories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


Thank you for reading

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

If you wish to discontinue send a statement, “Unsubscribe to Newsletter” and I will remove your email address.