March 2020 Newsletter

During your busy day, do you think about all that your brain does to get you through it? It controls everything you say, feel, and do. Through your brain, you experience emotion. It keeps you alive through breathing, circulation and digestion. It controls your hormones, and the immune system. It’s responsible for your urges, ideas and the way you think, even the reason why on some occasions, you don’t think, but act instead.

This incredible organ of soft tissue, weighing less than three pounds contained in our skull is largely taken for granted. Yet it functions as a primary receiver, organizer, and distributor of all information for the body. We usually don’t think about all the brain does, until an injury occurs or malfunctions.

Washington, DC reports every 11 seconds someone in the US sustains a brain injury.

There are two basic types of brain injury:

Traumatic Brain Injury (TBI) is caused by an external force, a blow or jolt to the head. Common causes include motor vehicle crashes, falls, sports injuries, assaults and gunshot wound to the head. Injuries range from mild concussions to severe permanent brain damage.

Acquired brain injury (ABI) is caused by internal factors, such as a lack of oxygen supply due to near drowning or heart attack. It can also include infectious diseases, a brain tumor, exposure to toxins, aneurysm or stroke. The brain injury will range from mild to severe.

Remember you only get one brain. Unlike the liver, kidney or heart, no human brain transplant has ever been done. Your brain can’t be replaced like a hip, knee or shoulder. Nor fixed like a broken bone.

Since 1991, we enjoy many friendships of all types of brain injured people with varying degrees of damage. We gain valuable information through meeting with others in like situations. I’m grateful for the people we meet in our support groups. Their encouragement helps me meet our challenges. The experience and knowledge shared is both beneficial and uplifting.

My hope for this newsletter is to share information about organizations which help people with a brain injury and their caregivers. I’ve included information relating to epilepsy because TBI and ABI can cause epilepsy. My husband, Mark had his first seizure seven years after the car accident. He was diagnosed with epilepsy as a result of his brain injury.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email.


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

March 5, 2020Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

March 5, 2020Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. Join us for an Adaptive Yoga Night, taught by Abigail Atkinson. For questions email byutbigroup@gmial.com or call (801)422-9132.

March 10, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

March 19, 2020IMC Caregivers and Survivors Education and Support Groups, meets at 7 – 8 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1. This month survivors & caregivers willmeet together on the 9th floor Neuroscience Conference Room. Natalie Caldwell, MS,CCC-SLP is presenting Ground Rules for Communication with Those You Love. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.

March 24, 2020University of Utah Brain Injury Support Group meets at 6:15 – 7:15 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. This month they are hosting Molli Baker from Molli Dogs, a service dog training academy. She will be talking about therapy, emotional support, and service animals. For more information please call (801)581-2221 or email Kelsi.Schiltz@hsc.utah.edu.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Adaptive Yoga – Meets every Wednesday, 4 p.m. at 5770 South 250 East, Gym

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.

For more information contact Margo at (801)455-6089 or Utah@efa

March 11, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

March 12, 2020 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

March 18, 2020 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)

 Two of my favorite websites. What are yours?


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.


February 2020 Newsletter

Happy Valentine’s Day! At the start of this month I had a nasty cold which zapped my energy. While sick I took the opportunity to watch the new Aladdin movie. My favorite scene was when Aladdin surprised the princess by appearing at her balcony on a magic carpet. He persuaded her to take an enchanting ride. I related to their mutual attraction and it took back to the happy time when I first met Mark.

We were on a double date. I had been on a few previous dates with Mark’s co-worker, but when Earl invited me on this date with his friends from work I had no idea how my world would change. Of course on this night Mark was with another gal. I couldn’t stop looking at him and I caught him looking at me too. The attraction was real, and alarming since I kept wishing I was with my dates friend.

The songwriters, Alan Menken and Tim Rice brilliantly reminded me of how refreshing and magical new love feels through A Whole New World:

I can show you the world
Shining, shimmering, splendid
Tell me, princess, now when did
You last let your heart decide?

I can open your eyes
Take you wonder by wonder
Over, sideways and under
On a magic carpet ride

A whole new world
A new fantastic point of view
No one to tell us no
Or where to go

Or say we’re only dreaming
A whole new world
A dazzling place I never knew
But when I’m way up here
It’s crystal clear
That now I’m in a whole new world with you

For me, that new world started Forty-three years ago. My mind raced through the highlights of marriage and adding two incredible children to our union, and how they increased depth and value to our world. 

Now I’m in a whole new world with you
Unbelievable sights
Indescribable feeling

Soaring, tumbling, freewheeling
Through an endless diamond sky
A whole new world
Don’t you dare close your eyes

A hundred thousand things to see
Hold your breath – it gets better
I’m like a shooting star
I’ve come so far

I can’t go back to where I used to be

The phrase, “I can’t go back to where I used to be,” hit me hard and in that sentence the joyful feeling I’d experience turned to sadness. Numerous times I’ve wished I could go back, before our life changing car accident. To feel unstoppable. To feel like I had some control of the ride.

Just as I had the thought, I notice Jasmine and Aladdin were no longer steering the carpet. The songs tempo and ride slowed down and the two of them were coasting, enjoying wherever the magic carpet was taking them.

A whole new world

Every turn a surprise
With new horizons to pursue
Every moment red-letter
I’ll chase them anywhere
There’s time to spare
Let me share this whole new world with you

A whole new world
That’s where we’ll be
A thrilling chase
A wondrous place
For you and me

Mark and I never dreamed of the realm we ended up in. Most turns are a surprise, and there continues to be new horizons to pursue. It’s a chase alright and most days I wouldn’t call it thrilling. At our age, it no longer feels like there’s time to spare, but I’m still grateful we’re sharing this world together. Although it’s not the creation we anticipated, it is a wondrous place!

I gain much support and help through meeting with others in like situations. They help make sense of this new world. I’m grateful for friendships made in these groups and their encouragement helps me meet challenges. The experience and knowledge shared is beneficial and uplifting.

The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

February 11, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner, crafts or games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

February 20, 2020IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. Brainstorming, will be led by Candace Floyd, University of Utah.

Survivors meet on the 9th floor gym. Mark Fox, MS, CCC-SLP, will be present Tools for Success. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.

February 25, 2020University of Utah Brain Injury Support Group meets at 6 – 7 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. Sarah Gallant and Ally Cayas are over this Support Group. For more information please call (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.

For more information contact Margo at (801)455-6089 or Utah@efa

February 12, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

February 13, 2020 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

February 19, 2020 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

The Logan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)

 Two of my favorite websites. What are yours?


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.

January 2020 Newsletter

Hello 2020. The sheer numbers sound like perfect vision. I hope the year generates clarity as we approach life and situations.

A new year, a new decade, new goals, and a new word to motivate, brings renewed hope for improvements. I like to pick one word to direct my thoughts and efforts in reaching my goals throughout the year. Last year my chosen word was “simplify”. I strived to eliminate physical clutter from my life by getting rid of items I no longer need or use. I attempted to relieve mental clutter by accepting situations I can’t change. I worked at being realistic and straightforward about what I could accomplish without being overwhelmed. New projects I took on in a simple, less complicated way. I tried to shorten my to do lists because it’s impossible to accomplish everything I want to. I made mistakes and learned from most of them. Overall, I believe I made progress at simplifying my life. Fortunately, I have a lifetime to further my improvements.

This year my chosen word is “focus”. It seems like the ideal word for 2020, since the digits themselves state that I should be seeing more clearly this year. I will do my best to concentrate my efforts and thoughts on the people and things that matter the most to me. Writing down what I need to do and when it needs to be done will help keep my focus centered on what’s most important. Judging by experience, it won’t be a flawless year, but I’ll give my best shot at enhancing my focus.

The effects of brain injury, epilepsy and caregiving is a focal point in our life. I gain much support and help through meeting with others in like situations. I’m grateful for friendships made in these groups and their encouragement helps me meet challenges. The experience and knowledge shared in these gatherings is beneficial and uplifting.

The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.

Have you picked one word to motivate and direct your efforts through this new year? If so, I’d like to hear it and know why you chose it.


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

January 2, 2020Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

January 2, 2020Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

January 14, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

January 16, 2020IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. The discussion will be lead by Kim Coletti, MS,CCC-SLP on What to do When Your Loved One Refuses Treatmant.

Survivors meet on the 9th floor gym. Hillary Brown, Tosh Pilates will be presenting Pilates for Survivors. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.

January 28, 2020University of Utah Brain Injury Support Group meets at 6 – 7 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. Sarah Gallant and Ally Cayas are over this Support Group. For more information please call (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.

For more information contact Margo at (801)455-6089 or Utah@efa

January 8, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

January 9, 2020 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

January 15, 2020 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

West Jordan Epilepsy Group for Teens, is cancelled this month. If you have any questions, concerns, please contact Margo Thurman @ 801-445-6089.

The Logan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)

 Two of my favorite websites. What are yours?


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.

Goodbye 2019

At the close of another year, I wondered what I should write. There’s no vacation to share or a grand purchase. No new family member or pet added. Yet this year is too defining to ignore or forget. The year we lost our dad. What an odd phrase. He’s not really lost because we know where he is, but unfortunately, he no longer walks by our side. I miss his daily presence in our shared home. I miss discussing ideas, hopes and dreams with him and feeling his support as I set out to make them happen. I miss his direction and help. I miss cutting his hair and helping him weekly fill his pill box. Mostly, I miss hearing his voice.

I think a lot about Dad’s characteristics. My favorite must be how he taught by example to accept life’s difficult situations and make the best of it. This year I’ve tried to do just that, but I haven’t had the years of experience that he had, and comparatively I fall short. I appreciate his “put your shoulder to the wheel push along” attitude. It was most fitting that a grandchild spontaneously stood up for that song at his funeral. Many of us followed suit as his life is identified in the words and were sung as an anthem to honor him. He truly wears “the worker’s seal.” I’ve sang that song in my head more times than I can count this year as I try to “do my duty with a heart full of song,” as I push through the grief.

Dad and I

My choicest memory this year was a simple 4-wheeler ride I had with Dad just a couple of weeks before he passed in the mountains that he loved. We went to the cabin to pick up some material needed for a home project. While we were there, he wanted me to try out the new machines he just bought. I was anxious to get back home to start on the project. Without Mom’s encouragement I might not have gone. Feeling bad that Mark and Mom had to miss out on rides like this, I thought to video some of it to share with them. I drove slower than usual because I was holding my phone in one hand while driving with the other. Trying to stay out of the dust Dad was stirring up for a clearer picture, you can see him leading the way in the distance. After a bit he turns around and drives back towards me to see why I was so slow. I kept recording as we drove nearer towards each other. I always smile at the memory of my 91-year-old dad thinking I was driving too slowly. Each time I watch it I whisper, “ride on Dad,” and I feel the comfort that he is indeed still soaring through those mountains somehow, free from the health issues he continually fought, and refused to give into.

There have been many blessings this year. As my sister stated, it’s been the best and worst of times. The many family members and Mt. Aire community of friends that gathered at the canyon gate to support and comfort us before they brought Dad’s body down the mountain was indeed a blessing in those most difficult, long hours. Numerous people lined the road on both sides as the white truck drove slowly past us. It seemed like the perfect honor for his final mortal exit through that gateway. The love and support felt that night and at the funeral was the most significant gift of this year.

Since no one witnessed the collision, there were so many troubling, unanswered questions. I felt comfort the next morning as Mark and I parked in the spot of Dad’s accident, trying to figure out how and what happened. Attempting to grasp the reality, I notice a brighter than usual gleam on the evergreen trees and bushes in a spot on the mountainside across the road from the crash site. The vivid shining light seem to tell me that Dad passed away in that area of a massive heart attack, and before his truck crashed. This precious gift from God was an important reassurance, especially because I have lived with the aftermath of a life altering accident for 28 years now.

The brilliant, large evergreen trees reminded me that Dad’s love and life is everlasting.

Just as I was marveling at the view and soaking in these thoughts, a canyon neighbor driving down the mountain stopped and asked if we were okay. I told her I felt we were on sacred ground. Her reply was meaningful. She said, “This whole mountain is sacred because your dad’s hands have developed so much of it.” My perspective of the canyon is forever changed by what I’ve learned this year. Mt. Aire has been our family’s second home literally my whole life. I knew my parents loved the mountain and the people there, but I didn’t realize the magnitude of work my dad did on so many other properties. Sharing their love and appreciation for him has helped mend our hearts. Many of the cabin owners went in together to purchase a beautiful memorial bench. Mom and I worked with my daughter, Katie, to design the picture and the words written by the community on it. The engraving is completed now, but the snow is too deep to place it. We’ll have to patiently wait until May 2020.

Another treasured gift this year is a video a Mt. Aire neighbor took of my Dad giving her four year-old  “heavy-duty-equipment-obsessed son” for a ride in the backhoe he used to remove some tree stumps on their property, just a few hours before he passed away. What a tender mercy to see his smile, doing what he enjoyed, in the mountain he loved, in his final hours here on earth. This neighbor not only shared the video with us but also wrote a detailed account of the work he had accomplished for them that day and told of her appreciation for him. She could have kept these thoughts to herself, but I’m grateful she didn’t. Her letter is cherished by our family, knowing he lived and loved life to the fullest right up to the end.

Some years are harder than others. What I hope to remember about this year is the comfort and relief from grief that comes from the acts of kindness, friendships and care from others. I hope to do my part in paying it forward. I hope to never forget the importance of making memories by spending time with family and friends.

The engraved granite back rest of Dad’s memorial bench.

What are your favorite 2019 memories or your best discovered truths this past year?

November 2019 Newsletter

The switch from daylight to standard time always throws my internal clock off. It takes a week or two for me to adjust. Losing the daylight an hour earlier in the evening makes it difficult to accomplish those pressing outside jobs after work. It’s a fact, I get more of my stuff done in the evening than in the morning. At daybreak, I’m devoted to getting Mark up and ready for whatever experience life has planned for him. Since I enjoy working without interruptions, I stay up until I can’t keep my eyes open any longer. I used to fall asleep seconds after my head hits the pillow and stayed that way until the morning alarm goes off.  Consequently, I never considered staying up late as a sleeping problem but rather a necessity to get things done. However, the past couple of months have been different. I either struggle to fall asleep because my mind keeps going over unfinished tasks, or on those fortunate nights when I fall asleep quickly, I wake up after a short time. I can’t get back to dreamland because I’m worrying about silly stuff. Believe me, at 2 or 3 a.m. it’s all silly stuff and worry is such a waste of time. The sleepless nights increase my daytime stress level. I miss regular exercise, writing, and eating well planned and prepared meals. It doesn’t take long for a regrettable cycle to form. Insomnia interferes with normal physical, mental and emotional well-being, so I’m trying to improve my sleep disorder one habit at a time.

A few weeks ago, I spent 2 nights in the hospital with Mark which gave me a new appreciation for my own bedroom. It’s a hundred percent more comfortable and peaceful without the beeping sounds of monitoring equipment and hourly nurse interruptions found in a hospital room. The first night home I decided to write a few things about what I appreciated in that day. Thankfully, I slept soundly, so I set a goal to continue the routine.  It appears that feeling and expressing gratitude is an antidote for insomnia. It puts my mind in a better place. Setting a bedtime routine and alarm which allows enough time to unwind in a quiet room also helps. Having it get dark an hour earlier can be a bonus too. It’s the perfect month to work on a gratitude attitude and it improves my sleep too.

This month I’m determined to turn over a new leaf by forming at least one good habit. I’m a list maker and it’s usually full of things that need to be completed. This month I’ll continue to list things I’m grateful for like support groups in our area. I appreciate the opportunity to meet with others in like situations. Increasing friendships is well worth the time. Their encouragement helps me meet challenges. The experience and knowledge shared is beneficial.Simply put, it’s uplifting!

The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.

Join me in celebrating November by living in thanksgiving daily and see how it benefits your sleep!


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

November 7, 2019Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

November 7, 2019Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​Dr. Devin Duval, an optometrist at the Child and Family Eye Care Center and a member of The Utah Valley Stroke Association Board will speak about vision rehabilitation. For questions call Lori Johnson at (801)422-9132.

November 12, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

November 21, 2019IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. Jennifer Roney topic is yoga and meditation.

Survivors meet on the 9th floor gym. Stephanie Obradovich, PT topic is Staying Active Through the Winter. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

November 24, 2019University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106.  For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.

For more information contact Margo at (801)455-6089 or Utah@efa

This Saturday, November 9, 2019 Utah’s Seizure Strategies Seminar at the U of U Clinical Neurosciences Center, 1st floor auditorium. 175 N. Medical Dr., SLC, UT from 9a.m. to 1:30p.m.

November 13, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

November 14, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

November 20, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

November 28, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

The Logan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

September 2019 Newsletter

Welcome September. I appreciate the changes a season brings and the opportunity it gives me to realign my focus on the next phase. Instead of planting and growing a garden, my focus turns to preserving the fruits and vegetables thereof. The loaded fruit trees look like they needed some thinning out in the previous months. Had I done this the fruit would have been bigger and more desirable. This was a hard summer for me with the death of my father. My attention has been all over the place, or not at all. The encumbered branches remind me I need to thin out the less important in order to concentrate my energy on fewer things to achieve bigger and more fulfilling results. Some weighed down limbs appear to be at their breaking point. I can relieve the heavy burden by taking some of the load. Choosing where to start, or what to focus on first is the real challenge.

Do you ever feel like you’re at a breaking point? Do you feel alone, overwhelmed with responsibilities, or mourning? Do you wish you could unload some of your worries? If so, please take advantage of a support group before you break. Meeting with others in like situations is sweet, planting friendships, which can grow and may be preserved for a lifetime. Branching out strengthens us to better meet our challenges. The experience and knowledge shared in a group will produce good results.

The purpose of this newsletter is to share information about organizations which I know about in hopes to help you. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.

I love autumn and I’m ready for a change! I hope you are too.


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

September 5, 2019Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

September 5, 2019Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

September 10, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a birthday celebration with dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

September 19, 2019IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers and Survivors meet this month together on the 9th floor, in the Neuroscience Conference Room. An entertaining special guest speaker, Dr. Matt Townsend will be speaking to us on relationships. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

September 24, 2019University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month I will be leading the discussion on AligningYour Focus.For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa

September 11, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

September 12, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

September 18, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

September 26, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

The Logan Epilepsy Support Group for All is the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

August 2019 Newsletter

Normally I post Uniting Caregivers Newsletter by the first of every month, however life is not normal. I lost my dad unexpectedly last month. If you follow my blog, you know how involved he’s been in my life, especially in helping me meet the challenges of caregiving. He’s been my rock, or the wind in my sail, whichever was needed. We built a home together after our car accident and we’ve lived with my folks for the past twenty-three years. Dad made sure that it was wheelchair accessible to make our life easier. He’s been able to repair whatever needed fixing. Learning to live without him feels overwhelming and some days impossible.

Dad fought heart disease since 1985 with first a triple bi-pass, then 10 years later stents. Two years ago, he had a heart valve replaced, and then needed a pacemaker. He was determined to live life to its fullest and was disappointed when the doctors told him there wasn’t anything more they could do to improve his heart function. Unwavering, he set out to make the best of it, just as he always did.

When Dad had an illness he often said, “I just need to work it off.”  He grew up on a farm and made his living working construction. He was a talented heavy equipment operator but never shirked from digging with a hand shovel if needed. He played as hard as he worked. If he wasn’t physically active, he was sleeping. He believed activity would cure whatever ails you and he worked up to his last day.

Sometimes his philosophy caused contention between us as I tried to get him to slow down. My attempts irritated him, and his continued busyness frustrated me. I just wanted to preserve him. He didn’t feel he needed preservation. My worry became reality when a massive heart attack took him instantly. I had no warning that day would be his last. I’d almost become accustomed to the fear I’d felt for the past two years that it would end just as it did. The day it happened, I realized it probably was the only way for him. No long suffering. Not even a day lying in bed. He left this world in the mountain he helped develop with roads, waterlines and cabins over the past 68 years. He referred to this high land as paradise and while driving from one job to another job, he departed from his earthly hill haven to a heavenly one. Fortunately, he was on a private road and no one else was injured. We’re grateful for his 91 years, but we’re left mourning and wondering what he’s working on now. I’m sure his spirit is still busy. 

Work didn’t cure Dad’s ailments, but it sure made him feel better. He lived happy with his trials and health limitations. I’m inspired by people who push through hardships. Energetically working towards a goal regardless of pain or discomfort. Pressing forward despite discouragement. Making a concentrated effort to pull upward and out of whatever obstacle is keeping you down. Day-by-day I practice in hope of making improvements. I don’t know how to live without Dad because I’ve never had to until now. Adapting to a lifestyle change takes time. I’m trying to be patient with myself as I learn and adjust.

Family and friends who share our love for my dad lighten the darkness. Appreciation has grown for friendships we’ve made through support groups who may not know my dad but still share in our sorrow. Friends who understand another aspect of our complicated life such as living with the effects of a severe traumatic brain injury and epilepsy. I’m so grateful for people who surround us and strengthen our abilities to meet our challenges. Especially in difficult circumstances we can’t have too many friends!

If you’re feeling alone, overwhelmed with responsibilities, or mourning, take advantage of a support group. Meeting with others in like situations is uplifting and makes us stronger to meet challenges. The experience and knowledge shared is beneficial. Expanding your network of friends is priceless, especially during hard times.

The purpose of this newsletter is to share information about organizations which I know about in hopes to help you. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

August 1, 2019Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

August 1, 2019Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

August 13, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a birthday celebration with dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

August 15, 2019 IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This month Katherin Kitchen Andren, PhD will be discussing Advocacy and Resources for Caregivers.

Survivors meet on the 9th floor Gym. This month Dr. Karen Blackwood will be speaking on Emergency Preparedness for Individuals with Disabilities. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

August 27, 2019University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly usually at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month we’ll meet at Sugar House Park, the Fabian Lakeside Pavilion for a summer picnic. Sandwiches provided. Please bring a side dish to share. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

August 1, 2019Logan Epilepsy Support Group for All meets at 7 – 8 pm on the 1st Thursday at the Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341.

August 8, 2019 – IMC Epilepsy Group for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

August 14, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

August 21, 2019 – SLC Epilepsy Group for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

August 22, 2019 – West Jordan Epilepsy Group for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://twilightinsight.wordpress.com/hobbies/hobbies-or-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://healthcare.utah.edu/rehab/support-services/trails.php (University of Utah TRAILS Program)

https://www.meetup.com (meet up groups)


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

Posted in Newsletter | Tagged Annie Wallace, Beth Cardell, Brain Injury Alliance of Utah, Brain Line, Caregivers, Caregivers and Survivors Education and Support, Emily Redd, epilepsy, Epilepsy Foundation of Utah, Intermountain Health Care Neuro, Intermountain Medical Center, Jennifer Gee, National Ability Center, Rocky Mountain University, Support Groups, Survivors, Tanja Kari, Therapy, Trails Adaptive Sports, Traumatic Brain Injury (TBI), University of Utah Brain Injury, Utah Valley Brain Injury Support Group | 2 Replies