A new year brings anticipation for great things. This year feels like a warmth of sunshine after cloudy days. 2020 brought many challenges without the “perfect vision” the year number indicated. Learning from our experience gives us energy for improvement as we move forward.
My list of twenty-one take-aways from 2020 with optimism that 2021 will be a better year if we remember:
We are resilient and can recover from stressful conditions.
We care about others more than our own comfort. Wearing a mask is proof.
We are creative with ways to connect, celebrate, worship, and teach while social distancing.
We are resourceful and can adapt to difficult circumstances.
We are all passionate about our beliefs, therefore it’s important to respect individual beliefs especially when they differ from our own.
We are patient, notably when it’s necessary.
We persevere in hard situations as we work for improvement.
We are courageous as we learn to do things we’ve never done before.
We are fashionable. Masks often match what we are wearing or make a statement about our personality. Colorful, fun masks are amusing.
We need each other. Isolating negatively affects our mental health.
We realize hugs are not to be taken for granted.
We are more aware of what our teachers and healthcare providers do. We are so thankful for their dedication.
We gained gratitude for sanitary stations by most building entrances.
We have appreciation for disinfectant wipes to sanitize grocery carts.
We learned zoom meetings are an effective way to take care of business.
We learned routine doctor visits can be done efficiently and are convenient by facetime or duo phone calls.
When an in-person doctors visit is necessary, the sticker on your shirt with the written temperature reading puts other at ease or encourages them to keep their distance if you have a fever.
We appreciated less people in the doctor’s office making the wait time to get into the exam room significantly shorter.
More people working from home improves the air quality and drives gasoline prices down. It’s grand that city streets no longer filled with vehicles were roped off for recreational bike riding and walking.
Social distancing at home allowed more time to get projects done.
Each person is important. We make a difference in the lives around us.
This year has been an experience we’ll all remember. 2020 not only strengthened our character, but it helped us realize what is most important. I hope to remember the positive lessons learned from the past as we move forward.
My favorite ornament made by our friend Carl Wengel. It sums up the year perfectly!
There’s more excitement with the close of this year than most. However, this will be a year for the books. Besides earthquakes, hurricane winds, riots, and fires, the coronavirus hit hard. Schools, churches, concerts, theaters, sports, restaurants, and other workplaces were shut down for a time. Every support group listed on my March Newsletter was cancelled. You name it and it was affected by COVID, including family and friend relationships. Some people take the virus seriously and others do not. Some introverts may enjoy an excuse to isolate, while some extroverts fight it.
At first, I didn’t feel a huge change in my lifestyle. Afterall, I’ve worked from home for many years as an account manager for Earthwork Property Management. It’s nice to have people now joining the at home employment group.
Before the pandemic, Mark attended an activity day-program. He missed going out every day. Churches closed too which meant another disruption to our regular schedule. Mark enjoys being busy and wants to be productive. My challenge has been making activities available for him to do at home. In conjunction with the loss of his short-term memory, he depends on repetitive activities. It took several weeks for him to remember why he wasn’t doing his normal routine. Lucky for me he’s easy-going and we’ve adjusted to spending every day and all day together. It’s a good thing we like each other.
The biggest shift for me remains to be grocery shopping. I can no longer do it in the middle of the night while Mark sleeps. The reduced hours, daytime shopping, and the distinctive roped walkways to keep customers entering the store in an organized, evenly spaced manner was shocking in the beginning. The employee at the door counting every person entering to make sure the store stayed within the limit is unique to a place that thrives on a crowd. Once allowed in, seeing empty shelves and necessary items such as toilet paper, paper towels and disinfecting wipes gone is unnerving. Now many items are rationed, resulting in better stocked shelves.
We know several people who have or have had the coronavirus. Fortunately, their cases have been mild, but the increase in numbers and our full hospitals are worrisome. We’ve been blessed so far and have escaped the virus. Nevertheless, we feel the effects of this pandemic and look forward to getting the vaccination. We are hopeful that in 2021 we will clear our world of this disease.
This year I found another way to end up in the hospital. On October 5th, I had knee surgery which meant our daughter Katie and her husband Eldin needed to move in with us for two weeks to help with Mark’s care. It was the second time this year they willingly stepped up to task as we needed them in March when I injured my knee. We enjoyed having them here and especially during the uncertain times of the earthquake and closures. We couldn’t have made it through this year at home without them and I believe this would have been the worst year to have Mark in a care center. We are forever grateful for their help.
Many positive changes came this year, such as routine doctor visits done by phone. A definite plus when you or your loved one has ongoing health issues. When an in-person visit is necessary, the wait time to get into the exam room is significantly shorter and now there’s only one or two in the waiting room.
The isolation at home provided time to get more yard and home projects done. We had our reserve irrigation tank moved to the back corner of the yard which made new water lines necessary. A big project I’ve wanted to do for years. I also planted more grass in the orchard. The vegetable garden was plentiful which equates to a lot of preserving. Canning lids were another shortage this year. I couldn’t find them in any store. Lucky for me I have good friends who shared some of their extra lids with me.
While reading this message to Mark I realized this year of social distancing is much harder on him than it’s been to me. He agreed with my conclusion. I added, “I’m such an introvert and you are truly an extrovert. How did we ever get together?”
His reply, “On a double date!” I laughed at the irony of the true statement.
For now, I’ll relish in this quieter, slower pace at home and Mark will probably continue to miss the busy social schedule. Together forever, we are a testament that opposites attract.
What positive things have you realized from this negative experience?
During your busy day, do you think about all that your brain does to get you through it? It controls everything you say, feel, and do. Through your brain, you experience emotion. It keeps you alive through breathing, circulation and digestion. It controls your hormones, and the immune system. It’s responsible for your urges, ideas and the way you think, even the reason why on some occasions, you don’t think, but act instead.
This incredible organ of soft tissue, weighing less than three pounds contained in our skull is largely taken for granted. Yet it functions as a primary receiver, organizer, and distributor of all information for the body. We usually don’t think about all the brain does, until an injury occurs or malfunctions.
Washington, DC reports every 11 seconds someone in the US sustains a brain injury.
There are two basic types of brain injury:
Traumatic Brain Injury (TBI) is caused by an external force, a blow or jolt to the head. Common causes include motor vehicle crashes, falls, sports injuries, assaults and gunshot wound to the head. Injuries range from mild concussions to severe permanent brain damage.
Acquired brain injury (ABI) is caused by internal factors, such as a lack of oxygen supply due to near drowning or heart attack. It can also include infectious diseases, a brain tumor, exposure to toxins, aneurysm or stroke. The brain injury will range from mild to severe.
Remember you only get one brain. Unlike the liver, kidney or heart, no human brain transplant has ever been done. Your brain can’t be replaced like a hip, knee or shoulder. Nor fixed like a broken bone.
Since 1991, we enjoy many friendships of all types of brain injured people with varying degrees of damage. We gain valuable information through meeting with others in like situations. I’m grateful for the people we meet in our support groups. Their encouragement helps me meet our challenges. The experience and knowledge shared is both beneficial and uplifting.
My hope for this newsletter is to share information about organizations which help people with a brain injury and their caregivers. I’ve included information relating to epilepsy because TBI and ABI can cause epilepsy. My husband, Mark had his first seizure seven years after the car accident. He was diagnosed with epilepsy as a result of his brain injury.
In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.
If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email.
FREE SUPPORT GROUPSFOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS
March 5, 2020 – Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.
March 5, 2020 – Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. Join us for an Adaptive Yoga Night, taught by Abigail Atkinson. For questions email byutbigroup@gmial.com or call (801)422-9132.
March 10, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.
March 19, 2020 – IMC Caregivers and Survivors Education and Support Groups, meets at 7 – 8 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1. This month survivors & caregivers willmeet together on the 9th floor Neuroscience Conference Room. Natalie Caldwell, MS,CCC-SLP is presenting Ground Rules for Communication with Those You Love. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.
March 24, 2020 – University of Utah Brain Injury Support Group meets at 6:15 – 7:15 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. This month they are hosting Molli Baker from Molli Dogs, a service dog training academy. She will be talking about therapy, emotional support, and service animals. For more information please call (801)581-2221 or email Kelsi.Schiltz@hsc.utah.edu.
FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50
Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room
Adaptive Yoga – Meets every Wednesday, 4 p.m. at 5770 South 250 East, Gym
Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50
FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES
Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.
For more information contact Margo at (801)455-6089 or Utah@efa
March 11, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.
March 12, 2020 – IMC EpilepsyGroup for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.
March 18, 2020 – SLC EpilepsyGroup for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).
https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)
Two of my favorite websites. What are yours?
Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.
Happy Valentine’s Day! At the start of this month I had a nasty cold which zapped my energy. While sick I took the opportunity to watch the new Aladdin movie. My favorite scene was when Aladdin surprised the princess by appearing at her balcony on a magic carpet. He persuaded her to take an enchanting ride. I related to their mutual attraction and it took back to the happy time when I first met Mark.
We were on a double date. I had been on a few previous dates with Mark’s co-worker, but when Earl invited me on this date with his friends from work I had no idea how my world would change. Of course on this night Mark was with another gal. I couldn’t stop looking at him and I caught him looking at me too. The attraction was real, and alarming since I kept wishing I was with my dates friend.
The songwriters, Alan Menken and Tim Rice brilliantly reminded me of how refreshing and magical new love feels through A Whole New World:
I can show you the world Shining, shimmering, splendid Tell me, princess, now when did You last let your heart decide?
I can open your eyes Take you wonder by wonder Over, sideways and under On a magic carpet ride
A whole new world A new fantastic point of view No one to tell us no Or where to go
Or say we’re only dreaming A whole new world A dazzling place I never knew But when I’m way up here It’s crystal clear That now I’m in a whole new world with you
For me, that new world started Forty-three years ago. My mind raced through the highlights of marriage and adding two incredible children to our union, and how they increased depth and value to our world.
Now I’m in a whole new world with you Unbelievable sights Indescribable feeling
Soaring, tumbling, freewheeling Through an endless diamond sky A whole new world Don’t you dare close your eyes
A hundred thousand things to see Hold your breath – it gets better I’m like a shooting star I’ve come so far
I can’t go back to where I used to be
The phrase, “I can’t go back to where I used to be,” hit me hard and in that sentence the joyful feeling I’d experience turned to sadness. Numerous times I’ve wished I could go back, before our life changing car accident. To feel unstoppable. To feel like I had some control of the ride.
Just as I had the thought, I notice Jasmine and Aladdin were no longer steering the carpet. The songs tempo and ride slowed down and the two of them were coasting, enjoying wherever the magic carpet was taking them.
A whole new world
Every turn a surprise With new horizons to pursue Every moment red-letter I’ll chase them anywhere There’s time to spare Let me share this whole new world with you
A whole new world That’s where we’ll be A thrilling chase A wondrous place For you and me
Mark and I never dreamed of the realm we ended up in. Most turns are a surprise, and there continues to be new horizons to pursue. It’s a chase alright and most days I wouldn’t call it thrilling. At our age, it no longer feels like there’s time to spare, but I’m still grateful we’re sharing this world together. Although it’s not the creation we anticipated, it is a wondrous place!
I gain much support and help through meeting with others in like situations. They help make sense of this new world. I’m grateful for friendships made in these groups and their encouragement helps me meet challenges. The experience and knowledge shared is beneficial and uplifting.
The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.
If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email
FREE SUPPORT GROUPSFOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS
February 11, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner, crafts or games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.
February 20, 2020 – IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.
Caregivers meet on the 9th floor Neuroscience Conference Room. Brainstorming, will be led by Candace Floyd, University of Utah.
Survivors meet on the 9th floor gym. Mark Fox, MS, CCC-SLP, will be present Tools for Success. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.
February 25, 2020 – University of Utah Brain Injury Support Group meets at 6 – 7 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. Sarah Gallant and Ally Cayas are over this Support Group. For more information please call (801)581-2221.
FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50
Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room
Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50
FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES
Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.
For more information contact Margo at (801)455-6089 or Utah@efa
February 12, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.
February 13, 2020 – IMC EpilepsyGroup for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.
February 19, 2020 – SLC EpilepsyGroup for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).
TheLogan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089
https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)
Two of my favorite websites. What are yours?
Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.
Hello 2020. The sheer numbers sound like perfect vision. I hope the year generates clarity as we approach life and situations.
A new year, a new decade, new goals, and a new word to motivate, brings renewed hope for improvements. I like to pick one word to direct my thoughts and efforts in reaching my goals throughout the year. Last year my chosen word was “simplify”. I strived to eliminate physical clutter from my life by getting rid of items I no longer need or use. I attempted to relieve mental clutter by accepting situations I can’t change. I worked at being realistic and straightforward about what I could accomplish without being overwhelmed. New projects I took on in a simple, less complicated way. I tried to shorten my to do lists because it’s impossible to accomplish everything I want to. I made mistakes and learned from most of them. Overall, I believe I made progress at simplifying my life. Fortunately, I have a lifetime to further my improvements.
This year my chosen word is “focus”. It seems like the ideal word for 2020, since the digits themselves state that I should be seeing more clearly this year. I will do my best to concentrate my efforts and thoughts on the people and things that matter the most to me. Writing down what I need to do and when it needs to be done will help keep my focus centered on what’s most important. Judging by experience, it won’t be a flawless year, but I’ll give my best shot at enhancing my focus.
The effects of brain injury, epilepsy and caregiving is a focal point in our life. I gain much support and help through meeting with others in like situations. I’m grateful for friendships made in these groups and their encouragement helps me meet challenges. The experience and knowledge shared in these gatherings is beneficial and uplifting.
The purpose of this newsletter is to share information about organizations. In case it’s impossible for you to get out, or you don’t live in this area, I’ve also included links to useful and inspiring websites.
If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.
Have you picked one word to motivate and direct your efforts through this new year? If so, I’d like to hear it and know why you chose it.
FREE SUPPORT GROUPSFOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS
January 2, 2020 – Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.
January 2, 2020 – Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. For questions call Lori Johnson at (801)422-9132.
January 14, 2020 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for dinner and games this month. Bring your favorite dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.
January 16, 2020 – IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.
Caregivers meet on the 9th floor Neuroscience Conference Room. The discussion will be lead by Kim Coletti, MS,CCC-SLP on What to do When Your Loved One Refuses Treatmant.
Survivors meet on the 9th floor gym. Hillary Brown, Tosh Pilates will be presenting Pilates for Survivors. For more information, please call (801)314-2086 or email Emily Redd at emily.redd@imail.org.
January 28, 2020 – University of Utah Brain Injury Support Group meets at 6 – 7 p.m. every 4th Tuesday monthly at Sugarhouse Health Center, 1280 E. Stringham Avenue, 3rd floor conference room, SLC, UT 84106. Sarah Gallant and Ally Cayas are over this Support Group. For more information please call (801)581-2221.
FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East #G50
Meditation Group – Meets every Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference Room
Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at 5770 South 250 East #G50
FREE EPILEPSY SUPPORT GROUPS FOR THOSE EFFECTED BY SEIZURES
Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.
For more information contact Margo at (801)455-6089 or Utah@efa
January 8, 2020 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.
January 9, 2020 – IMC EpilepsyGroup for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.
January 15, 2020 – SLC EpilepsyGroup for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).
West Jordan EpilepsyGroup for Teens, is cancelled this month. If you have any questions, concerns, please contact Margo Thurman @ 801-445-6089.
TheLogan Epilepsy Support Group for All is in the process of looking for a replacement moderator that is as passionate about supporting their community as the last one. This Support Group will be postponed until further notice. If you have any questions, concerns, or information you would like to share, please contact Margo Thurman @ 801-445-6089
https://www.loveyourbrain.com (Kevin Pearce’s nonprofit organization that improves the quality of life of people affected by traumatic brain injury)
Two of my favorite websites. What are yours?
Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, I can add you to the newsletter only list. For this option, please email Barbara@UnitingCaregivers.com.
At the close of another year, I wondered what I should write. There’s no vacation to share or a grand purchase. No new family member or pet added. Yet this year is too defining to ignore or forget. The year we lost our dad. What an odd phrase. He’s not really lost because we know where he is, but unfortunately, he no longer walks by our side. I miss his daily presence in our shared home. I miss discussing ideas, hopes and dreams with him and feeling his support as I set out to make them happen. I miss his direction and help. I miss cutting his hair and helping him weekly fill his pill box. Mostly, I miss hearing his voice.
I think a lot about Dad’s characteristics. My favorite must be how he taught by example to accept life’s difficult situations and make the best of it. This year I’ve tried to do just that, but I haven’t had the years of experience that he had, and comparatively I fall short. I appreciate his “put your shoulder to the wheel push along” attitude. It was most fitting that a grandchild spontaneously stood up for that song at his funeral. Many of us followed suit as his life is identified in the words and were sung as an anthem to honor him. He truly wears “the worker’s seal.” I’ve sang that song in my head more times than I can count this year as I try to “do my duty with a heart full of song,” as I push through the grief.
Dad and I
My choicest memory this year was a simple 4-wheeler ride I had with Dad just a couple of weeks before he passed in the mountains that he loved. We went to the cabin to pick up some material needed for a home project. While we were there, he wanted me to try out the new machines he just bought. I was anxious to get back home to start on the project. Without Mom’s encouragement I might not have gone. Feeling bad that Mark and Mom had to miss out on rides like this, I thought to video some of it to share with them. I drove slower than usual because I was holding my phone in one hand while driving with the other. Trying to stay out of the dust Dad was stirring up for a clearer picture, you can see him leading the way in the distance. After a bit he turns around and drives back towards me to see why I was so slow. I kept recording as we drove nearer towards each other. I always smile at the memory of my 91-year-old dad thinking I was driving too slowly. Each time I watch it I whisper, “ride on Dad,” and I feel the comfort that he is indeed still soaring through those mountains somehow, free from the health issues he continually fought, and refused to give into.
There have been many blessings this year. As my sister stated, it’s been the best and worst of times. The many family members and Mt. Aire community of friends that gathered at the canyon gate to support and comfort us before they brought Dad’s body down the mountain was indeed a blessing in those most difficult, long hours. Numerous people lined the road on both sides as the white truck drove slowly past us. It seemed like the perfect honor for his final mortal exit through that gateway. The love and support felt that night and at the funeral was the most significant gift of this year.
Since no one witnessed the collision, there were so many troubling, unanswered questions. I felt comfort the next morning as Mark and I parked in the spot of Dad’s accident, trying to figure out how and what happened. Attempting to grasp the reality, I notice a brighter than usual gleam on the evergreen trees and bushes in a spot on the mountainside across the road from the crash site. The vivid shining light seem to tell me that Dad passed away in that area of a massive heart attack, and before his truck crashed. This precious gift from God was an important reassurance, especially because I have lived with the aftermath of a life altering accident for 28 years now.
The brilliant, large evergreen trees reminded me that Dad’s love and life is everlasting.
Just as I was marveling at the view and soaking in these thoughts, a canyon neighbor driving down the mountain stopped and asked if we were okay. I told her I felt we were on sacred ground. Her reply was meaningful. She said, “This whole mountain is sacred because your dad’s hands have developed so much of it.” My perspective of the canyon is forever changed by what I’ve learned this year. Mt. Aire has been our family’s second home literally my whole life. I knew my parents loved the mountain and the people there, but I didn’t realize the magnitude of work my dad did on so many other properties. Sharing their love and appreciation for him has helped mend our hearts. Many of the cabin owners went in together to purchase a beautiful memorial bench. Mom and I worked with my daughter, Katie, to design the picture and the words written by the community on it. The engraving is completed now, but the snow is too deep to place it. We’ll have to patiently wait until May 2020.
Another treasured gift this year is a video a Mt. Aire neighbor took of my Dad giving her four year-old “heavy-duty-equipment-obsessed son” for a ride in the backhoe he used to remove some tree stumps on their property, just a few hours before he passed away. What a tender mercy to see his smile, doing what he enjoyed, in the mountain he loved, in his final hours here on earth. This neighbor not only shared the video with us but also wrote a detailed account of the work he had accomplished for them that day and told of her appreciation for him. She could have kept these thoughts to herself, but I’m grateful she didn’t. Her letter is cherished by our family, knowing he lived and loved life to the fullest right up to the end.
Some years are harder than others. What I hope to remember about this year is the comfort and relief from grief that comes from the acts of kindness, friendships and care from others. I hope to do my part in paying it forward. I hope to never forget the importance of making memories by spending time with family and friends.
The engraved granite back rest of Dad’s memorial bench.
What are your favorite 2019 memories or your best discovered truths this past year?
The switch from daylight to standard time always throws my internal clock off. It takes a week or two for me to adjust. Losing the daylight an hour earlier in the evening makes it difficult to accomplish those pressing outside jobs after work. It’s a fact, I get more of my stuff done in the evening than in the morning. At daybreak, I’m devoted to getting Mark up and ready for whatever experience life has planned for him. Since I enjoy working without interruptions, I stay up until I can’t keep my eyes open any longer. I used to fall asleep seconds after my head hits the pillow and stayed that way until the morning alarm goes off. Consequently, I never considered staying up late as a sleeping problem but rather a necessity to get things done. However, the past couple of months have been different. I either struggle to fall asleep because my mind keeps going over unfinished tasks, or on those fortunate nights when I fall asleep quickly, I wake up after a short time. I can’t get back to dreamland because I’m worrying about silly stuff. Believe me, at 2 or 3 a.m. it’s all silly stuff and worry is such a waste of time. The sleepless nights increase my daytime stress level. I miss regular exercise, writing, and eating well planned and prepared meals. It doesn’t take long for a regrettable cycle to form. Insomnia interferes with normal physical, mental and emotional well-being, so I’m trying to improve my sleep disorder one habit at a time.
A few weeks ago, I spent 2 nights in the hospital with Mark which gave me a new appreciation for my own bedroom. It’s a hundred percent more comfortable and peaceful without the beeping sounds of monitoring equipment and hourly nurse interruptions found in a hospital room. The first night home I decided to write a few things about what I appreciated in that day. Thankfully, I slept soundly, so I set a goal to continue the routine. It appears that feeling and expressing gratitude is an antidote for insomnia. It puts my mind in a better place. Setting a bedtime routine and alarm which allows enough time to unwind in a quiet room also helps. Having it get dark an hour earlier can be a bonus too. It’s the perfect month to work on a gratitude attitude and it improves my sleep too.
This month I’m determined to turn over a new leaf by forming at least one good habit. I’m a list maker and it’s usually full of things that need to be completed. This month I’ll continue to list things I’m grateful for like support groups in our area. I appreciate the opportunity to meet with others in like situations. Increasing friendships is well worth the time. Their encouragement helps me meet challenges. The experience and knowledge shared is beneficial.Simply put, it’s uplifting!
The purpose of this newsletter is to
share information about organizations. In case it’s impossible for you to get
out, or you don’t live in this area, I’ve also included links to useful and
inspiring websites.
If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.
Join me in celebrating November by
living in thanksgiving daily and see how it benefits your sleep!
FREE SUPPORT GROUPSFOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS
November 7, 2019 – Utah Valley Aphasia Choir meets at 6-6:45pm
on the 1st Thursday of the month, prior to the support group at the BYU
Speech and Language Clinic. It’s for all brain injury, and stroke survivors,
caregivers, family, and friends. Come and enjoy the power of music and
friendship together. Everyone interested is welcome to join.
November 7, 2019 – Utah Valley Brain Injury Support Group meets
at 7-8:30 p.m. on the 1st Thursday monthly at the
BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo,
UT 84060. Dr. Devin Duval, an optometrist at the Child and Family Eye Care
Center and a member of The Utah Valley Stroke Association Board will speak
about vision rehabilitation. For questions call Lori Johnson at (801)422-9132.
November 12, 2019 – Brain Injury Alliance Support Group for
Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson
Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group
is for caregivers and survivors. Come join us for dinner and games this month.
Bring your favorite dessert to share if you’d like. For more information,
please call Jennifer (801)386-2195, or Beth (801)585-5511.
November 21, 2019 – IMC Caregivers and Survivors Education and Support
Groups, meets at 7 p.m. every 3rd Thursday monthly at
Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107,
building 1.
Caregivers meet on the 9th floor Neuroscience
Conference Room. Jennifer Roney topic is yoga and meditation.
Survivors meet on the 9th floor gym. Stephanie
Obradovich, PT topic is Staying Active Through the Winter. For more
information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org
November 24, 2019 – University of Utah Brain Injury Support Group meets
at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health
Center, 1138 E. Wilmington Avenue, SLC, UT 84106. For more information
please call Annie Wallace at (801)581-2221.
FREE WEEKLY
GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at
5770 South 250 East #G50
Meditation Group – Meets every Wednesday, 3 p.m. at
5770 South 250 East Cafeteria Conference Room
Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at
5770 South 250 East #G50
FREE EPILEPSY SUPPORT GROUPS FOR
THOSE EFFECTED BY SEIZURES
Together we share coping strategies, provide encouragement, comfort and advice from people with common experiences.
For more information contact Margo at (801)455-6089 or Utah@efa
This Saturday, November 9, 2019 – Utah’s Seizure Strategies Seminar at the U of U Clinical Neurosciences Center, 1st floor auditorium. 175 N. Medical Dr., SLC, UT from 9a.m. to 1:30p.m.
November 13, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.
November 14, 2019 – IMC EpilepsyGroup for All, meets
at 7:00 – 8:30 p.m. on the 2nd Thursday at the
Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor
– CR2 in the Doty Education Center.
November 20, 2019 – SLC EpilepsyGroup for All, meets
at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC
Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).
November 28, 2019 – West Jordan
EpilepsyGroup for Teens, meets
at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan
Library, 8030 S. 1825 W., West Jordan, UT. Come and enjoy an
activity and meet other teens with epilepsy. There are two teachers overseeing
this group.
TheLogan Epilepsy Support Group for All is in the
process of looking for a replacement moderator that is as passionate about
supporting their community as the last one. This Support Group will be
postponed until further notice. If you have any questions, concerns, or
information you would like to share, please contact Margo Thurman @
801-445-6089
Thank you for reading. I hope you found
the information helpful and will follow this website via email to receive
notifications of every new post. The “Follow” button is located at the
beginning of the newsletter. However, if you want to subscribe only to a
monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you
to the newsletter email list and send it to you.
Welcome September. I appreciate the changes a season brings and the opportunity it gives me to realign my focus on the next phase. Instead of planting and growing a garden, my focus turns to preserving the fruits and vegetables thereof. The loaded fruit trees look like they needed some thinning out in the previous months. Had I done this the fruit would have been bigger and more desirable. This was a hard summer for me with the death of my father. My attention has been all over the place, or not at all. The encumbered branches remind me I need to thin out the less important in order to concentrate my energy on fewer things to achieve bigger and more fulfilling results. Some weighed down limbs appear to be at their breaking point. I can relieve the heavy burden by taking some of the load. Choosing where to start, or what to focus on first is the real challenge.
Do you ever feel like you’re at a breaking point? Do you feel alone, overwhelmed with responsibilities, or mourning? Do you wish you could unload some of your worries? If so, please take advantage of a support group before you break. Meeting with others in like situations is sweet, planting friendships, which can grow and may be preserved for a lifetime. Branching out strengthens us to better meet our challenges. The experience and knowledge shared in a group will produce good results.
The purpose of this newsletter is to
share information about organizations which I know about in hopes to help you.
In case it’s impossible for you to get out, or you don’t live in this area,
I’ve also included links to useful and inspiring websites.
If you have an activity,
announcements or other information you’d like shared in this newsletter, please
add them in the comments or email Barbara@UnitingCaregivers.com.
I love autumn and I’m ready for a change! I hope you are too.
FREE
SUPPORT GROUPSFOR STROKE AND BRAIN INJURY
SURVIVORS AND CAREGIVERS
September 5, 2019 – Utah Valley Aphasia Choir meets at 6-6:45pm
on the 1st Thursday of the month, prior to the support group at the BYU
Speech and Language Clinic. It’s for all brain injury, and stroke survivors,
caregivers, family, and friends. Come and enjoy the power of music and
friendship together. Everyone interested is welcome to join.
September 5, 2019 – Utah Valley Brain Injury Support Group meets
at 7-8:30 p.m. on the 1st Thursday monthly at the
BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo,
UT 84060. For questions call Lori Johnson at (801)422-9132.
September 10, 2019 – Brain Injury Alliance Support Group for
Adults, 6-8 p.m. meets every 2nd Tuesday monthly at
Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This
social group is for caregivers and survivors. Come join us for a birthday
celebration with dinner and games this month. Bring your favorite topping, side
dish or dessert to share if you’d like. For more information, please call
Jennifer (801)386-2195, or Beth (801)585-5511.
September 19, 2019 – IMC Caregivers and Survivors Education and Support
Groups, meets at 7 p.m. every 3rd Thursday monthly at
Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107,
building 1.
Caregivers and Survivors meet this month together on the 9th floor,
in the Neuroscience Conference Room. An entertaining special guest speaker,
Dr. Matt Townsend will be speaking to us on relationships. For more information,
please call (801)314-2086 or email Emily Redd emily.redd@imail.org
September 24, 2019 – University of Utah Brain Injury Support Group meets
at 7-8 p.m. every 4th Tuesday monthly at Sugarhouse Health Center,
1138 E. Wilmington Avenue, SLC, UT 84106. This month I will be leading the
discussion on AligningYour Focus.For more information please
call Annie Wallace at (801)581-2221.
FREE
WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at
5770 South 250 East #G50
Meditation Group – Meets every Wednesday, 3 p.m. at
5770 South 250 East Cafeteria Conference Room
Cognitive Skills Group – Meets every Thursday Noon-1 p.m. at
5770 South 250 East #G50
FREE EPILEPSY SUPPORT GROUPS FOR
THOSE EFFECTED BY SEIZURES
Together we share coping strategies,
provide encouragement, comfort and advice from people with common experiences.
For more information contact Margo at (801)455-6089 or Utah@efa
September 11, 2019 – Provo Epilepsy Group for All, meets
at 7:00 – 8:15 pm on the 2nd Wednesday at
the Provo City Library, 555 N. University Ave., Provo, UT.
September 12, 2019 – IMC EpilepsyGroup for All, meets
at 7:00 – 8:30 p.m. on the 2nd Thursday at the
Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor
– CR2 in the Doty Education Center.
September 18, 2019 – SLC EpilepsyGroup for All, meets
at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC
Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).
September 26, 2019 – West Jordan
EpilepsyGroup for Teens, meets
at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan
Library, 8030 S. 1825 W., West Jordan, UT. Come and enjoy an
activity and meet other teens with epilepsy. There are two teachers overseeing
this group.
TheLogan Epilepsy Support Group for
All is
the process of looking for a replacement moderator that is as passionate about
supporting their community as the last one. This Support Group will be
postponed until further notice. If you have any questions, concerns, or
information you would like to share, please contact Margo Thurman @
801-445-6089
Thank you for reading. I hope you
found the information helpful and will follow this website via email to receive
notifications of every new post. The “Follow” button is located at the
beginning of the newsletter. However, if you want to subscribe only to a
monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you
to the newsletter email list and send it to you.
Normally I post Uniting Caregivers Newsletter by the first of every month, however life is not normal. I lost my dad unexpectedly last month. If you follow my blog, you know how involved he’s been in my life, especially in helping me meet the challenges of caregiving. He’s been my rock, or the wind in my sail, whichever was needed. We built a home together after our car accident and we’ve lived with my folks for the past twenty-three years. Dad made sure that it was wheelchair accessible to make our life easier. He’s been able to repair whatever needed fixing. Learning to live without him feels overwhelming and some days impossible.
Dad fought heart disease since 1985 with first a triple bi-pass, then 10 years later stents. Two years ago, he had a heart valve replaced, and then needed a pacemaker. He was determined to live life to its fullest and was disappointed when the doctors told him there wasn’t anything more they could do to improve his heart function. Unwavering, he set out to make the best of it, just as he always did.
When Dad had an illness he often said, “I just need to work it off.” He grew up on a farm and made his living working construction. He was a talented heavy equipment operator but never shirked from digging with a hand shovel if needed. He played as hard as he worked. If he wasn’t physically active, he was sleeping. He believed activity would cure whatever ails you and he worked up to his last day.
Sometimes his philosophy caused contention between us as I tried to get him to slow down. My attempts irritated him, and his continued busyness frustrated me. I just wanted to preserve him. He didn’t feel he needed preservation. My worry became reality when a massive heart attack took him instantly. I had no warning that day would be his last. I’d almost become accustomed to the fear I’d felt for the past two years that it would end just as it did. The day it happened, I realized it probably was the only way for him. No long suffering. Not even a day lying in bed. He left this world in the mountain he helped develop with roads, waterlines and cabins over the past 68 years. He referred to this high land as paradise and while driving from one job to another job, he departed from his earthly hill haven to a heavenly one. Fortunately, he was on a private road and no one else was injured. We’re grateful for his 91 years, but we’re left mourning and wondering what he’s working on now. I’m sure his spirit is still busy.
Work didn’t cure Dad’s ailments, but it sure made him feel better. He lived happy with his trials and health limitations. I’m inspired by people who push through hardships. Energetically working towards a goal regardless of pain or discomfort. Pressing forward despite discouragement. Making a concentrated effort to pull upward and out of whatever obstacle is keeping you down. Day-by-day I practice in hope of making improvements. I don’t know how to live without Dad because I’ve never had to until now. Adapting to a lifestyle change takes time. I’m trying to be patient with myself as I learn and adjust.
Family and friends who share our
love for my dad lighten the darkness. Appreciation has grown for friendships
we’ve made through support groups who may not know my dad but still share in
our sorrow. Friends who understand another aspect of our complicated life such
as living with the effects of a severe traumatic brain injury and epilepsy. I’m
so grateful for people who surround us and strengthen our abilities to meet our
challenges. Especially in difficult circumstances we can’t have too many
friends!
If you’re feeling alone, overwhelmed with responsibilities, or mourning, take advantage of a support group. Meeting with others in like situations is uplifting and makes us stronger to meet challenges. The experience and knowledge shared is beneficial. Expanding your network of friends is priceless, especially during hard times.
The purpose of this newsletter is to
share information about organizations which I know about in hopes to help you.
In case it’s impossible for you to get out, or you don’t live in this area,
I’ve also included links to useful and inspiring websites.
If you have an activity,
announcements or other information you’d like shared in this newsletter, please
add them in the comments or email Barbara@UnitingCaregivers.com.
FREE SUPPORT GROUPSFOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS
August 1, 2019 – Utah Valley Aphasia Choir meets at 6-6:45pm on the 1st Thursday of the month, prior to the support group at the BYU Speech and Language Clinic. It’s for all brain injury, and stroke survivors, caregivers, family, and friends. Come and enjoy the power of music and friendship together. Everyone interested is welcome to join.
August 1, 2019 – Utah Valley Brain Injury Support Group meets at 7-8:30 p.m. on the 1st Thursday monthly at the BYU Speech and Language Clinic, Room #177. Address: 1190 North 900 East, Provo, UT 84060. For questions call Lori Johnson at (801)422-9132.
August 13, 2019 – Brain Injury Alliance Support Group for Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf Center, 5709 South 1500 West, SLC, UT 84123. This social group is for caregivers and survivors. Come join us for a birthday celebration with dinner and games this month. Bring your favorite topping, side dish or dessert to share if you’d like. For more information, please call Jennifer (801)386-2195, or Beth (801)585-5511.
August 15, 2019 – IMC Caregivers and Survivors Education and Support Groups, meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1.
Caregivers meet on the 9th floor, in the Neuroscience Conference Room. This month Katherin Kitchen Andren, PhD will be discussing Advocacy and Resources for Caregivers.
Survivors meet on the 9th floor Gym. This month Dr. Karen Blackwood will be speaking on Emergency Preparedness for Individuals with Disabilities. For more information, please call (801)314-2086 or email Emily Redd emily.redd@imail.org
August 27, 2019 – University of Utah Brain Injury Support Group meets at 7-8 p.m. every 4th Tuesday monthly usually at Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. This month we’ll meet at Sugar House Park, the Fabian Lakeside Pavilion for a summer picnic. Sandwiches provided. Please bring a side dish to share. For more information please call Annie Wallace at (801)581-2221.
FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia
Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East
#G50
Meditation
Group – Meets every
Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference
Room
Cognitive
Skills Group – Meets every
Thursday Noon-1 p.m. at 5770 South 250 East #G50
Together we share coping strategies, provide encouragement,
comfort and advice from people with common experiences. For more information
contact Margo at (801)455-6089 or Utah@efa.org.
August 1, 2019 – Logan Epilepsy Support Group for All meets at 7 – 8 pm on the 1st Thursday at the Logan Regional Hospital 500 E. 1400 N., Logan, UT 84341.
August 8, 2019 – IMC EpilepsyGroup for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center, 5171 S. Cottonwood St., Murray, UT Bldg. 6, 1st floor – CR2 in the Doty Education Center.
August 14, 2019 – Provo Epilepsy Group for All, meets at 7:00 – 8:15 pm on the 2nd Wednesday at the Provo City Library, 555 N. University Ave., Provo, UT.
August 21, 2019 – SLC EpilepsyGroup for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400 S., SLC, UT (3rd floor conference room).
August 22, 2019 – West Jordan EpilepsyGroup for Teens, meets at 7 – 8:30 p.m. on the 4th Thursday at the West Jordan Library, 8030 S. 1825 W., West Jordan, UT. Come and enjoy an activity and meet other teens with epilepsy. There are two teachers overseeing this group.
Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.
The summer weather brings lots of great outdoor activities. Warm evenings are a perfect match for enjoying outdoor concerts, a picnic and this month the dark sky often lights up with colorful fireworks. Morning bike rides are an excellent way to start the day. Thanks to the University of Utah and their TRAILS cycling program, Mark had his first bike ride in over twenty-eight year.
We
appreciate the opportunities in our state that assist us in kayaking, sailing,
and biking. Tanja Kari, Program Administrator of the TRAILS Paralympic Sports
Club is eager to make it all possible. She is enthusiastic and seemed to enjoy
the challenge of getting pedals and straps that fit Mark’s abilities to make
his ride enjoyable and successful. Working with her and the TRAILS team is a
pleasure.
We
are looking forward to their overnight camp at East Canyon State Park this
month. They are a caring and fun group of people to be with. If you are
interested in joining us or want more information concerning their programs,
contact Tanja Kari at tanja.kari@hsc.utah.edu or call 801-428-9815. They also have
scheduled weekday kayaking and sailing opportunities this month along with a
cycling program which includes road and mountain biking. Indoor spinning
happens in November through February. Cross country and downhill skiing start
as soon as we have enough white on the ground. These programs
feature the latest equipment and are staffed by specialized professionals and
volunteers.
How
do I find out about programs like this? I go to as many of the support groups
as my time will allow. Friends and facilitators found in these groups are a
wealth of knowledge. We gain valuable information through collaborating and
associating with others in like situations. We’re grateful for people who
understand and desire to strengthen our abilities to meet our challenges.
Being responsible for the care and well-being
of another can be overwhelming, but it’s rewarding too. It seems like summer
creates never ending yardwork on top of all other duties. Making time to enjoy
outdoor activities with others is refreshing. I hope you’ll join us for a bike
ride, kayaking or sailing excursion. It feels great to have a break from the
daily grind and the exercise is a bonus to the fun. We’re excited for the
overnight camp this month. Living with the effects of a severe traumatic brain
injury and epilepsy helps me understand that every day is a bonus day and we
need to take advantage of pleasurable opportunities to make the most out of
life.
The purpose of this newsletter is to share
information about organizations which I know about in hopes to help you. In
case it’s impossible for you to get out, or you don’t live in this area, I’ve
also included links to useful and inspiring websites.
If you have an activity, announcements or other information you’d like shared in this newsletter, please add them in the comments or email Barbara@UnitingCaregivers.com.
FREE SUPPORT GROUPS
FOR STROKE AND BRAIN INJURY SURVIVORS AND CAREGIVERS
Utah Valley Aphasia Choir is cancelled this
month. Usually
we meet at 6-6:45pm on the 1st Thursday of the month, prior to the
support group at the BYU Speech and Language Clinic. August 1st will
be our next meeting for all brain injury, and stroke survivors, caregivers,
family, and friends. Come and enjoy the power of music and friendship together.
Everyone interested is welcome to join.
Utah
Valley Brain Injury Support Groupis also cancelled this
month. Usually we meet at 7-8:30
p.m. on the 1st Thursday monthly
at the BYU Speech and Language Clinic, Room #177. Address: 1190 North
900 East, Provo, UT 84060. This month both the Aphasia Choir and Support
Group is cancelled due to the July 4th holiday. For
questions call Lori Johnson at (801)422-9132.
July
9, 2019 – Brain Injury Alliance Support Group for
Adults, 6-8 p.m. meets every 2nd Tuesday monthly at Sanderson Community Deaf
Center, 5709 South 1500 West, SLC, UT 84123. This social group is for
caregivers and survivors. Come join us for a summer salad bar for dinner
and games this month. Bring your favorite topping, side dish or dessert to
share if you’d like. For more information, please call Jennifer (801)386-2195, or
Beth (801)585-5511.
July
11, 2019 – IMC Caregivers
and Survivors Education and Support Groups, normally meets at 7 p.m. every 3rd Thursday monthly at Intermountain Medical
Center, 5171 S. Cottonwood St., Murray, UT 84107, building 1. However, this
month the caregivers and survivors combine for a summer picnic at Snowbird with
Wasatch Adaptive Sports at 5:30pm on the 2nd Thursday. Sandwiches
and paper goods provided. Bring a side dish or dessert to share. Free tram rides
& trail hiking to the observation deck. PLEASE remember the
change in locationand timethis month only: 9385
S. Snowbird Center Drive, Snowbird, UT 84092.
University of Utah Brain Injury Support Groupis cancelled this month. Usually we meet at 7-8
p.m. every 4th Tuesday monthly at
Sugarhouse Health Center, 1138 E. Wilmington Avenue, SLC, UT 84106. See you in August. For more information
please call Annie Wallace at (801)581-2221 Due to the Utah State Pioneer
Holiday.
FREE WEEKLY GROUPS INTERMOUNTAIN HEALTH CARE NEURO THERAPYin Murray, Utah
Aphasia
Talking Practice Group – Meets every Tuesday, Noon-1 p.m. at 5770 South 250 East
#G50
Meditation
Group – Meets every
Wednesday, 3 p.m. at 5770 South 250 East Cafeteria Conference
Room
Cognitive
Skills Group – Meets every
Thursday Noon-1 p.m. at 5770 South 250 East #G50
Together we share coping strategies, provide encouragement,
comfort and advice from people with common experiences. For more information
contact Margo at (801)455-6089 or Utah@efa.org.
Logan Epilepsy Support Group for All has been
canceled due to Independence Day. Usually they meet from 7 – 8 pm on the 1st Thursday at the Logan
Regional Hospital500 E. 1400 N., Logan, UT 84341.
July 10, 2019 – Provo Epilepsy Group for All, meetsat7:00 – 8:15 pm on the 2nd Wednesday at the Provo City
Library, 555 N. University Ave., Provo, UT.
July 11, 2019 – IMC EpilepsyGroup for All, meets at 7:00 – 8:30 p.m. on the 2nd Thursday at the Intermountain Medical Center,
5171 S. Cottonwood St., Murry, UT Bldg. 6, 1st floor –
CR2 in the Doty Education Center.
July 17, 2019 – SLC EpilepsyGroup for All, meets at 6:30 – 8:30 p.m. on the 3rd Wednesday at the SLC Main Library 200 E. 400
S., SLC, UT (3rd floor conference room).
July 25, 2019 – West Jordan EpilepsyGroup for Teens, meets at 7 – 8:30
p.m. on the 4th Thursday at the West
Jordan Library, 8030 S. 1825 W., West Jordan, UT. Come and enjoy an
activity and meet other teens with epilepsy. There are two teachers overseeing
this group.
Thank you for reading. I hope you found the information helpful and will follow this website via email to receive notifications of every new post. The “Follow” button is located at the beginning of the newsletter. However, if you want to subscribe only to a monthly newsletter, please email Barbara@UnitingCaregivers.com. I will add you to the newsletter email list and send it to you.
Uniting Caregivers 