June 2019 Newsletter

Welcome Summer! It’s been an extra wet Spring and I’ve been grateful I haven’t needed to do any watering yet this year. Everything is green and lush all by mother nature’s doing. The plants look happy and beautiful. When the sun comes out from behind the clouds, I appreciate the warmth and brightness of sunshine even more than I do in the heat of the summer. I must admit, I’m a little sad to see Spring end. I’ll have to work harder to keep the yard looking good and I’ll probably take the sunshine for granted.

Yardwork is a good outlet for me. I enjoy being outside, hearing the birds sing, and creating a garden. When I plant from seeds, it’s exciting and rewarding when they start to sprout. Those delicate new plants take extra care and thinning out is sometimes necessary. Even when I put in the ground a plant that has been nurtured in a commercial greenhouse, I need to continue with care so it can adjust and thrive in my garden.

Caregiving is similar. Doctors, nurses and therapists give our loved ones the necessary care to survive or sprout in a new situation. Once a survivor is home, it’s up to family and friends to nurture and help them adjust in unfamiliar ground or circumstances. Often the success of growth comes from the encouragement and support of others.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. Caregivers need encouragement and help from others too. I’m grateful for many support groups in our valley, and we benefit from our association with them. We gained valuable information through collaborating with others in like situations.

Living with the effects of a traumatic brain injury and epilepsy is hard. The purpose of this newsletter is to share information about organizations which I’ve found helpful. If you are a caregiver for a survivor of another physical or mental illness, I encourage you to find assistance through organizations that catered to your circumstances.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

June 6, 2019 – Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.

June 6, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic after the Aphasia Choir. ​ Address: 1190 North 900 East, Provo, UT 84060. For questions call Lori Johnson at (801)422-9132.

June 11, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and crafts this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

June 20, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month Jon Pertab, PhD specializing in Neuropsychology will be speaking. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

June 25, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, usually at Sugarhouse Health Center. However, this month, we’ll meet at the TRAILS House to explore and try out different adaptive equipment and enjoy a BBQ. Please RSVP with Annie Wallace so she can get an accurate head count for food.

PLEASE remember the change in location for this month only. Trails Adaptive Sports, Imaging and Neurosciences Center in Research Park. Address: 729 Arapeen Drive, SLC, UT 84108. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

June 6, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341

June 12, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT. A NeuroPace representative will speak on the new RNS system and answer questions.

June 13, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center. Dan Brown, NeuroPace representative will speak on the new RNS system and answer questions.

June 19, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

June 27, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.


HELPFUL WEBSITES:


ACTIVITIES TO DO WEBSITES:


SHARING WEBSITES:


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

May 2019 Newsletter

I’m a wife and caregiver to a brain injury survivor who also has epilepsy. We benefit and enjoy meeting with others in similar circumstances. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in the Salt Lake Valley. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others in like situation makes the journey easier.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

New: Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic. Come and enjoy the power of music and friendship together. They have some performance opportunities, such as singing a patriotic song to kick off the Strides for Strokes race to support the Utah Valley Stroke Association on May 18, 2019. Everyone interested is welcome to join.

May 2, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

May 14, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and craft this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

May 16, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor Neuroscience Conference Room. This month’s topic, Being a Resilient Caregiver. Part 5 of this years Caregivers Seminar.

Survivors meet on the 9th floor Gym. Carly Hoffman, Music Therapist will be speaking on Music Therapy for Brain Injury Rehabilitation. Carly Hoffman, Music Therapist.
For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

May 28, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. For more information please call Annie Wallace at (801)581-2221.


2019 Brain Injury Alliance of Utah
Saturday, May 18, 2019





Run, Walk & Roll 5K
Liberty Park, 648 E. 1300 S., SLC


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

May 2, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341

May 8, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

May 9, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

May 15, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

May 23, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at June 6, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

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https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


This image has an empty alt attribute; its file name is laptops.png

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

Brokenhearted

April 27, 1991

Passenger’s side

Five weeks shy of a thirty-second birthday is too young to be a widow. This must be a nightmare, I thought as I lay on the hospital stretcher in the emergency room.

Driver’s side

I looked at my bruised body while two nurses standing on either side of me removed pebble-sized shards of glass from my ears, chest, and arms with tweezers. It was strange there wasn’t a single cut anywhere. This doesn’t make sense.

 The nurses helped me sit up, then moved my feet and legs gently to the side of the stretcher. With latex gloves covering their hands they combed through my hair with their fingers to remove more glass. There were no cuts on my face or head either. Additional evidence this must be a nightmare.

They wrapped a cream-colored, padded figure-eight brace that went around the back of my neck, under my armpits and fastened it between my shoulder blades to secure my clavicle bone, which had broken in two places.

 One nurse asked, “Would you like some pain medication?”

“No thanks,” I said, feeling disconnected from my body and confused about the events that were happening. I needed a clear mind to retain vital information given to me to make life-changing decisions. I could see my body was broken and bruised. It’s not normal to look like this and not experience more physical pain. My whole body felt numb, like I’d been given a large dose of Novocain. More evidence this must be a nightmare. Or could it be I’m consumed by grief and regret?

The emotional pain was intense. Every fiber of my being screamed in terror of what was to come. Never have I felt such mental agony and unbearable fear. It left me void of any other emotion. Not one tear fell from my eyes. Could medication help this kind of pain? I was afraid to ask. I felt the urgency to be alert and fully in control, yet I also felt the opposite. I better stay away from any medication.

The nurse gave me a hospital gown because my shirt and bra were cut off in the crisis so I could be examined. Another nurse adjusted a royal blue sling for my right arm to keep me from moving it so the broken clavicle bone could heal.

I’m not a stranger to hospitals. I’ve been admitted twice to have my babies, and I had to take my eight-year-old son several times to emergency throughout his life when he struggled to breathe due to severe asthma. My seven-year-old daughter also had a couple of emergency room visits—once with a febrile seizure and another time with an outbreak of roseola. Over the years I’d seen some of the trauma that goes on in emergency rooms.

This hospital was different. I’d never been here before. It was 60 miles away from home. Knowing family and friends were far away added to my loneliness.

On the other hand, my husband, Mark, had never been admitted to a hospital. In the fourteen years I’d known him, I’d never heard him speak about an injury or illness that required hospitalization. Not once. This couldn’t be happening to him because he’s always been healthy and active.

He was lucky too. Just before our marriage, he drove me home after a date. While driving back to his apartment, he looked at the dashboard and noticed his car was on empty. He must have been racing to get to a service station. Unfortunately, in the moment he took his eyes off the road, he missed the sharp curve. He lost control of the car and drove down a rocky embankment, which caused his car to roll. It was late and completely dark outside. This road didn’t have any street lights. He was trapped inside the upside-down vehicle. The door would not open, so he rolled the window down, unbuckled his seatbelt, and crawled out to safety. Miraculously, he walked away from that accident without any broken bones or cuts. Why were things so different this time?

A new nurse I hadn’t seen yet walked into the room and handed me a large, white plastic bag with a drawstring. On the side of the bag were big blue letters that read, Personal Belongings. She explained in the rush for Mark’s MRI and surgery, they had to cut his jacket, shirt, and pants from his body. Inside the bag were his shoes, socks, wallet, watch, and cut clothing.

She told me Mark would be in surgery for a while and suggested I wait for my family to arrive in the waiting room.

The heavy disconnected feelings were paralyzing, and I couldn’t make my body move. We are too young for this horrendous experience. How do I wake up and get out of this lonely, cold emergency room? How do I end this nightmare?

A dose of reality shot through my body with an intense burning sensation of fear. What if this isn’t a bad dream? How do I fix it? I’m responsible. I was driving and he was the passenger. It’s not fair Mark’s life is on the line. It should be me in surgery, not him.

How do I correct this terrible injustice?

My mind kept racing over the unbelievable words I’d heard. “Mark may not make it through surgery. He’s unconscious. He has severe brain swelling and needs a shunt immediately.”

This can’t be happening to my healthy husband.Bad things happen to other people, not us…or so I thought.

My April 27th Theme Song. Thank you Hilary Weeks for writing words that explain just how I feel.

April 2019 Newsletter

It’s a beautiful season as we transition from winter into summer. It’s a time of growth and renewal of life, when plants and trees which have been dormant for a season regain life and begin to bud into lush, green, delightful plants. For this reason, I enjoy Springtime.

However, in 1991 Spring was a lost season to me because Mark literally slept through it in a coma after our catastrophic car accident. The pain of that experience has faded some, but it still stings, making April a hard month of the year for me.

Like birthdays, anniversaries cause me to reflect. So, April brings with it some “What if” demons as we approach another anniversary of our car accident.

What if Mark hadn’t gotten the job in Ogden? What if we had postponed our home search for a day with better weather? What if we’d stayed with the realtor or skipped lunch? What if Mark was driving instead of me? I can think of many “what ifs”, but that doesn’t change the reality of what happened.

I suppose its human nature to wonder if I’d done things differently—would life be better? Wallowing in regret only leads to discouragement and depression. My grandma used to call it “a pity party.” When I recognize my brain is taking me there, I refuse to go. If it creeps up on me before I realized it, I leave the pity party by concentrating on the positives.

I’m blessed Mark survived our near-fatal car accident 28 years ago and blessed again because he too is happy he’s alive. He appreciates the help and assistance he gets instead of resenting it. I know not all caregivers receive such gratitude from their love one which would make the situation more difficult.

Being responsible for the care and well-being of another can be overwhelming, but it’s rewarding too. Living with the effects of a severe traumatic brain injury and epilepsy helps me understand that every day is a bonus day even with the challenges.

I’m grateful for many support groups in our valley, and we benefit greatly from our association with them. We gained valuable information through collaborating with others in like situations.

If you struggle with the “what if’s” or find your mind leading you to a “pity party”, try finding friendships and assistance through organizations catered to your circumstances. The purpose of this newsletter is to share information about organizations which I know about in hopes to help you.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please add in the comments or email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

New: Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic. Come and enjoy the power of music and friendship together. They have some performance opportunities, such as singing a patriotic song to kick off the Strides for Strokes race to support the Utah Valley Stroke Association on May 18, 2019. Everyone interested is welcome to join.

April 4, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. ​For questions call Lori Johnson at (801)422-9132.

April 9, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games this month. Bring a side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

April 18, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers and Survivors will meet together this month on the 9th floor, in the Neuroscience Conference Room. Chad Hymas, a nationally-acclaimed motivational speaker will talk on Leaving A Legacy. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

April 23, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. Dr. Stephen Trapp, Physical Medicine and Rehabilitation will be presenting this month. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, UT

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


2019 Brain Injury Alliance of Utah

Run, Walk & Roll 5K

Saturday, May 18, 2019

Liberty Park, 648 E 1300 S, Salt Lake City


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

April 4, 2019 – Epilepsy Support Group for All, 7 to 8 pm. Meets every 1st Thursday at the Logan Regional Hospital500 E. 1400 N., Logan, UT 84341

April 10, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

April 11, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

April 17, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

April 18, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at April 4, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


HELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

This image has an empty alt attribute; its file name is uniquely-abled-e1514866704474.jpg

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


This image has an empty alt attribute; its file name is laptops.png

SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

March 2019 Newsletter

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Welcome Magical
March

As we acclaim St. Patrick’s Day and the Irish culture this month, I think of three leafed clovers, leprechauns, rainbows, a pot of gold, dancing, and lots of green. March feels like a fairy-tale month and it brings pleasure as I reflect on how lucky I am. I have a great family, wonderful neighbors, friends and awesome support groups we enjoy attending.

However, life isn’t always a joyful party. Hard situations and health issues can bring resentful and bitter feelings. We may wonder why life didn’t turn out the way we thought it should. It seems there are many good reasons to be unhappy and it’s easy to blame sadness on the things we lack in life.

For me the best antidote for unhappiness is gratitude. Have you noticed people who have an appreciative attitude are the happiest? It’s a quality which makes them more likable and at peace with themselves and circumstances. They tend to make others feel better about themselves too as they share their optimistic outlook.

Focusing on the positive and the good things that happen each day helps me realize how lucky I truly am. When I’m thankful, I hear harmony and feel pleasure in life.

I’m fortunate to be a caregiver and realize how blessed I am Mark survived our near-fatal car accident 28 years ago. Living with the effects of a severe traumatic brain injury and epilepsy helps me understand that every day is a bonus day even with the challenges. Being responsible for the care and well-being of another is a highly committed role, but it’s rewarding, mostly because Mark appreciates what he has too.

I’m privileged to be associated with so many other caregivers and survivors. I’m grateful for many support groups in our valley, and we benefit greatly from our association with them. The network of help looks like a rainbow after a storm of trials. There is a pot of valuable information which can be gained through collaborating with others in like situations.

If you feel unlucky in life, try seeking the Irish magic of this month by finding friendships and assistance through organizations catered to your circumstances. The purpose of this newsletter is to share the treasures I know about in hopes you too can feel lucky.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

New: Utah Valley Aphasia Choir. All brain injury, stroke survivors, caregivers, family, and friends are invited to join. They meet on the 1st Thursday of the month from 6-6:45pm, prior to the support group at the BYU Speech and Language Clinic. Come and enjoy the power of music and friendship together. They have some performance opportunities, such as singing a patriotic song to kick off the Strides for Strokes race to support the Utah Valley Stroke Association on May 18, 2019. Everyone interested is welcome to join.

March 7, 2019 – Utah Valley Brain Injury Support Group 7-8:30 p.m. meets every 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. This month Susan Reynolds is speaking about depression management. ​For questions, email tracy_liu@byu.edu or call Tracy Liu at (801)422-9132

March 12, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

March 21, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month, Marc Macialek, will present, The Success of Failure: Progress After TBI. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

March 26, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Carly Hoffman, SCMT, MT-BC, NMT (Neurologic Music Therapist) is demonstrating and speaking about how music can help heal the brain. For more information please call Annie Wallace at (801)581-2221.


FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

March 7, 2019 – Epilepsy Support Group in Logan, UT.- 7 to 8 pm Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341

March 13, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

March 14, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

March 20, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

March 28, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at April 4, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


HELPFUL WEBSITES:

http://www.tbicommunity.org (online educational programs)

http://www.caregiver.org (online webinars for caregivers)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


ACTIVITIES TO DO WEBSITES:

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https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)


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SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

February 2019 Newsletter

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Happy Valentine’s Day!

Being a caregiver is not for everyone. The responsibilities of bathing, dressing, feeding and overseeing the safety, physical and emotional needs of another person can be strenuous. There are a variety of levels of caregiving such as a professional who makes a living at it, or a family member, or a friend who is dedicated to help another. If you care and you give to another’s well-being, you are a caregiver.

No matter what type of caregiver you are, there are common and important traits needed to perform caregiving duties successfully:

    1. Empathy. The ability to understand and share feelings is central to giving care.
    2. Compassion. Provides the energy and drive needed to sustain you through difficult tasks or while working with an individual.
    3. Patience. People being cared for take longer than usual to complete simple tasks or routines. Understanding the limitations of those you care for can help reduce tension in the environment.
    4. Attentiveness. Means being a good listener and noticing when there are emotional or physical changes in the personIt is important to be aware of the needs and the changes that are taking place. It’s a bonus to have a creative mind that can come up with inventive ways to deal with problem situations or overcome resistance.
    5. ComposureHandling stressful or uncomfortable situations with confidence and grace is an important skill for caregivers. A good caregiver doesn’t chide or shame regardless of age or circumstance.
    6. Compromise. Conflicts are inevitable. Sometimes you must compromise to diffuse tense situations. It’s important to thoughtfully focus on what’s needed most to manage disagreements in an effective and positive way.

To read more about a caregivers traits see Six Traits of a Caregiver.

Unfortunately, I do not have all these traits every day, but I strive to. I gain strength and clarity from others who truly understand my journey. For this reason, I’ve gathered information on this month’s support groups and therapy services in our surrounding area offered for those affected by brain injury and epilepsy, which are two health issues we deal with daily. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others lightens the load.

Being responsible for the care and well-being of another is a highly committed role, but it’s also rewarding

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com.


February1

FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

February 7, 2019 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Lori, (801)422-9132.

February 12, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.

February 21, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This year we move to a new location at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program written by Beth Cardell, Phd, University of Utah will be taught by various members of the medical community and other experts in their field.

Survivors meet on the 9th floor Gym. This month, Mark Fox, MS, CCC-SL, will present. Why Me? Hard Learned Lessons from Brain Injury. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org

February 26, 2019 – University of Utah Brain Injury Support Group 6-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month they will play the movie My Beautiful Broken Brain. Click on the title to see the trailer. For more information please call Ryan Pello or Annie Wallace at (801)581-2221.


February-clip-art-2

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY

in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


February2

FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

February 7, 2019 – Epilepsy Support Group in Logan, UT.- 7 to 8 pm Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341

February 13, 2019 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

February 14, 2019 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

February 20, 2019 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

February 28, 2019 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

1st Thursday quarterly. Epilepsy Group for Parents, 7:00 – 8:15 p.m. Next meeting will be at April 4, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and thoughts)


newsletterThank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.

 

January 2019 Newsletter

January Bring OnA New Year feels like a fresh start and it’s energizing! I’m a visual person so I like to schedule my activities and plan steps for attaining goals. I’ve been marking up my 2019 calendar because without a plan I wander aimlessly. Written down on paper makes it look clear and obtainable. The unknown obstacles and interruptions that life inevitably bring aren’t there to mess up the blue print. Judging by experience, I won’t get it all accomplished, but my motto is to never give up. This year marks a big one for us. Forty years of marriage, and the sixth decade marker of my existence. I haven’t come close to accomplishing what I’ve wanted to thus far in life, nor in these many years of marriage. We’re not where we thought we’d be financially, or physically. My antidote for discouragement is to focus on my life’s mission: To care for and love my family and friends. To put their needs above my wants. This takes flexibility with my daily plans. It means not being so focused on the goals I want to accomplish that I can’t see the needs of others or take time to help them. In 2019, I want to make sure this is a true statement and not an excuse for defeat. It’s tricky and not always easy to identify or decipher between a “want” and “need”.

I gain strength and clarity from others who truly understand my journey. For this reason, I’ve gathered information on this month’s support groups and therapy services offered in our surrounding area. If you live outside of this region, or are affected by another kind of condition, I encourage you to look for support groups near you relating to your health issues. Learning from and encouraging others lightens the load.

In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.

If you have an activity, announcements or other information you’d like shared in this newsletter, please email Barbara@UnitingCaregivers.com

I’m excited to see how this year unfolds and what it will reveal. I wish you the best for the new year.


January1FREE SUPPORT GROUPS

FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS

January 3, 2019 – Utah Valley Brain Injury Support Group 7-8 p.m. meets every 1st Thursday monthly at Rocky Mountain University of Health Profession, 122 East 1700 South, Building C, Provo, Utah 84060. For questions, please call Tracy Liu, (801) 422-9132.

January 8, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. For more information, please call Jennifer (801) 386-2195, or Beth (801) 585-5511.

New-Location1January 17, 2019 – Caregivers and Survivors Education and Support Groups, 7 p.m. meets every 3rd Thursday monthly. This year we move to a new location at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.

Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This year an extensive and informative Caregiver Program written by Beth Cardell, Phd, University of Utah will be taught by various members of the medical community and other experts in their field. This month Teresa L. Such-Neibar, DO Physical Medicine & Rehab will be teaching. Bring your family and friends that are part of your caregiver experience.

change

Survivors meet on the 9th floor Gym. This month Kim Sieber, neuropsychologist, will present. Her topic is Mindfulness Strategies for Survivors. Please call (801)314-2086 or email Emily Redd emily.redd@imail.org

January 22, 2019 – University of Utah Brain Injury Support Group 7-8 p.m. meets every 4th Tuesday monthly, at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month Marc Macialek, TBI survivor and life coach will present. For more information please call Ryan Pello or Annie Wallace at (801) 581-2221.


January

FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPY in Murray, Utah

Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50

Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room

Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50

Contact: Emily Redd at Emily.redd@imail.org


january4FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES

Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences. For more information contact Margo at (801)455-6089 or Utah@efa.org.

Epilepsy Group for Parents, 7:00 – 8:15 p.m. Use to meet every 1st Thursday quarterly. Next meeting will be January 3, 2019 at the Riverton Library Auditorium, 12877 S. 1830 W. Riverton, UT.

January 9, 2018 – Epilepsy Group for All, 7:00 to 8:15 pm. Meets every 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.

January 10, 2018 – Epilepsy Group for All, 7:00 – 8:30 p.m. Meets every 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.

January 16, 2018 – Epilepsy Group for All, 6:30 – 8:30 p.m. Meets every 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).

January 24, 2018 – Epilepsy Group for Teens, 7 – 8:30 p.m. Meets every 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT.  Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.

Coming SoonEpilepsy Support Group in Logan, UT.


Bright IdeasHELPFUL WEBSITES:

http://www.caregiver.org (online webinars for caregivers)

http://www.tbicommunity.org (online educational programs)

http://www.braininjury.com (medical, legal, information resource)

http://www.abta.org (brain tumor education and information)

http://www.cdc.gov/ncipc/tbi (brain injury facts, programs, education)

http://www.ninds.nih.gov/Disorders/all-disorders (education for brain injury, stroke and other neurological disorders)

http://www.msktc.org/tbi (TBI Model Systems Knowledge Translation Center) national leaders in TBI research and patient care.

http://www.nationalmssociety.org/Resources-Support (resource for those with MS)

http://www.epilepsy.com/utah and/or http://www.epilepsy.com (seizure education and support by state or national)

https://biau.org (resource for those with brain injury)

http://www.brainline.org (preventing, treating and living with TBI)

http://www.uilc.org (Utah Independent Living Center is a resource center which enhances independence of persons with disabilities)


uniquely abledACTIVITIES TO DO WEBSITES:

https://store.usgs.gov/access-pass (free pass to National Parks & Federal Land Agency areas)

https://wildlife.utah.gov/watchable-wildlife-for-disabled.html (watchable wildlife for disabled persons)

http://slco.org/adaptive/plus-one-pass (Salt Lake County Disability Plus One Pass)

https://twilightinsight.wordpress.com/hobbies/hobbies-

for-healing-the-brain/tbi-and-selecting-a-hobby (select a hobby – ideas especially for TBI survivors)

http://www.discovernac.org (National Ability Center)

http://wanderookie.com/blog/2015/07/27/12-beautiful-wheelchair-accessible-trails-in-utah
(wheelchair accessible trails in Utah)

https://www.visitutah.com/Media/Default/One%20Sheeters/Accessible_Utah_web.pdf (list of accessible resources)

wasatchadaptivesports.org (Wasatch Adaptive Sports)

http://www.discovernac.org (National Ability Center)

https://www.meetup.com (meet up groups)

Laptops


SHARING WEBSITES:

http://www.brainline.org/abbymaslin (blog about loving and learning after TBI)

http://www.facebook.com/UTteensupportgroup (social interaction and the exchange useful resources)

http://www.unitingcaregivers.wordpress.com (caregivers sharing stories, tips and

thoughts)


newsletter

Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.