April 2018 Newsletter

Spring6I’m a caregiver to a brain injury survivor who also has epilepsy. We benefit and enjoy meeting with others in similar circumstances. For this reason I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your particular health issues. As you learn from, and encourage others in like situations, the weight of your worries will be lightened.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


Spring3

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

April 10, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with crafts or a game afterwards.  Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

April 19, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers meet on the 1st floor conference room and the Survivors meet on the 2nd floor conference room.

Caregiver’s topic: Managing Stress – by Michelle Thornell, stroke survivor, teaching meditation and relaxation techniques.

Survivor’s topic: Lessons From a Survivor – by Kris Sanford a spinal cord injury survivor.

April 24, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Social Communication and Relationships – by Summer Rolin, Psyd. She will give ways for helping others understand your injury. Please call Ryan Pello or Annie Wallace at (801) 581-2221 for questions.


ReadyToRoll (1)


April1FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


Spring4FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

April 5, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

April 11, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave. New EPILEPSY SUPPORT GROUP in Utah County! 

April 12, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 in the Doty Education Center.

April 18, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

April 25, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


Coming SoonEducational Seminar with Dr. Angela Peters, Dr. Blake Newman, & Dr. John Rolston. This free educational seminar will discuss new treatment options for drug-resistant epilepsy. Learn about new advances in neurostimultion and resective surgery. Come join other individuals living with epilepsy and caregivers.

  • Wednesday, April 4th, 2018Springtulips
  • Davis County Library Auditorium
  • 133 S. Main Street, Farmington, UT 84025
  • Registration begins at 6:30 p.m.
  • Program runs 7 – 8 p.m.

_____________________________________________________________________

Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abled

Springflowers2ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

 

Advertisements

Recalculating

It’s hard adjusting to daylight saving time, and every March I wonder who came up with the idea. Losing one hour in the Spring only to gain it back in the Fall doesn’t make any sense to me.  I’m still working on getting all the clocks changed in my house, and my body is still trying to adjust to the lost hour. Life is full of adjustments. Do we really need to add our clocks to the list?

The theme for our caregivers support group went perfectly along with the changing of clocks and adapting to the loss of an hour. Reviewing what I learned Thursday night on the subject titled, Adjusting to Life After a Brain Injury, will be beneficial to you because it can relate to any other health issue, or difficult circumstance that dramatically changes the direction of life.

Slide3

Our presenter, Kerrie Neu, has been a caregiver for nearly 20 years. In June 1998, her husband, Laurent, was in his last quarter at the University of Utah, majoring in Communications. He walked in the graduation ceremony since it is only offered in June. He would finish up his classes in the Fall. However, a motorcycle accident in Salt Lake City, on July 4th changed those plans. He was in a coma for several weeks and in the hospital for three months with ongoing outpatient therapy.

Slide27Kerrie brilliantly used a GPS theme for navigating in unfamiliar territory. They had to recalculate life and reroute to their best resource, family. With two small children ages four years and fourteen months old, they moved into Laurent’s parent’s home for three years. “It’s hard not to look back and want to make a U turn,” Kerrie said. “With brain injury, there’s no going back to the life you had before.”

Slide7At first, Kerrie said she lived in survival mode with her main focus on recovery. Some of the other short term adjustments we discussed were, home structure renovations like ramps and a modified bathroom, which may be necessary if the survivor needs a wheelchair. Other changes are family responsibilities, employment, and finances.

Some of the long term adjustments discussed were schedules for therapies and doctor appointments. Ongoing fatigue may make a schedule nap-time necessary. Employment is a big one. Is working a possibility? If so, will it need to be part time work, or possibly a new job? Financial concerns and changes in family roles can continue long term. Daily activities may be altered by physical and cognitive capabilities. Social skills may vary, especially on days the filters aren’t working proficiently.  Some friends and family may find it hard to relate to the new situation and distance themselves.

Slide11

Click here to read:                                                             Holland Instead of Italy?

Kerrie pointed out that we can’t see into the future and we don’t know what our new destination will be. She suggested celebrating milestones, moments, and memories along the way. On our journey there will be times we need to recalculate. Be flexible and open to new ideas. Discover new routes and destinations. Find joy in every-day moments.

My favorite points Kerrie made were:

*Living in the past isn’t the way to enjoy the journey we’re on now. Look for things every day that bring you enjoyment. Make today worth remembering by:

  • Mindfulness in the morning, “Today I will celebrate one thing.”
  • Mental photos, or real ones, “I want to remember this moment.”
  • Nightly reflections, “What can I celebrate or remember from today?”

*Our bodies are the vehicle that gets us through life. A car needs gas and repairs. Likewise we need to navigate to doing whatever fills us up. When we break down, we should do what it takes to get the help for a repair. Don’t forget to stop at the rest areas when needed.

* Four tasks of grief by J. William Worden

  1. Accept the reality of the loss
  2. Process your grief and pain
  3. Adjust to the world with your loved one being different
  4. Find an enduring connection to the person while embarking on your own life-

A counselor can be helpful in this process since we experience ambiguous grief or ambiguous loss.

Slide23*The GPS doesn’t yell at you when you make a wrong turn “Idiot, why did you turn that way? If you had only turned left instead of right we wouldn’t be in this mess!” It simply says in a calm voice: “Recalculating,” and gives new directions.  We should talk to ourselves in that same patient way, with self-compassion.

Slide26

 

*Self-compassion is:

  1. Self-kindness: Be understanding of yourself when you suffer, fail, or feel inadequate
  2. Connectedness: Recognize suffering and personal inadequacy is a shared human experience
  3. Mindfulness: Balanced approach to negative feelings: neither suppressed nor exaggerated

See: www.self-compassion.org by Kristin Neff

I enjoyed this topic and Kerrie Neu did an excellent job presenting it. Our life is full of recalculating and adjustments. It occurred to me that maybe the purpose of daylight saving is to give us some adapting practice for much harder experiences that come our way. Because honestly, who has an extra hour to lose?

Click to view slide presentation in full: Navigating After a Brain Injury

Presentation Title

 

March 2018 Newsletter

MarchluckThe life of a survivor may not be considered lucky, but it’s made easier by knowing there are others who understand and share similar circumstances. I am a caregiver to a brain injury survivor who also has epilepsy. I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley for those involved with these health issues. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your concerns. Your luck can improve as you learn from and encourage others in like situations.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


MarchLeprechaunFREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

March 13, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dinner dish together with games afterwards.  Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

March 15, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers meet on the 1st floor conference room and the Survivors meet on the 2nd floor conference room.

Caregiver’s topic: It Takes a Village: A Caregivers Perspective – by Chris Benda. She will share with us how she finds and uses resources available.

Survivor’s topic: Social Skills, Communication & Relationships – by Summer Rolin, Psyd. She will give ways for helping others understand your injury.

March 27, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Brain Injury Resources by Glen Lanham. Learn how the Brain Injury Alliance of Utah can help you. Please call Ryan Pello or Annie Wallace at (801) 581-2221 for questions.


March1FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


March3FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

March 1, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

March 8, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. New 2018 Murray location is at the Doty Education Center – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2.

March 14, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave. New EPILEPSY SUPPORT GROUP in Utah County! 

March 21, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

March 28, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


ReadyToRoll


Bright Ideas

HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

newsletter


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

Go For The Gold

Kevin PearceThe Olympics are packed with hopefuls, and I love to hear their stories of overcoming obstacles while pushing the boundaries in pursuit of their dreams. The passion for their sport and years of dedication to training is motivating. A week before the Olympics started, I watched a documentary, The Crash Reel, which gave me a new perspective on the snowboarding events.

Do you remember the snowboarder Kevin Pearce?  He expected to be the gold medal contender for the United States in the men’s halfpipe in the 2010 Winter Olympics. On December 31, 2009, he was critically injured in Park City, Utah, during a training run. He struck his head above the left eye halfway down the pipe doing a double cork. He was flown to the University of Utah Hospital and was in critical care for nearly a month, shattering his dreams for the gold in Vancouver, Canada.

Shaun White won the gold that year, while Kevin was immersed in the hardest, most meaningful training of his life. Once stabilized enough to move, Kevin was taken to Craig Hospital, a center which specializes in traumatic brain injuries located in Denver, Colorado. For the next four months he worked harder and focused entirely on relearning to do the simple tasks of daily living before he could move back home with his family in Vermont.

Kevin Crash ReelThe Crash Reel, recounts the ambitious rise of Kevin and the support of an extraordinary family confronted with a devastating injury. Kevin is the youngest of Simon and Pia Pearce’s four sons. His brothers, Andrew and Adam are also snowboarders. David, who has Down syndrome, snow skis in the Special Olympics. Their story is inspiring as they come together to help Kevin re-discover himself and find purpose and meaning in the snowboarders lost dreams. I appreciated this family for allowing the cameras in his hospital room and in their home to share the intimate details of the recovery process. The documentary captures vulnerable moments as Kevin reconciles his new life post-injury with the snowboarding superstar he was before.

In 2008, Kevin was the first athlete in X Games history to compete in three medal events in one day and he won medals in all three in Aspen, Colorado. Even as a young child he was entirely focused on snowboarding and he couldn’t imagine life without it. After the accident, he was determined to ride on the snow again. His family and doctors tried to discourage him from doing so. Because of his short-term memory problem, it was a constant battle. Kevin states now that the brain injury was hard for him to understand because he couldn’t see it, nor did he have any memory of the tough recovery. When Kevin reviewed the recordings of his accident, he said he’d had worse falls and came out okay, so he couldn’t understand the concern. The neurologist told him he had several concussions leading up to the one that caused a coma, and one more blow to his head could cause death. While most wouldn’t be willing to share such a difficult experience on film, this family didn’t shy away from the opportunity.

kevin-pearce-2 years post TBIKevin resolved to push the limits and return to what he called his “true love.” Almost two years after the accident he strapped on his board and took his first ride with his friends and two brothers by his side. The movement made his vision double. He lacked the coordination for even a small jumped. In many ways, he said, he didn’t feel like himself on a snowboard.

Kevin finds comfort in a quote from Eckhart Tolle, “What could be more futile, more insane, than creating inner resistance to something that already is?”

Likewise, Kevin said, “This brain injury is. This happened to me, so creating inner resistance to this is completely insane because I cannot take it back. I cannot change what happened to me and I never will be able to change December 31, 2009. That day happened.”

Kevin love your brain

Kevin has a new passion now, Love Your Brain Foundation. It was born from the documentary, The Crash Reel. His mission is to educate about concussions and other types of brain injuries, along with transforming physical and emotional well-being through yoga, and building a community through brain health experiences. It’s apparent to me that while Kevin’s life is different now, somethings haven’t changed. Kevin’s still determined and focused. He still gives his all to his passion and never settles for average. Check out the website, it’s impressive. http://www.loveyourbrain.com/

Kevin may not have a gold medal from any Winter Olympics hanging in his trophy case, but his comeback story is real and relatable to all kinds of survivors and caregivers. It’s been a tough journey, but he has found peace and acceptance with his new life, which I believe makes him a first place winner.

I admired the Olympic candidates. Their determination and perseverance for their beloved sport are inspiring. The opening ceremony was enthusiastic, filled with anticipation for the games to begin. The closing ceremony was pleasurable with a flicker of melancholy. The stories of triumphs in between were most rewarding and why I loved to watch the participants. When the flame was extinguished, it felt like the end of an epic holiday. The sadness comes from knowing it will be a while before we’re going to enjoy that kind of excitement and inspiration again. However, their lives and ours go on. Day by day we each have a deep sense of purpose, along with struggles to overcome for advancement. My take away from this year’s Olympians and Kevin Pearce’s story is, embrace where life takes me, while striving to do, and be the best I can. We should all go for the gold, even when life changes our dreams.

Thanks Pyeongchang for being a great host to the world. I wish the love and unity could last forever!

 

 

 

February 2018 Newsletter

Feb. HeartsA splendid way to communicate love is by sharing your time and heartfelt care with others. Understanding one another is easiest when you share similar circumstances. Since I’m a caregiver to a brain injury survivor who also has epilepsy, I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley for those affected by these two health issues. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you. Fill your heart with friends who understand your situation and share the love by encouraging and learning from one another. Every life that you touch is a reward for yourself.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


February1FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

February 13, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share a main dish together and a craft.  Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

February 15, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers meet on the 1st floor conference room and the Survivors meet on the 2nd floor conference room.

Caregivers topic: Caregivers Resources – by Kathy Nelson, Utah State Representative. She will share with us resources available through the State.

Survivors topic: Finding Your Voice – by Natalie Caldwell, MS, CCC-SLP. She will give ways for helping others understand your injury.

February 27, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Trails Adaptive Sports & Recreation by Tanja Kari. Come learn what options are available. Please call Ryan Pello at (801) 581-2221 for questions.


February-clip-art-2FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Parkinson’s Talking Loud Group – Meets every 2nd Wednesday of the month-3:00pm at 5770 South 250 East #G50

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


FebruaryFREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

February 1, 2018 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W.

February 8, 2018 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month. New 2018 Murray location is at the Doty Education Center – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2.

newEPILEPSY SUPPORT GROUP in Utah County! It begins on February 15th from 7:00 to 8:15 pm. From March on the meeting will be on the 2nd Wednesday of the month at the Provo City Library – 555 N. University Ave.

February 21, 2018 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

February 28, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

February-heart

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


February5ACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

Uniquely abled

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

di6XA59i9

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.

Let it Snow!

This slideshow requires JavaScript.

As far as I can see, our world is draped in white. Everything looks so fresh and clean.  The trees, bushes, and homes along our street look beautiful in their new bleached attire. I’ve enjoyed the sun and not needing a coat outside, but It seems very strange for January. The anticipation of this cold outburst made me appreciate it all the more! I was a little sad when the snowplow made its way down our street this morning. The covered streets looked peaceful, void of cars, and I imagined the quiet morning the storm provided each family by the appearance of being snowed in.

The last few snowflakes dropping calmly from the sky were not in a hurry to make a landing. They appeared to be enjoying their slow, belated trip with graceful twirls that made for a fun dance to watch, reminding me of the value in embracing the journey. They performed with a peaceful solitude, without care they didn’t make it with the crowd of snowflakes earlier. It is a reminder of the calm I feel when I’m not comparing my life to another and the time it takes to complete a goal. I’m happiest when I’m not in competition and applaud others for their accomplishments.

After the snowplow awakened our street, I watched the neighborhood kids outside making a slide for their sleds. My mind drifted back to the fond memories of my childhood, sledding down many hills. Then I recalled my children making forts, snowmen and a snow hill on the slide Mark built on their swing set for a fun winter inner-tube slide.

yellowstone-snowmobiling-bison-wildlife-1280x853In my youth, my parents bought snowmobiles and Yellowstone during the Christmas school break became our annual vacation spot. To me the ride was more thrilling than any in Disneyland, with beauty unlike anywhere else. The bubbling hot pots and geysers were colorful and stood out on the white canvas. The intense heat from nature’s tubs kept the snow melted around them, making an easy place for the wildlife to graze. These beautiful pictures are forever etched in my brain. Fortunately, this tradition lasted into the first few years of our marriage, so Mark was able to enjoy this winter wonderland with us.

Since the car accident, which rendered Mark wheelchair dependent, we usually stay indoors during the winter months unless I’m shoveling the driveway or driving to a destination. It’s been many years since I’ve played in the snow. Maybe it’s time to take advantage of the fun it can provide.

I sent Katie and Eldin a text. “Would you like to build a snowman in the back yard? Hot chocolate, dinner and a movie are also possibilities.” To my delight, our 33-year-old daughter accepted my invitation. The snow was powdery and nearly impossible to pack and we are seriously out of practice in how to build a snowman. Katie came up with a brilliant idea of making an igloo instead. I thought about her Barbie and Ken dolls I have in storage and how fun it would be to put them inside the igloo. It was getting cold and this would take more time to dig out. We opted for the Fisher Price family instead.

Life is about memories. Sometimes I’m so wrapped up in my caregiving responsibilities I forget to enjoy the journey. There are experiences I know I’m missing out on and under our circumstances are impossible for me to do. I’m grateful for slow, peaceful snowflakes after our first winter storm, which reminded me to embrace my life without comparing or being in competition with anyone other than myself. An igloo isn’t the snowman we set out to create, but the event of being together was still fulfilling and made for an amusing memory.

Yes, snowmen are cute and I still hope to build one sometime this winter. For now, I’ll enjoy the ones that adorn the inside of our home. I love snow for its beauty and the possibilities it creates for play. The memories of winters past and present are cherished. I appreciate snow from indoors too. With the fire burning and the quiet, peaceful feeling of being home bound, I’m provided with the perfect opportunity to write. So tonight, inside our warm, cozy home I’m singing, let it snow, let it snow, let it snow!

January 2018 Newsletter

January Bring OnHappy New Year! I hope this newsletter finds you well and satisfied with the closing of another year. A fresh start brings renewed hope for improvement. Associating with others in similar circumstances motivates progress as we learn from each other. For this reason I’ve gathered information on the upcoming month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, I encourage you to look for support groups near you. Also included are links to useful and inspiring websites. If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


January4

FREE SUPPORT GROUPS AVAILABLE IN THE SALT LAKE VALLEY

January 5, 2018 – Full Circle Yoga and Therapy, 4-5:30 p.m. located at 1719 S. Main, SLC. Brain injury survivors and caregivers are invited to attend the support group followed by an adaptive gentle Alignment Yoga practice led by Carla Anderson. Both the support group and yoga practice are free to attend.

January 9, 2018 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. Meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for all caregivers and survivors. All are welcomed to share meatball subs and games together.  Bring a side dish or dessert to share if you’d like. Call Jennifer (801) 386-2195, or Beth (801) 585-5511 for more information.

January 18, 2018 – IMC Caregivers and Survivors Education Groups, 7-8 p.m. Meets every 3rd Thursday monthly at a new location starting this month:

New-Location1

IMC Cottonwood Medical Tower (TOSH Campus) 181 E. Medical Tower Drive, Murray, Utah. Caregivers will meet on the 1st floor conference room and the Survivors will meet on the 2nd floor conference room.

Caregivers topic: Getting to Know You – A fun evening planned as we spotlight caregivers and give each one a Welcome Packet with helpful tips and inspirational thoughts plus this years meeting topic schedule.

Survivors topic: New Year’s Resolutions for a Healthy Lifestyle presented by Stephanie Obrabovich (PT)

January 23, 2018 – University of Utah Brain Injury Support Group 7-8 p.m. Meets every 4th Tuesday monthly at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month’s topic: Trails Adaptive Sports & Recreation presented by Tanja Kari. Come learn what options are available. Please call Ryan Pello at (801) 581-2221 for questions.


January

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY 

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Dr. Russo at antonietta.russo@imail.org


January1

FREE EPILEPSY GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org

January 4, 2017 – Epilepsy Group for Parents, 7:00 – 8:15 p.m. Meets every 1st Thursday of the month at the Riverton Library Auditorium, 12877 S. 1830 W., Riverton, UT.

New-Location

January 11, 2017 – Epilepsy Group for All Effected by Seizures, 7:00 – 8:30 p.m. Meets every 2nd Thursday of the month.

New location starting this month at theDoty Education Center – Intermountain Medical Center, 5171 S. Cottonwood St., Bldg. 6, 1st floor – CR2 , Murray, UT.

January 17, 2017 – Epilepsy Group for All Effected by Seizures, 6:30 – 8:30 p.m. Meets every 3rd Wednesday of the month at the SLC Main Library 200 E. 400 S., SLC, UT (2nd floor conference room).

January 24, 2017 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets the 4th Wednesday monthly at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. There are two teachers overseeing this group. Come to enjoy an activity and meet other teens with epilepsy.

Coming Soon

 

NEW EPILEPSY SUPPORT GROUP in Utah County! It begins on February 15th and will then meet on the 2nd Wednesday of the month from 7:00 to 8:15 pm, at the Provo City Library – 555 N. University Ave.

 


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)


Uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


LaptopsSHARING WEBSITES:

Laptops http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send you the link monthly.